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Nayzam

New member
Joined
May 9, 2016
Messages
3
Reason
DX FIBRO
Diagnosis
07/2001
Country
USA
State
MA - Massachusetts
Hi, I am new to this forum, and so very happy to have found it. I am a 40 year old mother of 3. I had been diagnosed over 10 years ago by a rheumatologist; however, my primary had me convinced for years that it was a disease that doctors had made up. That they just came up with a name for patients with issues like ours and grouped them as having fibromyalgia when they really didn't know what the real issue was. I had trusted his claim because I had a hard time believing in a diagnosis for something that they didn't have a true test for other than symptoms and pressure points. Because of this disbelief, I have been left completely untreated for ten years. I have suffered the pain, fatigue, and we'll I don't need to continue as everyone here knows.
The " brain fog" became more apparent a little over a year ago which has finally brought me to accepting that this illness is for real. That I am not just over worked or under stress....that how I have felt and pushed myself through for over ten years untreated was a real disorder. That with treatment my days could go bit easier.
After my husband finally forced me to find out what is wrong with me, i had gone through over 6 months worth of tests by many different specialists. After being told by a new rheumatologist, orthopedic surgeon and neurologist that fibromyalgia was definitely one of my ailments, I knew that there was no way that these specialists were all in the same mindset of "grouping" me with a fictitious disorder and that it was definitely time to get a new primary. I'm on the hunt for one now!
Unfortunately, I am still left untreated as every specialist had suggested I go back to my primary and after I explained to them that he does not believe in fm they recommend pain management. Well, I live in a small town. We have one pain management center. I called to schedule an appointment in late March and was given an appointment for mid August. So, I continue to suffer with the fm, degenerative arthritis throughout my body, spinal stenosis and 2 bulging disks.
I have been online researching fm and stumbled upon this forum. I must say, it was like I have been in a crowded room w ith strangers and this forum was finally a familiar face. It is amazing to read everyone's stories and understand exactly how you all feel. I have always been the type to push through everything, fight the fatigue, deal with the pain, put on the happy face, because I thought this was all in my head. I thought that how I felt was a result of having worked a very physically straining job for 50, 60 hours a week for 17 years. I can't explain how it makes me feel to know it is not in my head and that I am not being a "whimp" about how I have been feeling.
I am so sorry for this lengthy introduction, but I really needed to get this all out there to people who will understand for a change. I look forward to meeting some "familiar faces" so to speak.
 

Icebear

Member
Joined
Jan 3, 2016
Messages
15
Reason
DX FIBRO
Diagnosis
01/2016
Country
FIN
State
Pirkanmaa
Hi,
No problem about long story of yours. I really understand how it feels to tell without need to explain. When everybody knows what are you talking about.
I am also 40 year old soon, but met fm just few months ago with the name. I am member of this forum and couple of facebook groups with my mother language. It is reliefing to read other people's posts and know that I'am not the only one. And, more better than that, it is not my imagination - it is real.
 
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