rahulkalra9
Member
- Joined
- Jul 16, 2015
- Messages
- 21
- Reason
- DX FIBRO
- Diagnosis
- 00/0000
- Country
- US
- State
- CA
Hi All,
I have been suffering from :
1) relentless headaches
2) sleep disorders
3) burning eyes
4) fatigues
5) low energy
6) excessive dryness throughout body specially hair
since I was 13, today as I write I am 32 and nearly 20 years later I realize that something is terribly wrong with me, I have been cursing all my life having a self impression that I am :
1) lazy
2) not serious about things like carrier and family
3) not disciplined
4) A guy who doesn't know how to balance life
5) Not sitting with family/ socially poor
etc
First of all I am glad that I have CFS in a way since I have stopped cursing myself and come to the conclusion that it is this disease that really stopped me, I always felt that I was extremely talented weather its sports or studies, as I write I have failed in both but after finding that I am suffering from CFS gives me a strong motivation, cure it and get back to things. The worst thing that happened with me was that I always wanted to play sports that require extreme physical toughness and over the years it has back fired terribly, on the one hand I was a really talented sportsman and on the other I had no clue over these years that I am suffering from a disease like CFS, indeed today I know that what stopped me and not only just that It has also led me quit jobs in the last 8 years many times, I had to switch from sports to academics and would have been a big-2 IT professional but today as I write I am even out of job , but finally there is hope for me, I have also been depressed about not being able to achieve an iota of things I would have achieved in sports and academics and this added a new dimension to my problem. so what happened with me in the last 20 years:
1) from 13-23 : I was a terrific sportsman and used to scored like 80 odd percent without putting much effort in academics and a tremendous computer programmer, by the time I was 16 I had to quit sports after being on the verge of earning an international tour and at the time my academic scores came down to 40-45%, now I realize what made me take the decision to quit sports since physical activity means I would suffer from fatigue even more, even after I quit playing cricket(extremely physical game) I can recall that I was in extreme discomfort but since I am mentally so strong that I have lived with CFS without knowing that I am suffering from this tough disease
2) from 23 -32 : at 23 I remember that I came out of my problems listed above (like there was a 25% improvement as I grew old) in spite of playing cricket I wanted to work on my body fitness and I went on a heavy cardio routine, but I remember it used to back fire so much that I never managed to get going for more than 15 days and soon I would be bed ridden, I again had to quit it many time while I was between 23-30, also I could have been a very strong IT professional but I have lost my jobs 4-5 times between 25-31.
so after all this I have been trying to cure myself very seriously for the last 5 years since I was partially convinced that something is wrong with my head, I have tried to cure myself with the following:
1) Emotionally/psychiatristically, that may be its more of that I want to play cricket and may be I am not happy with the way the things are going, I am not happy with my life and thats why I am not happy which has depressed my brain, I did everything possible again to try to get back to sports but again , it was the CFS that back fired.
2) I have been treating myself with dryness/burning eyes/nerves disorders/ sleep disorders and I would used to feel that I want to achieve too much in life and I end up exhausting myself which has resulted in these problems, I have lived with this impression but soon in the last 3 years this mindset about myself has changed.
Now I am 32 and the great news is that I have a partial success story, for the first time in my life, I am beginning to feel better after 20 years of suffering, and its july 2015 that after trying a lot of medications I have found what CFS is and in my opinion its a combination of things that will help you overcome this serious head related problem.
of all those years, it was only the last 5 years that I was experimenting with a lot of medicines, and my partial success started when I saw my dad taking a multivitamin syrup one day at the start of this year(2015), I tried it and felt really good for the successive 3-4 days, in my case I would be bed ridden mostly, so after trying it for few days I moved to a new syrup which had B12 vitamin along with folic acid and iron, now this syrup(dexorange) would further provide me some relief as compared to the first multivitamin syrup but again it only helped me some percentage of relief , I would be far from okay, so now comes the most important part, I moved to B-complex capsules(based on some self study on the internet).
PS: dont listed to doctors completely, I have gone to some doctors and clearly told them my problems, now I expected them to tell me whats wrong with me, but I never really able to reach the point where I am standing today, its because of the internet that I have discovered my problem.
1) so B-complex capsules have really helped me come out of this problem to a certain extent that I can say a few things about myself:
a) I can go out of home and feeling a bit refershed(I would like to further improve though)
b) I can study well these days and I am able to learn things
c) I can sleep well, although I can say that I need a bit of more improvement, but it has improved considerably
d) I can see that I can start a bit of exercise too - but its still early days - i guess i further need to clear my brain fog to sort out this which is why I am writing this post
so could you please help me:
so B-complex is my first stage(I have been told that the good thing is that there are no side effects of it too)
My next stage is :
1) I have heard a term like brain fog, I guess I need some medcine along with b-complex
2) I need to improve my sleep further, b complex has helped but I again want to take help of some medicine
3) clearly my body needs vitamins since probably my digestive system is not right, I remember one doctor in my teens told me that I have a liver issue but I dont have issues with constipation and my digestive system is okay, but I can explore this area as well.
Please help me out with suggestions, great if you could tell me the medicine names and all, I hope we can help each other to over come this sickening disease.
