Nireno
Active member
- Joined
- Jul 9, 2016
- Messages
- 30
- Reason
- DX FIBRO
- Diagnosis
- 00/2011
- Country
- CA
- State
- Province of the moon
Hello everyone I'm new. I was diagnosed with fibro a few years ago but have been sick for over 10 yrs I'm 37. How bad do your pain get? The second I wake up I start crying and screaming. The meds help a little but I'm terrified that the pain is getting worse and the pain meds won't cover it. It is unbearable suffering and effects my sleep and walking. I use to be so healthy but the pain is tearing me apart and the weakness makes doing anything almost impossible. I'm scared all the time of the pain coming back, my body burns and burns. I sweat even if it's cold out from it, heat just radiates off my body. I can't imagine it was going to get any worse but it has. Most days I think I need a wheelchair but there's no room. Also can barely breath at night which makes sleeping very scary. Is anyone else experiencing this burning pain? It's in my arms hands and down my back. Without meds I can't touch anything even my clothes cause pain and if the temp is just a little off the pain gets worse. The pain/nerve damage has spread to my face now my jaw clicks and crunches...it's scary. I live in Canada we don't have alot of nerve tests to show damage. It's like my body is it's own torture chamber. My anxiety is thru the roof. Has anyone gotten better on a specific treatment? Thanks for reading.