Nothing is comfortable

[m3ollyyx]

I feel like so many of us reading this will understand what this feels like…

I’m sooooo fed up of not being able to exist in anything where I’m comfy, especially in a bad flare up.

I go to lay down and my pins and needles are non stop in my arms and legs. My back is in absolute bits. Depending on which side I lay on it sets off my dizziness/vertigo. So I go to sit up, my neck is struggling to hold my head up because my neck feels too heavy and is so tender. I try to walk around and my ankle is in pain so walking isn’t even an option, my lower back is split in half and I can’t stand up.

I go to distract myself on my phone and then I’m struggling with typing because my fingers are numb and my arms can barely hold my phone up. Everything feels like it’s on fire. I hate it so much.

It’s like, what can I even do with myself when all positions/situations are too much? It’s so frustrating, I find it incredibly hard to deal with because what can I even do about it? Nothing. I just have to be in the pain with no relief from anything. I’m finding it harder and harder to cope with that.

Hopefully better days and less flares are not too far away! *crosses fingers*

Sending love to you reading this right now <3

 

[sunkacola]

Greetings, @m3ollyyx and welcome to the forum. I apologize for how long it took your first post to be seen and replied to...I was away from the forum for a while due to illness and did not see your post.

Many people here cn relate to what you are experiencing, and can offer you advice and support. We are all here to help one another, and I hope your experience here is a good one. I would write more, but do not have the energy now, and hope that others will chime in to welcome you.

 

[m3ollyyx]

Hey! Lovely to meet you Thank you for replying back to my post too! I’ve been having a browse through everything. Awful to see how many people are suffering with Fibro but also feel less alone in the struggle I guess.
Sending you good energy & light, hope you feel more yourself soon!

 

[Deleted member 42191]

I'm new here too. Just wanted to send a hug as believe me I'm on the same page. I went out shopping on Saturday and flared. I live in a rural area with a two hourly minibus and didn't know what to do. I went into a coffee shop which as it was after lunch was quiet. Sat with a cold drink for an hour the limped home in pain on the bus. Still flaring. Pins and needles won't stop and can't focus on anything. So I totally get it. Sending love xxx

 

[m3ollyyx]

I'm new here too. Just wanted to send a hug as believe me I'm on the same page. I went out shopping on Saturday and flared. I live in a rural area with a two hourly minibus and didn't know what to do. I went into a coffee shop which as it was after lunch was quiet. Sat with a cold drink for an hour the limped home in pain on the bus. Still flaring. Pins and needles won't stop and can't focus on anything. So I totally get it. Sending love xxx

I’m sorry to hear you’re struggling too, it’s awful The pins and needles are so hard to cope with aswell. I hope your flare doesn’t last too long and your energy/less pain returns back to you soon, I completely understand how difficult it all is. Sending love right back at you lovely, take care xxx

 

[Badger]

It's difficult for others to understand what we have to live with. The constant discomfort is stressful and exhausting to live with. It can feel like a vicious cycle, moving from one uncomfortable position to the next while trying to distract ourselves. @m3ollyyx @Dancer123 wishing you well and hoping for some better rest.

 

[Anabrock]

I get similar symptoms in my upper body, especially both arms, hands and shoulders. As well as fibro, I have osteoarthritis in both shoulders, in a weird position. It's called rotator cuff arthropathy, and is the hole through which the main tendons for my arms come out. But that doesn't explain most of my symptoms, which I'm told are fibromyalgia. I get painful tingling, numbness and stiffness.

My hands are very weak and especially in the morning, I can't grip properly. I go through phases of not being able to use a ceramic coffee mug because it's too heavy, so I use a coffee cup with heat proof grips instead of handles.

However, my symptoms are not constant so I hope you've had medical advice with your, much more severe, discomfort. It sounds utterly miserable.

 

[SBee]

@Anabrock I have osteoarthritis and inflammatory arthritis which affect my hands and wrist very badly. I have also banned myself from using a heavy glass or heavy crockery - too much pain on the joints and too many broken items...

I think there may be hand strengthening and mobility exercises on either Versus Arthritis or NRAS site that may help. NRAS ( although for rheumatoid arthritis) also has tips for easy adaptations on household items. May help to protect the joints.

Or indeed ask for a referral to physio via your GP if it is too troublesome.

 

[m3ollyyx]

It's difficult for others to understand what we have to live with. The constant discomfort is stressful and exhausting to live with. It can feel like a vicious cycle, moving from one uncomfortable position to the next while trying to distract ourselves. @m3ollyyx @Dancer123 wishing you well and hoping for some better rest.

It’s really difficult, I wish we all didn’t have to be in so much pain. Thank you so much, right back at you, you take care xx

 

[m3ollyyx]

I get similar symptoms in my upper body, especially both arms, hands and shoulders. As well as fibro, I have osteoarthritis in both shoulders, in a weird position. It's called rotator cuff arthropathy, and is the hole through which the main tendons for my arms come out. But that doesn't explain most of my symptoms, which I'm told are fibromyalgia. I get painful tingling, numbness and stiffness.

My hands are very weak and especially in the morning, I can't grip properly. I go through phases of not being able to use a ceramic coffee mug because it's too heavy, so I use a coffee cup with heat proof grips instead of handles.

However, my symptoms are not constant so I hope you've had medical advice with your, much more severe, discomfort. It sounds utterly miserable.

That sounds agonising, I’m so sorry you’re going through so much pain I’ve been diagnosed with fibro and joint hypermobility but I’m pretty certain there are some other things going on, who knows when that will be picked up/diagnosed, it’s a long one!

Sending you love, you take care xx