Newly DX - Fibromyalgia and Allodynia

HappyGirl

New member
Joined
Oct 14, 2020
Messages
7
Reason
DX FIBRO
Diagnosis
09/2020
Country
CA
State
ON
Hi everybody...new member here!

I was recently DX with Fibromyalgia and Allodynia after over a year of pain. It started with my skin hurting if I pulled my duvet covers across them at night. Then came the shoulder pain, arms and neck. That has been the most difficult. Now it's my hip area and front of my legs.
For years, I've been ultra-sensitive to loud noises and bright lights. Tired for as long as I can remember. My memory has turned to mush, and if I don't write things down, I completely forget.
Managing work and getting quality sleep has been difficult.
Thanks to the support of a wonderful doctor, I have started the process of trying to find the right medication therapy to help reduce the pain.
Started with Gabapentin. Added Naltrexone (in small amounts has shown to be effective in managing Fibro pain). I was still having pain and so we added Cymbalta. Within 3 days I noticed improvements, and was feeling quite encouraged. 2 weeks later, I've started another flare-up.
My doctor said he isn't able to make the pain disappear, but the hope is that it can be better managed.
I am interested to hear from other people on a similar path...and what they have found most helpful.
P.S. I was also told I might have TMJ. Need to see specialist for that now too!
 

Affinity

Distinguished member
Joined
Sep 9, 2020
Messages
122
Reason
DX FIBRO
Diagnosis
05/2014
Country
US
State
TX
Welcome! I hope you figure out with your doctor how to best manage your symptoms. Sometimes it feels overwhelming but my approach is to get my sleep in order, improve my exercise, and also deal with other issues as they arise, like right now I am dealing with TMJ and seeing a specialist to get that sorted out (hopefully) while also seeing a PT to help improve my ability to exercise.
 

HappyGirl

New member
Joined
Oct 14, 2020
Messages
7
Reason
DX FIBRO
Diagnosis
09/2020
Country
CA
State
ON
Welcome! I hope you figure out with your doctor how to best manage your symptoms. Sometimes it feels overwhelming but my approach is to get my sleep in order, improve my exercise, and also deal with other issues as they arise, like right now I am dealing with TMJ and seeing a specialist to get that sorted out (hopefully) while also seeing a PT to help improve my ability to exercise.
Thank you! I am interested to hear you're making out with the TMJ and what recommendations you have received. I done know alot about it yet, or if I do in fact have it. I haven't been to the specialist yet but that will be next. Thank you for the tips!
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
826
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Here is what I have found to be the most helpful:
 
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