no aches or pain for past six weeks

JohnnyXS

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My partner has been suffering from chronic daily pain and periodic flareups which, like most sufferers is extremely debilitating . We have literally tried everything without any success since her diagnosis in 2012.

We cannot be certain what brought about 100% complete absence of pain but I have detailed the 3x final changes we made 10 weeks ago and leave it up to you to decide what you think could have been the key factor/s.

Here is K's story.

Six weeks ago all the pain and aches in my partners legs, back and neck suddenly stopped completely ....overnight ! Since that day she has not has one single ache or pain,.... not even for a few minutes.

At first she assumed that it was just a lull before the next flare up but as days turned into weeks we both realised that something very significant had happened and it soon became pretty clear what must have been the cause.

Back in January this year my partner ordered some high strength Vitamin C 1000mg some Acidophlus Extra 10 live bacteria and some high strength Vitamin B-100 complex all from Natures Best. As there have been no other changes in her diet, Meds or supplements we can only assume that it must have been due to one or a combination of these three . We suspect that Vitamin C may be the crucial factor .
HISTORY

My partner was diagnosed with Fibro in 2012 and has been in constant pain ever since .

Many times the pain from flare ups has been so bad that she has had to resort to using a Tenns machine, CBD oil , strapping, hot Magnesium baths and almost constant NSAIDS with little or no relief. She also tried Acupuncture for 2x years , positive Reinforcement, Reflexology with minimal relief

We have tried everything including an extensive supplement program and a change in nutrition to low carbohydrate high fat and protein with minimal refined foods.

Since 2012 She has been taking the following prescription drugs from her doctor.
  • Fluoxetine
  • Amitriptyline
  • Pregabalin

Together with the following Viamins and Minerals daily for the past two years
  • Vit D3 4000mg
  • Vit K2 90ug
  • Magnesium 375mg
  • Viamin E
  • Vit B6 50mg
  • Vit B12 1000ug

None of these have apparently had any effect until She added Vitamin C 1000mg , Acidophlus Extra 10 live bacteria and high strength Vitamin B-100 complex 10 weeks ago. Now k has been able to go back to horse riding after a 3x year break

We would be very interested to hear from other sufferers that are supplementing with high strength pure Vitamin C.
 
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sjbrown

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I upped my Vitamin C to 1000 mgs back in February. So far I am not noticing a big change, but I take no prescribed meds at this time either.
 

JohnnyXS

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I have also just started 1000mg this week luckily I found an old supply I had forgotten I had because the online supply has dried up completely. We are only guessing that it was the Vit C it could be one of the other factors
 

sjbrown

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I have also just started 1000mg this week luckily I found an old supply I had forgotten I had because the online supply has dried up completely. We are only guessing that it was the Vit C it could be one of the other factors
The only supplements I take are the Vitamin C, a women's multi vitamin, calcium plus d and 250 mgs of magnesium. I was put on riboflavin but stopped taking it and sorry for the TMI but it freaked me out because it turned my pee bright yellow!! And I read that if that happen it is dispelling what the body doesnt need.
 

JohnnyXS

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7x weeks now and not one single instance of pain or aching anywhere ! its a flippin miracle after years of constant aching and awful pain especially the flare ups which would leave her in agony day and night.

I wish I knew precisely what has achieved this . it certainly wasn't any of her meds which were completely useless a waste of time and often made her feel like a zombie .
I hope that you all find some relief . I believe the answer to these chronic conditions is to look to the cause of the conditions not the treatment and make changes to lifestyle and nutrition to reverse the condition rather than to take sticking plaster medication.
 

Ann Reid

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One of the worst WORST things about this crazy condition is that it DOES STOP and if/when it starts again, you can’t figure out how you stopped it before.

I think from my own experience, there is a strong relationship between stress/lack of sleep and winding up in a flare, but that said, I also made a huge major life overhaul between my two worst, long term flares.

I lost 85 pounds while on a highly nutritious eating regime, and was able to regulate my own sleep schedule naturally, and I was literally without a flare for a span of 3 years.

Then, life changed again, and my sleep schedule became totally disrupted for reasons (good ones) totally beyond my control. And I REALLY slipped into a doozy of a flare.

Now, in a high risk group for Covid19, I’m totally housebound, BUT my sleep hours are once again, regulated by my own ability to stay wake at night, and wake up when I want to. And knock-on-wood, no fibro pain.

I DO take supplements, and I do take a small dose of stimulant medication, prescribed by my internist. I am restricted by my inability to leave my house to eating plain, very low salt, no white sugar, moderate protein and healthy fat foods, and physically I feel much better. I JUST WISH I COULD PIN DOWN EXACTLY WHY, LOL.

BEST thoughts to those of you who are weathering Corona comfortably and safely.
 

JohnnyXS

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thats a fascinating record Ann thank you for posting its actually reminded me to think about the role of stress in FM and other chronic conditions

My partner suffers greatly with stress and for the past year has been staying with her Demented Mother 4 days on, 4x days off full 24 hour caring.to say it has been stressful would be an understatement. Up all night and dealing with Dementia left her with only a few hours sleep a night . on top of that she also suffers badly with sinus congestion with mucus flowing down her throat which keeps her awake most nights.

