Pain meds for fibro

CSS

New member
Joined
Apr 30, 2020
Messages
3
Reason
DX FIBRO
Diagnosis
10/2009
Country
US
State
TX
Anyone else use pain meds as in opioids for their Fibromyalgia? It's the only thing that has given me some relief but new pain Dr is suggesting that either it doesn't exist or I need a therapist and I should swim...which I already do. I'm feeling down now about this recent visit and not sure what to do or who to turn to.
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
515
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Personally, I would strongly advise against opiates. They have become harder and harder to get and you may not be able to get them at all if your doctor says your pain doesn't exist. Opiates are great at first, but the problem is your body gets used to it and it doesn't work as well any more, so you have to take more, and this goes on until you are addicted.

Try other things, and remember also that your mental attitude, exercise, and diet are very influential on Fibro.
 

CSS

New member
Joined
Apr 30, 2020
Messages
3
Reason
DX FIBRO
Diagnosis
10/2009
Country
US
State
TX
You are probably exactly right. I guess I am so used to feeling better using them. I definitely realize the many reasons for not using them but I've lost some confidence in mustering through 'on my own'! If you have any other advice, please send my way and thank you so much for responding to my conversation. CSS
 

KimT

New member
Joined
Mar 28, 2016
Messages
9
Reason
DX FIBRO
Diagnosis
08/2016
Country
US
State
FL
I have ALS and fibromyalgia. I'm in a lot of pain but can still walk. Muscle relaxants help me a great deal. I take Tylenol and do have a prescription for Oxy but only use it for breakthrough pain. I haven't used it in a month.

Some of the things I do think help are Charlotte's Web CBD oil, medical cannabis, lots of magnesium, both oral and topical. and warm showers before bed. I also have a lift chair that has a heating pad on it and use a heating pad on my lower back each night.
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
515
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
You are probably exactly right. I guess I am so used to feeling better using them. I definitely realize the many reasons for not using them but I've lost some confidence in mustering through 'on my own'! If you have any other advice, please send my way and thank you so much for responding to my conversation. CSS
You can do it. You can do this without using highly addictive medications that are much worse for you in the long run that you can even imagine.

You need to put your mind to it, though. That's really hard to do. I know, believe me. but if you come here you will find a lot of support and kindness from other people who are going through the same thing.

Here's what I know helps me:
(Not all of these work all the time and some work only for certain kinds of pain and not for others. You gotta experiment because what works for you will be different)
--medical cannabis (I know this is not available in TX, but I am mentioning it because it's made a huge difference for me)
--heating pad
--relaxation techniques
--the combination of a muscle relaxant called Baclofen with Advil
--The use of a TENS machine
--Getting enough sleep (for me this means 9 hours)
--Pacing myself through the day - giving myself permission to sit down and rest after doing one thing, then get up and do another
--Doing my very best to maintain a positive attitude.
For me a lot of this is remembering every single day how rich and fortunate and privileged I and most of us in the country are because we have enough food to eat and a place to live, and clearly everyone on this forum has internet access. that is more than 95% of the rest of the population of the world has. Hundreds of millions of people will never even have a glass of clean water to drink in their lives. And you better believe that many of them suffer greatly from health problems for which they have no medical help at all. Remembering how lucky I am doesn't make the pain go away, but it reminds me I am grateful to be who and where I am, and it puts it into perspective which helps.
--Getting enough exercise. this is crucial!
--eating a healthy diet with fruits, vegetables, protein in good proportions. Whether you are vegetarian or not is an individual thing, just eat healthy and cut way down on or remove sugar entirely.
---avoiding alcohol
---avoiding stress as much as possible. I cut people from my life who caused me undue stress, and have never looked back!

Most importantly, don't allow yourself to go into thoughts like "I'm so over this". Because you aren't over it. Unfortunately, you don't get to be. You will wake up tomorrow and still have pain. So, I have found that to the degree that I can manage not fight it, get angry about it, get frustrated, or let it ruin my day, to the degree than I can simply accept what is, that is the degree to which I can make myself feel better even when in pain.

Try to take responsibility for this for yourself instead of depending on heavy drugs.
I was where you are. The pain I felt I thought was unbearable and I took opiate medication to deal with it and used that as my way to get through the day. I learned that is not a good way to do things, and I decided to do it differently. The pain actually is bearable, and I can handle it in healthy ways. Now, three years later, I have far less overall pain and I manage what I have without the terrible emotional toll that it was taking on me when I was always fighting it.
 

