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sarver

New member
Joined
Dec 30, 2015
Messages
2
Reason
Undiagnosed
Diagnosis
12/2015
Country
US
State
Il
Hello, i am new to the forum. Have no one else to talk to that cares. My boyfriend just doesn't get it that I'm tired and sore always and can't do what he always wants to, plus I'm having trouble working and he wants my rent $. Mine started with Mono in May 2015, after a few months of that pain and fatigue my pain starting feeling different, Had a lot of shooting nerve pains, skin hurt to touch, as well as always tired muscle and joints always aching, some days worse than others.
I am to the point now that muscle relaxers and tramadol barely take the edge off of the pain. Some days I can't walk or I have no grip strength in my hands. Doc would give any different meds.
I am just at a loss. I don't know what to do! I'm in constant pain somewhere or everywhere in my body. My job is taking care of an elderly couple, I can't do it much anymore because they require lifting and things that I just don't have the strength or stability to do, not to mention the fog where I forget most of what I have done for the day, so need a different job.
My boyfriend is not supportive, doesn't understand how I feel.
I am taking all the right meds for Fibro. My Doc just keeps saying if it is Fibro we have the basis covered. I say NOT well enough, depressed TIRED of the pain, sick of it!
EMGs are the only tests left, get them next week.
I am 40 years old and feel like my life is over, I don't want to live like this!
 

moe1959

Very helpful member
Joined
Sep 13, 2014
Messages
708
Reason
Undiagnosed
Diagnosis
09/2014
Country
US
State
wa.
Your not alone! Keep reasearching, watch some u tube person al testamonies, this helped me. As for your boyfriend, that's a tough one, but also a test of his love for you.....ouch sorry but it's true. Thank God your not Married. Can you look into disability? If you can, you might qualify for houseing, and food. Look at the bigger picture, don't give up. Lol I'm preaching to myself!,,,,
Hang in ok?
 

diamond

Legendary member
Joined
Sep 18, 2015
Messages
1,548
Reason
DX FIBRO
Diagnosis
01/2008
Country
UK
State
anywhere
Sweetheart you do need some support...Moe is right.

Your boyfriend needs a wake up call. Show him this website...print information from the web for him to read.Tell him nicely YOU NEED HIS HELP!

I don't know about disability in the US >.i believe like here its tough. I have seen other people write about getting a lawyer and all thier medical records and making sure your doctors and any specialists know how badly you are suffering and in what way so it is documented to support your claim.

Some one with fibro as bad as you have really can't be doing a heavy duty caring job its just too much to expect of yourself and if your boyfriend is any kind of guy he will listen and take the pressure off you.

Could you change jobs to something much less demanding and reduce your hours. Truly this is the only way you are going to get this illness manageable.

You need rest ...less pressure and gentle exercise not lifting poorly elderly folk..YOU are poorly and YOU COUNT!

Have you seen a rheumatologist who may beable to help you more with meds and other forms of therapy..pool therapy...councelling etc.

Please make some changes geared towards looking after your health. Money isn't everything. i know you need money to pay bills but this is a time when health comes before all but the necessities and maybe your boyfriend could pay more as he has the luxury of his health.

Stay on here.... we all care and understand. Don't give up. I send you a gentle hug from the cold wet UK x
 

sarver

New member
Joined
Dec 30, 2015
Messages
2
Reason
Undiagnosed
Diagnosis
12/2015
Country
US
State
Il
I have seen a Rheumatologist, she said I do not have inflammation in my joints so no autoimmune disease. Tested Vit D, was low, made it through 2 doses of 50,ooo units a week of vit d, then turned horribly ill, worse pain, confusion, forgetfullness. So stopped it, now taking 5,000 a day. Pain just never stops, todays main complaint is that my skin hurts in various places. My doc is scheduling my EMG for upper and lower extremities and physical therapy. In the mean time I just have to hope I can find an easy, light load baring job. Thank you, willow
 

diamond

Legendary member
Joined
Sep 18, 2015
Messages
1,548
Reason
DX FIBRO
Diagnosis
01/2008
Country
UK
State
anywhere
Well fibro doesn't give you inflammation in your joints the reasons for the pain is undetectable. I can recommend a good book The first year with fibromyalgia by Claudia Marek.

I hope your boyfriend steps up and you can find a less demanding job or you can file for disability soon.
 

KikiJB

New member
Joined
Jan 19, 2016
Messages
8
Reason
DX FIBRO
Diagnosis
01/2016
Country
UK
State
Staffordshire
Hi Sarver,

I am in total agreeable with Willow I have read her blogs and her words are very helpful. I completely understand what you are feeling too after being diagnosed in January 2016 after being hospitalised for a week underwent so many blood tests, x-says and MRI's etc all came back normal. I was shocked to say the least how could they come back ok if I was in so much pain everywhere!!!!!

I am currently on 900mg of Gabapentin, 400mg of Tramadol and wooing of Paracetamol daily plus have Type 1 diabetes, IBS, Gastro Oeasophageal Reflux, Underactive thyroid and depression and extreme fatigue I am a single mum with 2 children and am currently going through dismissal procedures at work as they say that they cannot any longer support my absence. So I can totally relate but you need to concentrate on you and your health. I am very lucky to have the most supportive family and boyfriend who I can talk to but this website is a good day to get advice and speak to people and there are alot that can relate to fibro. Sending you love and support. Kiki xxx
 
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