About 6x weeks ago my Partner and her Sister reluctantly decided to put Mum into full time care home as they felt she would receive better care than they could provide.

I could give myself a slap around the face because of my dimness .... it was shortly after this K came home and her life went back to semi-normality. Clearly stress has to have had a major role in this sudden absence of pain.

K is the strong silent type who bottles everything up and rarely discusses her problems . If you think that some men can be the 'strong silent type' K my partner is doubly so. After 25 years I have had to learn to pick up the outward signs in her behavior and mood .

Let me give an example how badly she suffers with stress. She once phoned me from a car park in a panic because her car was parked on a hill and she couldn't get it into reverse. When I arrived I found she was trying to force the gear stick into the wrong position !?? She drove that car hundreds of miles a week but stress that morning had made her panic.

Another time she She had driven 65 miles to collect her sick Son then 65 miles back home then 30 miles to a specialist clinic then finally a further 130 mile round trip to return her Son home . The stress of keeping that appointment caused her to drive my car for part of the journey with the hand brake fully on which burnt out the clutch and left her stranded !

So with all that in mind, I think that you have hit the nail on the head Ann, with reduction of stress being the major factor not vitamins .

Congratulations on the weight loss and improved lifestyle and nutrition too.
 
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eascusa

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So I'm just curious. When you say you haven't had pain in 6 weeks are you talking about like the whole fibro experience or just pain. Do you have other symptoms that drive you crazy or are difficult to deal with but aren't necessarily pain? Pain is only 40% I would say of my fibro experience. I have so many other problems that fibro throws at me. So, that's what I was wondering. If you felt completely "normal" in that time or were just relieved you didn't at least have the pain. People talk about flares too. But for me, I don't get flares. I'm like this every day for the past 19 years that I have had it. Actually longer because when I was a kid I had symptoms too. I may have different symptoms from day to day and different degrees of pain or types of pain but always there. I feel like I am the only one like this and therefore maybe I don't have fibro at all. Maybe its something else. Anybody? I might make this a new post question.
 

sjbrown

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So I'm just curious. When you say you haven't had pain in 6 weeks are you talking about like the whole fibro experience or just pain. Do you have other symptoms that drive you crazy or are difficult to deal with but aren't necessarily pain? Pain is only 40% I would say of my fibro experience. I have so many other problems that fibro throws at me. So, that's what I was wondering. If you felt completely "normal" in that time or were just relieved you didn't at least have the pain. People talk about flares too. But for me, I don't get flares. I'm like this every day for the past 19 years that I have had it. Actually longer because when I was a kid I had symptoms too. I may have different symptoms from day to day and different degrees of pain or types of pain but always there. I feel like I am the only one like this and therefore maybe I don't have fibro at all. Maybe its something else. Anybody? I might make this a new post question.
I'd be curious about what other symptoms you have. For me it hasn't been just pain either.
 
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Smileygirl

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Hello, I've been away from this forum for a while and I'm just catching up. This discussion really caught my eye! I was diagnosed in 2005 and have had fibro pain ever since. I tried a few prescribed meds and now just take Cymbalta (Lyrica) and CBD oil when needed. I have given up all the other meds because they made me feel bad and created problems for my stomach and liver. I do think sleep is a big issue for people with fibro. I tend to stop breathing and sometimes hold my breath while sleeping. I know because I wake up start;ed and needing to breathe. I should probably have testing done for sleep apnea. Wouldn't it be something if all of this is because I am not getting good quality sleep? I do take melatonin 10 mg every night to fall asleep. I notice that if I am overtired, I have a hard time getting to sleep. If I overwork my muscles during the day then I really suffer at night. I was raking leaves and collecting branches the other day and my legs really hurt that night. I knew right away that I had done too much. I also am taking vitamins every day such as Vit C 1000 mg, Vit B12 2400 mcg, but that's it. I am very careful about eating a healthy diet with little sugar and nothing processed. I cook everything from scratch unless I'm too tired. I finally retired which helped a lot and some days I feel so much better. The thing is that it doesn't last. I have one good day out of the blue. The CBD oil has helped a lot and I am now getting used to the pace of life, but need to watch because when I feel good I do more physical work and pay later. If I have a bad day with pain then I take it easy. I developed fibromyalgia right after I lost my sister and my mother to cancer. So I think the travelling to see them for long distances and the worry, stress has brought this on. I really believe it was the trauma of that plus the stresses of work and family. I am a type A personality and like everything organized and clean and tidy. I think that is what led me to this situation. Going to a warm therapy pool 2 x a week has been very good for my pain and emotional well-being. Some days I don't feel like going but I know how much better I will be for getting in the pool and doing the exercises. I feel like I've had a spa treatment!

If you haven't tried CBD oil I would suggest you do. I don't have any fibro fog.... I can think clearly and my memory is back to normal again. I take the lowest dose which is 1:20 mg/ml , so there is only a trace of THC. I don't ever feel high and I am certainly much much better at everything. I can now do things throughout the day.

