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Julia53

New member
Joined
Jul 30, 2016
Messages
2
Reason
DX FIBRO
Diagnosis
05/2016
Country
UK
State
Wiltshire
Hi...I am new to all of this, having only had a confirmed diagnosis of Fibromyalgia a few weeks ago. I don't know anyone else with the condition, and I feel a little bit insecure about it all. I also suffer from bi polar disorder...I am worried that people will feel that my pain, burning skin and memory loss are all in my mind! Please can anyone reassure me that Fibromyalgia is REAL!:sad: Thanks, Julia
 

DK_engineer

Very helpful member
Joined
Jun 20, 2015
Messages
579
Reason
DX FIBRO
Diagnosis
05/2015
Country
US
State
OR
Hi Julia53 and welcome

Fibromyalgia is absolutely real. Researchers currently understand it as a dysfunction of the central nervous system. Normally your spinal column and lower brain filter out pain signals that aren't important, like when you stub your toe. It hurts really bad at first, then the pain fades away. That happens because of a biochemical mechanism that turns the pain off (or at least turns down the volume). In fibromyalgia that mechanism is broken and the spinal column and lower brain wind up amplifying pain signals. Sometimes normal sensory signals get changed into pain signals too.

We don't have a good way to directly measure how that mechanism works, so there isn't an irrefutable test. But that's true for a lot of conditions, including lupus and ms, which are notoriously difficult to diagnose. Unfortunately there is a lot of prejudice against fibromyalgia for whatever reason.

There is new research coming out every year. Learn as much as you can about fibromyalgia. Find the things that help you (we are all a little different in what works for us). Ask lots of questions - I learned a lot on this forum.
 
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