CSS

New member
Joined
Apr 30, 2020
Messages
3
Reason
DX FIBRO
Diagnosis
10/2009
Country
US
State
TX
You can do it. You can do this without using highly addictive medications that are much worse for you in the long run that you can even imagine.

You need to put your mind to it, though. That's really hard to do. I know, believe me. but if you come here you will find a lot of support and kindness from other people who are going through the same thing.

Here's what I know helps me:
(Not all of these work all the time and some work only for certain kinds of pain and not for others. You gotta experiment because what works for you will be different)
--medical cannabis (I know this is not available in TX, but I am mentioning it because it's made a huge difference for me)
--heating pad
--relaxation techniques
--the combination of a muscle relaxant called Baclofen with Advil
--The use of a TENS machine
--Getting enough sleep (for me this means 9 hours)
--Pacing myself through the day - giving myself permission to sit down and rest after doing one thing, then get up and do another
--Doing my very best to maintain a positive attitude.
For me a lot of this is remembering every single day how rich and fortunate and privileged I and most of us in the country are because we have enough food to eat and a place to live, and clearly everyone on this forum has internet access. that is more than 95% of the rest of the population of the world has. Hundreds of millions of people will never even have a glass of clean water to drink in their lives. And you better believe that many of them suffer greatly from health problems for which they have no medical help at all. Remembering how lucky I am doesn't make the pain go away, but it reminds me I am grateful to be who and where I am, and it puts it into perspective which helps.
--Getting enough exercise. this is crucial!
--eating a healthy diet with fruits, vegetables, protein in good proportions. Whether you are vegetarian or not is an individual thing, just eat healthy and cut way down on or remove sugar entirely.
---avoiding alcohol
---avoiding stress as much as possible. I cut people from my life who caused me undue stress, and have never looked back!

Most importantly, don't allow yourself to go into thoughts like "I'm so over this". Because you aren't over it. Unfortunately, you don't get to be. You will wake up tomorrow and still have pain. So, I have found that to the degree that I can manage not fight it, get angry about it, get frustrated, or let it ruin my day, to the degree than I can simply accept what is, that is the degree to which I can make myself feel better even when in pain.

Try to take responsibility for this for yourself instead of depending on heavy drugs.
I was where you are. The pain I felt I thought was unbearable and I took opiate medication to deal with it and used that as my way to get through the day. I learned that is not a good way to do things, and I decided to do it differently. The pain actually is bearable, and I can handle it in healthy ways. Now, three years later, I have far less overall pain and I manage what I have without the terrible emotional toll that it was taking on me when I was always fighting it.
thanks so much. You're a wonderful inspiration and I am slowly weaning myself off the opiates. I am very lucky in so many ways and that helps so much. After reading so much about stress being a factor, that has encouraged me to make some additional changes. This forum has been a blessing...why didn't I get on sooner?!
 

sunkacola

Very helpful member
Joined
Dec 2, 2016
Messages
515
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
So glad that I could help in any small way. :)
 
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lindylil

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Joined
Sep 26, 2017
Messages
2
Reason
DX FIBRO
Diagnosis
00/0000
Country
AUS
State
Vic
I’m not where you are. No Amount of self talk eases pain or helps. I just battle on. In agony.
 

FibroKate

New member
Joined
Jun 2, 2020
Messages
5
Reason
DX FIBRO
Diagnosis
05/2019
Country
GR
I do much or less most things that you ve all aforementioned yet I experience some days or nights even worse when I can't do anything else but thinking of the pain.I try so hard but I want only to cry because of the tremendous pain I feel. I don't wan t anyone near me I feel desperate. I think there's nothing wrong with feeling like this even if you re privileged-pain has to do with everyone. On the other hand, it s a good idea to feel grateful for everything positive in your life and opt for positiveness. You need to battle with yourself when this pain overwhelms you. Gratefulness is nice as well as helping others probably less priviledged or just people in need. Take a deep breath and keep trying to be your best self version,a nice human, a kind person. Even when talking to others like via this forum for example and encourage them is helpful and makes you feel less lonely or desperate when all these moments come towards you! Thank you all because it s of high importance to feel that you re not alone!
 
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