The pandemic we are dealing with has forced all of us to stay home in isolation, which has actually been a very good thing. We have time to relax, listen to music, stretch, sleep when tired, and prepare healthy meals. We don't have the same social obligations we did before COVID-19. I hope you all stay healthy and take time to rest. I used to feel guilty for taking a nap but I don't anymore. Best wishes everyone!
 
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maxp

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Thanks so much for the share..have not come across this mix previously interesting.

Has anyone had any success with Nervagesic?
 
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JohnnyXS

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Thank you for the feedback most welcome.

My partner has still had absolutely no pain whatsoever and it is now 10 weeks pain free! After years of constant agony and daily flareups it is nothing short of a miracle.

If at all possible it is always best to try and find the cause of a chronic illness and remove it rather than to treat chronic illness with medicine or quackery . Medication is the cornerstone of the medical World, driven by the greed of the Pharmaceutical Companies who are only interested in their profits and dividends not our health.

There is frequently little thought given by Doctors to diagnosing a condition and making changes to patients lifestyle, nutrition and environment to reverse a chronic condition. Anyone truly interested in their Health and serious about making a real lasting change need to do a little personal research and take responsibility for their own health rather than leaving it in the hands of others.

Just following a keto diet for 2 weeks would bring about profound changes in most peoples health and well being both mentally and physically. Cut the sugar and carbohydrates in your diet and see what happens. You will be staggered at the difference it makes to your health and how you feel in as little as a few days.
 

Smileygirl

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@maxp I have not tried Nervagesic nor have I heard of it here in Canada. Is this over the counter at the pharmacy? At one time my Dr. thought I was having nerve pain but I didn't end up taking anything for it. Only the Citalopram which is a SSRI.
 

JohnnyXS

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@maxp I have not tried Nervagesic nor have I heard of it here in Canada. Is this over the counter at the pharmacy? At one time my Dr. thought I was having nerve pain but I didn't end up taking anything for it. Only the Citalopram which is a SSRI.

Nervagesic is also called by the brand names Pregabalin Lyrica, Alzain, Lecaent and Rewisca is a prescription drug.
Its often prescribed for Fibro because Doctors are clueless what causes Fibro and how to treat it and assume that Fibro is a Neuropathic condition.

My partner took it for several years and she said it made her feel like a zombie and had absolutely no effect whatsoever.
Here are the common side effects from the NHS website.

Common side effects

These common side effects may happen in more than 1 in 100 people. They are usually mild and go away by themselves. Keep taking the medicine but tell your doctor if they bother you or don't go away:
  • headaches
  • feeling sleepy, tired or dizzy
  • diarrhoea
  • mood changes
  • feeling sick
  • swollen hands, arms, legs and feet
  • blurred vision
  • for men, difficulties with getting an erection
  • weight gain - because pregabalin can make you feel hungry
  • memory problems
If you have diabetes, pregabalin can upset your blood sugar control. Monitor your blood sugar more often for the first few weeks of treatment with pregabalin and adjust your diabetes treatment if you need to. Talk to your doctor or diabetes nurse if you want more advice on what to do.

Serious side effects

Very few people taking pregabalin have serious problems. Call a doctor straight away if you get:
  • thoughts of harming or killing yourself - a small number of people taking pregabalin have had suicidal thoughts that can happen after only a week of treatment
  • difficulties breathing
  • severe dizziness or you pass out
  • hallucinations (seeing or hearing things that aren't real)
  • problems going to the toilet, including blood in your pee, needing to pee more often, or constipation.
 

sunkacola

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Just following a keto diet for 2 weeks would bring about profound changes in most peoples health and well being both mentally and physically. Cut the sugar and carbohydrates in your diet and see what happens. You will be staggered at the difference it makes to your health and how you feel in as little as a few days.
Hi Johnny, I am really glad that your partner has experienced this amazing turn-around.

But I just have to note here to you and everyone else that cutting carbohydrates out of the diet is actually a very unhealthy thing to do. Our bodies need carbohydrates in order to be healthy and have energy. Carbohydrates are what provide our body with energy, enable the metabolism of fat, and make unnecessary for the body to burn protein and muscle mass for energy. They are also important for brain function. Cutting all carbohydrates can actually be dangerous.

Now, what we need is complex carbohydrates, such as is found in grains, fruit, and vegetables. We do not need simple carbohydrates such as are found in white-flour baked goods, sweets, and so on. Cookies, pastry, donuts and so on should be cut from everyone's diet, and so should refined sugar. Or, if not cut completely then only eaten very sparingly.

It is a good idea to make sure one knows the difference between these and what is healthy to do and what is not.

The keto diet you refer to is unhealthy, and can cause low blood pressure, kidney stones, constipation, nutritional deficiencies and an increased risk of heart disease. It is not a natural state for the body to have, and therefore puts stress on the system.

I completely agree with taking your health into your own hands, being responsible for it and not expecting the doctors to have all the answers, because they do not. But please do more research into the keto diet and carbohydrates.
 
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