Hi all,
I'm a (very) new member, having joined today, and am hoping for some advice. I'll give you the context leading up to where I am now, if that's OK.
I began having pains in my wrists, hands and arms in January 2020. My GP thought it was Repetitive Strain Injury (RSI) and I was told to rest my arms for two weeks, as my admin job seemed only to be aggravating my pains. I was also getting very intense headaches, again I attributed this to the poor lighting in my office and overuse of computers.
Only one week into my arm rest period, I started to get very similar pains in my legs. Then my back. Then my abdomen. My neck. My feet. It was everywhere very suddenly. My doctor proceeded to try me on three different types of medication, with varying doses - none of which helped with my pains and all gave me nasty side effects. I was referred to an osteopath for acupuncture which I had two sessions of before Covid-19 stopped all clinics, I'm a little bit thankful as I found the acupuncture became more painful each time I had it as my symptoms worsened...
I was diagnosed with fibro in April (just over a month ago). So, please bear with me. I am very new to all this. At the point of my diagnosis, the UK-wide Covid-19 lockdown had ensued, and I was advised by my GP over the phone that the pain management clinic she would normally refer me to isn't open, and that she can't make any referrals at the moment. She told me to call back in 6-8 weeks.
As the medications my GP tried me on very soon into my pain journey were ineffective, I am not currently on any medication. I'm beginning to think this is a good thing, and that I should strive to find a comfortable life without any medication muddling my brain anymore than it is.
Since January, my symptoms have come to include: constant aching throughout numerous areas of my body, less constant burning pains and shooting/stabbing pains throughout my body, headaches, insane bloating and weight gain (though my adorable husband assures me I'm not gaining any...), 'fibrofog', loss of memory, difficulties with speech, weakness all over and tiredness.
As someone who has always been incredibly active, dynamic and busy, I now find myself barely able to walk. At the age of 26, this is quite the shock to me.
So there's the context. I guess, what I'm trying to find out is.....
What are you all doing to manage your pains and symptoms during lockdown when pain management clinics and other services aren't running?
Do you find yourself relying on services like these when they are running? Are they useful?
Are you managing to cope with your symptoms during lockdown?
Or are you finding this much the same as normal for you? And you have to take each day as it comes?
I'm waffling somewhat, and with my newfound difficulty organising my thoughts and what I'm trying to say, I'm not sure this makes sense.
I hope some of you will be able to decipher this and share your thoughts and any useful tips you have with me.
Thanks x
I'm a (very) new member, having joined today, and am hoping for some advice. I'll give you the context leading up to where I am now, if that's OK.
I began having pains in my wrists, hands and arms in January 2020. My GP thought it was Repetitive Strain Injury (RSI) and I was told to rest my arms for two weeks, as my admin job seemed only to be aggravating my pains. I was also getting very intense headaches, again I attributed this to the poor lighting in my office and overuse of computers.
Only one week into my arm rest period, I started to get very similar pains in my legs. Then my back. Then my abdomen. My neck. My feet. It was everywhere very suddenly. My doctor proceeded to try me on three different types of medication, with varying doses - none of which helped with my pains and all gave me nasty side effects. I was referred to an osteopath for acupuncture which I had two sessions of before Covid-19 stopped all clinics, I'm a little bit thankful as I found the acupuncture became more painful each time I had it as my symptoms worsened...
I was diagnosed with fibro in April (just over a month ago). So, please bear with me. I am very new to all this. At the point of my diagnosis, the UK-wide Covid-19 lockdown had ensued, and I was advised by my GP over the phone that the pain management clinic she would normally refer me to isn't open, and that she can't make any referrals at the moment. She told me to call back in 6-8 weeks.
As the medications my GP tried me on very soon into my pain journey were ineffective, I am not currently on any medication. I'm beginning to think this is a good thing, and that I should strive to find a comfortable life without any medication muddling my brain anymore than it is.
Since January, my symptoms have come to include: constant aching throughout numerous areas of my body, less constant burning pains and shooting/stabbing pains throughout my body, headaches, insane bloating and weight gain (though my adorable husband assures me I'm not gaining any...), 'fibrofog', loss of memory, difficulties with speech, weakness all over and tiredness.
As someone who has always been incredibly active, dynamic and busy, I now find myself barely able to walk. At the age of 26, this is quite the shock to me.
So there's the context. I guess, what I'm trying to find out is.....
What are you all doing to manage your pains and symptoms during lockdown when pain management clinics and other services aren't running?
Do you find yourself relying on services like these when they are running? Are they useful?
Are you managing to cope with your symptoms during lockdown?
Or are you finding this much the same as normal for you? And you have to take each day as it comes?
I'm waffling somewhat, and with my newfound difficulty organising my thoughts and what I'm trying to say, I'm not sure this makes sense.
I hope some of you will be able to decipher this and share your thoughts and any useful tips you have with me.
Thanks x