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scrapping

New member
Joined
Jan 17, 2015
Messages
1
Reason
Undiagnosed
Diagnosis
02/2014
Country
CA
State
On
Hello All,

I am a newbie to this forum. I was diagnosed about a year ago with Fibromyalgia. I have been suffering for years and just thought it was restless lets, aging and over weight. About three years ago I developed sores in the inside of my lips and a very tender tongue. After seeing a few dentists (my dr's advice) and a few dental specialists no one new what it was. My dr. finally decided to consult a dermatologist who after quite some time he decided it was Pemphigus. This diagnosis was made by tele health visits and the nurse taking pictures with a regular camera of my mouth and sending them to the dr. He also required a couple of biopsies as well as extensive blood work. He was stumped and finally said it was pemphigus. This is also when I started to tell my dr about my sore legs, sensitive skin etc. He told the dermatologist who then said maybe I have lupus and sent me to a Rhumotoligist (not sure how to spell it) she told me it definitely was not lupus but fibromyalgia and sent a note to my dr. I have not been to the tele health in about 2 years and my dr. has moved so I do not have a new dr as of yet.
 

1sweed

Moderator
Joined
Feb 4, 2013
Messages
1,956
Reason
DX FIBRO
Diagnosis
01/1995
Country
US
State
PA
Hello scrapping, and welcome to the forum. Glad you found us. We are a very supportive group so jump in and start asking questions and sharing answers to others questions. The hardest part of any illness is managing the symptoms. And the best thing you can do is to read the posts in the sections of the forum that relate to your problems, like pain or fatigue, and general fibro questions or alternative methods. read through the new and older posts to learn some new coping and management skills. Offer your own hints or ideas on the different subject matter.

We are supportive and try to give honest answers to all questions. there are off-topic subjects, as well as, a place to vent on bad days. I am glad you found us and hope you come often and offer your opinions on all interesting sections and topic's around the forum. :)
 
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