PS: the best thing that ha happened now is:
1) my skin dryness is going, it has given me the worst pain
2) I can feel energized a lot these days but I want to improve further.
Regards
Rahul
I have been suffering from :
1) relentless headaches
2) sleep disorders
3) burning eyes
4) fatigues
5) low energy
6) excessive dryness throughout body specially hair
since I was 13, today as I write I am 32 and nearly 20 years later I realize that something is terribly wrong with me, I have been cursing all my life having a self impression that I am :
1) lazy
2) not serious about things like carrier and family
3) not disciplined
4) A guy who doesn't know how to balance life
5) Not sitting with family/ socially poor
etc
First of all I am glad that I have CFS in a way since I have stopped cursing myself and come to the conclusion that it is this disease that really stopped me, I always felt that I was extremely talented weather its sports or studies, as I write I have failed in both but after finding that I am suffering from CFS gives me a strong motivation, cure it and get back to things. The worst thing that happened with me was that I always wanted to play sports that require extreme physical toughness and over the years it has back fired terribly, on the one hand I was a really talented sportsman and on the other I had no clue over these years that I am suffering from a disease like CFS, indeed today I know that what stopped me and not only just that It has also led me quit jobs in the last 8 years many times, I had to switch from sports to academics and would have been a big-2 IT professional but today as I write I am even out of job , but finally there is hope for me, I have also been depressed about not being able to achieve an iota of things I would have achieved in sports and academics and this added a new dimension to my problem. so what happened with me in the last 20 years:
1) from 13-23 : I was a terrific sportsman and used to scored like 80 odd percent without putting much effort in academics and a tremendous computer programmer, by the time I was 16 I had to quit sports after being on the verge of earning an international tour and at the time my academic scores came down to 40-45%, now I realize what made me take the decision to quit sports since physical activity means I would suffer from fatigue even more, even after I quit playing cricket(extremely physical game) I can recall that I was in extreme discomfort but since I am mentally so strong that I have lived with CFS without knowing that I am suffering from this tough disease
2) from 23 -32 : at 23 I remember that I came out of my problems listed above (like there was a 25% improvement as I grew old) in spite of playing cricket I wanted to work on my body fitness and I went on a heavy cardio routine, but I remember it used to back fire so much that I never managed to get going for more than 15 days and soon I would be bed ridden, I again had to quit it many time while I was between 23-30, also I could have been a very strong IT professional but I have lost my jobs 4-5 times between 25-31.
so after all this I have been trying to cure myself very seriously for the last 5 years since I was partially convinced that something is wrong with my head, I have tried to cure myself with the following:
1) Emotionally/psychiatristically, that may be its more of that I want to play cricket and may be I am not happy with the way the things are going, I am not happy with my life and thats why I am not happy which has depressed my brain, I did everything possible again to try to get back to sports but again , it was the CFS that back fired.
2) I have been treating myself with dryness/burning eyes/nerves disorders/ sleep disorders and I would used to feel that I want to achieve too much in life and I end up exhausting myself which has resulted in these problems, I have lived with this impression but soon in the last 3 years this mindset about myself has changed.
Now I am 32 and the great news is that I have a partial success story, for the first time in my life, I am beginning to feel better after 20 years of suffering, and its july 2015 that after trying a lot of medications I have found what CFS is and in my opinion its a combination of things that will help you overcome this serious head related problem.
of all those years, it was only the last 5 years that I was experimenting with a lot of medicines, and my partial success started when I saw my dad taking a multivitamin syrup one day at the start of this year(2015), I tried it and felt really good for the successive 3-4 days, in my case I would be bed ridden mostly, so after trying it for few days I moved to a new syrup which had B12 vitamin along with folic acid and iron, now this syrup(dexorange) would further provide me some relief as compared to the first multivitamin syrup but again it only helped me some percentage of relief , I would be far from okay, so now comes the most important part, I moved to B-complex capsules(based on some self study on the internet).
PS: dont listed to doctors completely, I have gone to some doctors and clearly told them my problems, now I expected them to tell me whats wrong with me, but I never really able to reach the point where I am standing today, its because of the internet that I have discovered my problem.
1) so B-complex capsules have really helped me come out of this problem to a certain extent that I can say a few things about myself:
a) I can go out of home and feeling a bit refershed(I would like to further improve though)
b) I can study well these days and I am able to learn things
c) I can sleep well, although I can say that I need a bit of more improvement, but it has improved considerably
d) I can see that I can start a bit of exercise too - but its still early days - i guess i further need to clear my brain fog to sort out this which is why I am writing this post
so could you please help me:
so B-complex is my first stage(I have been told that the good thing is that there are no side effects of it too)
My next stage is :
1) I have heard a term like brain fog, I guess I need some medcine along with b-complex
2) I need to improve my sleep further, b complex has helped but I again want to take help of some medicine
3) clearly my body needs vitamins since probably my digestive system is not right, I remember one doctor in my teens told me that I have a liver issue but I dont have issues with constipation and my digestive system is okay, but I can explore this area as well.
Please help me out with suggestions, great if you could tell me the medicine names and all, I hope we can help each other to over come this sickening disease.
PS: the best thing that ha happened now is:
1) my skin dryness is going, it has given me the worst pain
2) I can feel energized a lot these days but I want to improve further.
Regards
Rahul