No pressure points

Fibro56

New member
Joined
Sep 9, 2020
Messages
8
Reason
DX FIBRO
Diagnosis
02/2018
Country
US
State
NH
I have no pressure points and they say I have fibromyalgia. Does anyone else not have pain when touched at the pressure points?
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
734
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
The pressure point test is not definitive. I have had it several times. A few times I had no reaction at all. A couple times I almost screamed with pain. And a few times there was pain but not excruciating. This seems to be true for many people with FM.
 

JayCS

Active member
Joined
Sep 5, 2020
Messages
89
Reason
DX FIBRO
Diagnosis
02/2020
Country
GE
Exactly the same as sunkacola here.
 

RLG

Active member
Joined
Aug 2, 2020
Messages
65
Reason
DX FIBRO
Diagnosis
07/2020
Country
US
State
MI
I was not DX with pressure point exam. I wondered about that, too. I get the impression it isn't used currently as much as it was in the past?
I DO have pain on many touch points, though, but they seem to change location at their will:confused: I was DX 1st by internist with oral history and some quick phys. exam for pain, lungs, edema, then bloodwork to rule out things like lupus and RA. 2cd DX a few weeks later came from rheumatologist. Much more thorough phys. exam over every joint and digit and pressure point. He agreed fibro and added PsA and few other choice DX to the mix.
It's frustrating. At first I was relieved more than anything to have a name for what was happening to me. Then affirmed to have my own suspicions finally confirmed by rheumy about the rest of it. However, I now feel like---and please don't anyone take this as advice!!--that I should maybe quit asking questions I don't like the answers to. What I mean is that I was given a hard, cold look at an issue I don't want to face--lung damage. And even that doesn't solidify it for me--raised yet another question about whether or not my lung issue is contributing to my pain--especially in my thighs/bones. UGH. Cherry on top--I am now broke. My healthcare (I am in the USA) is laughable--joke's on me. I have already paid out of pocket for a chest CT, my child's epipen, and a few other costly health needs this year instead of running it through my insurance because they would actually charge me MORE. Out of $$, hard to work with pain, breathing problem's now, too. Meds I've been offered are dangerous--cymbalta and otezla, not to mention not affordable--out of reach entirely.
Yeah, man. Great stuff. This is why I read chick lit and drink wine LOL?
 

Affinity

Active member
Joined
Sep 9, 2020
Messages
72
Reason
DX FIBRO
Diagnosis
05/2014
Country
US
State
TX
I DO have the pressure points but have never been tested using them. I think they consider using that test outdated and have other ways of determining whether or not you might fall into the fibro category.
 

JayCS

Active member
Joined
Sep 5, 2020
Messages
89
Reason
DX FIBRO
Diagnosis
02/2020
Country
GE
I DO have the pressure points but have never been tested using them. I think they consider using that test outdated and have other ways of determining whether or not you might fall into the fibro category.
Dead right. In both the new books I've read, 2017 and 2019, they say that too, and all my rheum.-docs too, web too.
 

JayCS

Active member
Joined
Sep 5, 2020
Messages
89
Reason
DX FIBRO
Diagnosis
02/2020
Country
GE
What I mean is that I was given a hard, cold look at an issue I don't want to face--lung damage. And even that doesn't solidify it for me--raised yet another question about whether or not my lung issue is contributing to my pain--especially in my thighs/bones. UGH.
When my primary discovered high blood pressure (in my case probably caused by the pain) and in the end it turned out I have severe genetic dyslipidemia and atherosclerosis I hated that, because it made me feel older. Sad for a week. Need to take 5 meds for that now, but blood pressure seems to be normalising, praps cuz of more relaxation and autogenic training. All 3 men on my mother's side had heart attacks, so I'm now glad we found that in time. I'm still not sure of lungs either, being short of breath, panting when I overdo energy-stints. But now I'm doing Wim Hof's breathing exercise that's getting a bit better. That'd be the only specialist left I haven't been to.
I feel so privileged living in the best place on earth for health care, incl. CoV. Sorry it's such a financial issue for you!
 
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