Newly Diagnosed : Decreased tolerance to Exercise

wilkesjosiah

New member
Joined
Feb 15, 2020
Messages
4
Reason
DX FIBRO
Diagnosis
10/2019
Country
AU
State
NS
Hello everyone ,

I have been diagnosed with fibromyalgia for 5 months now. Over the last few weeks I have felt as if I have completly lost my ability to exercise. A few months ago I was able to do 40 kg on a leg press at the gym but today i could only handle 10kg. I am also noticing getting fatigued even when Im only stretching. Last week i tried to stretch at the end of the day and got a burning feeling in my legs and knees after 5 minutes. This happened again at physio , after doing a stretch for 30 seconds.

Just wondering if this has happened to anyone else? Has anyone else found they have suddenly become weaker ? Has anyone else found that stretching causes flare ups ? Wondering what I can do to maintain some form of activity !
 

sunkacola

Senior member
Joined
Dec 2, 2016
Messages
453
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Hello everyone ,

I have been diagnosed with fibromyalgia for 5 months now. Over the last few weeks I have felt as if I have completly lost my ability to exercise. A few months ago I was able to do 40 kg on a leg press at the gym but today i could only handle 10kg. I am also noticing getting fatigued even when Im only stretching. Last week i tried to stretch at the end of the day and got a burning feeling in my legs and knees after 5 minutes. This happened again at physio , after doing a stretch for 30 seconds.

Just wondering if this has happened to anyone else? Has anyone else found they have suddenly become weaker ? Has anyone else found that stretching causes flare ups ? Wondering what I can do to maintain some form of activity !
Hi there. Yes, I found very similar things happened to me. I used to work out with weights at home, but my hands and wrists started hurting so much I could no longer lift the weights, not even 8 pound dumbells, without causing excruciating pain later in the day and the next day. I had to stop lifting weights altogether, which was very sad and discouraging for me at first.

Fatigue caused me to stop hiking, which was my most avid activity. for a while there, I did almost nothing. But then, I decided I had to be doing something or I would just get worse and weaker, so I started walking again and doing light hikes, and I worked my way back up slowly. Now I am hiking at least once a week again, and planning to take a trek this spring.

I also started dancing once or twice a week in a class that is very vigorous, but allows me to move at the pace that suits me if needed. On good days it is a lot of exercise, on not so good days it is still at least moving my body for 2 hours.

I have found I have to pace myself, but even on days when I think I can't, I make myself get up and go outside and move at least a bit. I have found that keeping active the best I can on each day has been the best thing I could do for myself.

It has been very hard to lose the strength I worked so hard to have lifting weights. But I do my best to focus on what I can do, and do that.

Best of luck to you!
 

emma

Active member
Joined
Feb 5, 2020
Messages
38
Reason
DX FIBRO
Diagnosis
01/2013
Country
UK
swimming , walking and yoga, gentle exercise my doctor told me.
 

wilkesjosiah

New member
Joined
Feb 15, 2020
Messages
4
Reason
DX FIBRO
Diagnosis
10/2019
Country
AU
State
NS
Hi there. Yes, I found very similar things happened to me. I used to work out with weights at home, but my hands and wrists started hurting so much I could no longer lift the weights, not even 8 pound dumbells, without causing excruciating pain later in the day and the next day. I had to stop lifting weights altogether, which was very sad and discouraging for me at first.

Fatigue caused me to stop hiking, which was my most avid activity. for a while there, I did almost nothing. But then, I decided I had to be doing something or I would just get worse and weaker, so I started walking again and doing light hikes, and I worked my way back up slowly. Now I am hiking at least once a week again, and planning to take a trek this spring.

I also started dancing once or twice a week in a class that is very vigorous, but allows me to move at the pace that suits me if needed. On good days it is a lot of exercise, on not so good days it is still at least moving my body for 2 hours.

I have found I have to pace myself, but even on days when I think I can't, I make myself get up and go outside and move at least a bit. I have found that keeping active the best I can on each day has been the best thing I could do for myself.

It has been very hard to lose the strength I worked so hard to have lifting weights. But I do my best to focus on what I can do, and do that.

Best of luck to you!
Do you find yourself in a cycle of gaining strength , getting a flare up and then loosing it again ?

This week I have tried going to a gym and using a hydromassage every day and then stretching and then doing maybe 10 min of weights every other day. Just trying to get some sort of strength back as I am finding it difficult to work
 

sunkacola

Senior member
Joined
Dec 2, 2016
Messages
453
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Yes, I experienced exactly that cycle. I would get enthusiastic about getting stronger again, set up a plan of building up slowly, start working out again, and it would go so well at first that I would be convinced that it was going to be fine.

then, the pain would come and I would have to stop and I would be in a bad period of pain for a week or two. I would get terribly discouraged and depressed about it, go through that, recover from it, and then a few months later I would try again with the same results.

