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SamA29

New member
Joined
Oct 12, 2016
Messages
1
Reason
Caregiver
Diagnosis
06/1997
Country
US
State
NH
Hi, name is Sam, my wife Lore (Lori with an E)has had fibro since the mid 1990's. It has kind of been in remission so to speak for the past 12 yrs or so. Occasional flareups but manageable.
Lore and I have been together for 9 yrs.

In May she had gall bladder surgery that had complications(massive stone, gall bladder partially fused to liver, surgeons conferencing in specialists during the operation to figure out what to do). Since then her fibro has returned with a vengeance, she had to quit her job due to the pain.

For the past week or so she has had extremely painful skin pain across her back. She went to her doc yesterday, ended up having to see the nurse practitioner who sent her to the ER because Lore's pulse was high. NP also had an attitude Lore said. ER ran bunch of tests, found nothing, then did nothing about her pain.

Back in the 90's Lore had a female doc who had fibro and was very helpful. Sadly now her doc doesn't seem to know or do much with fibro. She had mentioned Lyrica to Lore but then said that it's expensive (we have insurance).

So are there any SE NH/NE MA docs/ specialists anyone here could suggest we try? We're not that far from the Greater Boston area so maybe we'd be better off looking in that medical community?

Thanks in advance for any help.

Sam
 

Forgetmenot

Legendary member
Joined
Oct 6, 2014
Messages
1,549
Reason
DX FIBRO
Diagnosis
70/2010
Country
UK
State
Hertfordshire
Hi Sam hi lore with an E hehe
I suffer from sore skin a lot.now it might sound simple but,moisturiser it really helps.
As I don't live in the states I can offer a good dr.but my advice is keep looking keep looking and keep looking.
Sadly if u read a lot of our posts a lot of ppl really have problems finding a good dr.
Do stick around and ask lore to have a good read here. We like to help each other if we can.hugs x
 

DK_engineer

Very helpful member
Joined
Jun 20, 2015
Messages
579
Reason
DX FIBRO
Diagnosis
05/2015
Country
US
State
OR
Hi and welcome

I sometimes feel like parts of my skin are burning - like when you touch a hot pan, and your skin just burns for a while afterward.

When my skin is like that, having a fan blow across it is soothing. Cold packs also help. I also need to avoid strong fragrances, like rosemary.

Hope this helps!
 
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