I am not doing that cycle any more, because it is not productive at all. I am sad that I had to give up the weights, because I really enjoyed doing that and loved how it made my body so strong. But I have had to accept it.

The hardest part for me, really, is that I always used to be the person who would say "Hey, I've got that, I can lift that, I can open that, I can do that" and I would. Now, I am the person who has to say "would you lift that for me, because I'm afraid I cannot." I don't like that at all. But I have learned something. 1) My worth as a person is not delineated by whether I can lift over 40 pounds or not. 2) My feeling upset about having to ask for help is merely a kind of pride that I can do without, so maybe it's good to have learned this lesson.

What I do now is dance and hike. I have found that hiking, which I have always loved to do, is something I can regulate effectively without overdoing it, because I can just do a shorter hike or an easier one, or a harder and steeper one, as the day seems to need. I hike one or two days a week if I can, but at least one day a week.
And, I do a pretty strenuous dance class once or twice a week for 2 to 4 hours. This is a class where I can get a real workout if I can and choose to, or can take it easy the whole time while still at least being out of the house and moving my body, which I have found to be very important.

If you really tune in to your body and learn to listen to it and what it is telling you (another useful skill that having Fibro has taught me), you will know what you can do and what you cannot. Experiment. You will, if you are like me and determined to be active in whatever way you can, find your own groove. :)
 

wilkesjosiah

New member
Joined
Feb 15, 2020
Messages
4
Reason
DX FIBRO
Diagnosis
10/2019
Country
AU
State
NS
Yes, I experienced exactly that cycle. I would get enthusiastic about getting stronger again, set up a plan of building up slowly, start working out again, and it would go so well at first that I would be convinced that it was going to be fine.

then, the pain would come and I would have to stop and I would be in a bad period of pain for a week or two. I would get terribly discouraged and depressed about it, go through that, recover from it, and then a few months later I would try again with the same results.

I am not doing that cycle any more, because it is not productive at all. I am sad that I had to give up the weights, because I really enjoyed doing that and loved how it made my body so strong. But I have had to accept it.

The hardest part for me, really, is that I always used to be the person who would say "Hey, I've got that, I can lift that, I can open that, I can do that" and I would. Now, I am the person who has to say "would you lift that for me, because I'm afraid I cannot." I don't like that at all. But I have learned something. 1) My worth as a person is not delineated by whether I can lift over 40 pounds or not. 2) My feeling upset about having to ask for help is merely a kind of pride that I can do without, so maybe it's good to have learned this lesson.

What I do now is dance and hike. I have found that hiking, which I have always loved to do, is something I can regulate effectively without overdoing it, because I can just do a shorter hike or an easier one, or a harder and steeper one, as the day seems to need. I hike one or two days a week if I can, but at least one day a week.
And, I do a pretty strenuous dance class once or twice a week for 2 to 4 hours. This is a class where I can get a real workout if I can and choose to, or can take it easy the whole time while still at least being out of the house and moving my body, which I have found to be very important.

If you really tune in to your body and learn to listen to it and what it is telling you (another useful skill that having Fibro has taught me), you will know what you can do and what you cannot. Experiment. You will, if you are like me and determined to be active in whatever way you can, find your own groove. :)
Thanks

I am not actually all that active . Last year i decided i wanted to loose weight . Lost about 15 kg.Then got hit with fibromyalgia. Its more just as im starting to be healthy , now i cant. still trying to loose weight so not being able to exercise is frustrating.
 

sunkacola

Senior member
Joined
Dec 2, 2016
Messages
453
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Just do whatever you can each day, but do something that moves your body. A walk, anything. You have to keep moving or it will only get worse.
 

Hope6_19

New member
Joined
Mar 19, 2020
Messages
2
Reason
DX CFS
Diagnosis
02/2020
Country
AU
Hi Wilkesjosiah,
Same here. When I go for a jog, I'm okay for about 30 seconds until it feels like "I hit a wall". My exercise tolerance also feels like it is getting worse.
I also have another puzzling symptom, that is extreme abdominal pain after I run. Still no answers yet from my doctors.
I read some of your blog "The Mephibosheth Project" - it's a good read. I'm also a theological student at the moment, but I can only manage 1 subject at a time. I'm in my final year.
Hope you get some answers with this decline in exercise,
Hope
 

Charz

New member
Joined
Dec 21, 2019
Messages
1
Reason
DX FIBRO
Diagnosis
03/1980
Country
US
Yes, I suffer from post exertion malaise. I find a heart monitor helps so I know when I am pushing too hard since how I feel changes everyday. And I go for low range. I get hit like 3 days later so I never know when I am over doing it. Water aerobics, walking and tai chi are the best now. Dr. Ben Lynch just did a video saying PQQ helps some peoplel with post exertion malaise.
 
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