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JKerner59

Active member
Joined
May 1, 2014
Messages
80
Reason
DX FIBRO
Diagnosis
00/0000
Country
US
State
FL
It's a gorgeous day outside and I so LOVE to be outside enjoying the spring weather...but NO, I'm laying in bed watching television because I'm SO tired...Now I've been getting lots of good sleep lately but this fibro flare is kicking my butt!

I've helped a neighbor two mornings in a row with a garage sale which we closed up at noon yesterday and 11 today...why on earth to I feel like I ran a marathon?

It's so hard for a project oriented person like myself to deal with being sidelined by my body...much less by something that most doctors don't recognize as being real...time for new meds...I quit working at the end of last year to help care for my aging mother...at some point I have to go back to work but I am so concerned about not having the energy to work a full time job...

Oh well, if you I become a bag lady with a shopping cart, I'll be the one sleeping in it instead of pushing it!

Rant over...may my fellow sufferers be having a better day than me! Peace!
 

mariposa

Senior member
Joined
Apr 19, 2013
Messages
459
Diagnosis
00/0000
Country
US
State
PA
To answer your question, :razz: you weren't out there because you were taking care of JKerner. To be out there may have meant a much worse day tomorrow while taking the time to rest like you did could mean kicking the flare away faster.

I hope you have a much better tomorrow! Sometimes humans really do need to do things to pamper themselves whether or not it seems to be what we think we want. :smile:
 

terbaer

Senior member
Joined
Apr 3, 2014
Messages
430
Reason
DX FIBRO
Diagnosis
10/2010
Country
US
State
WA
JKerner59, were you living my life for the past few months? That's exactly what I've been thinking. I've had NO energy, colitis flare-up is kicking my butt, literally...I can't shake this ongoing headache and I'm so fatigued, I too have just been spending my days in bed. I had a good couple days last weekend so actually cleaned carpets. That was the first in very few good days. I've missed about 100 hours or more in the past few months from work. I just can't do it. I met with my internal medicine specialist and asked about getting referred to the University of Washington where I've heard they assign a team of doctors to you. He was all for it. I just got the paperwork and it's the pain center. All the questions are around whether I'm taking too many of my pain medications and whether I'm depressed...WTH? Was I in a different room with a different doctor? Yes, I have chronic pain, but I'm dealing with that. I'm not dealing with all the other auto-immune stuff. I need someone who can analyze it all and see if there is something, somewhere, that someone can do. I'm really concerned I'm going to have to quit working. Who wants a manager that can't be counted on? Almost 29 dedicated years with state government and I may not make it to retirement.....I'm sorry, I jumped on your soap box and just took over......Your situation sounds so much like mine and I'm in a whining mood today...... :(
 

Trellum

Legendary member
Joined
Jul 17, 2013
Messages
1,788
Reason
DX FIBRO
Diagnosis
04/2011
Country
NL
State
NL
JKerner, don't worry! I'm sure we will all see better days! Don't feel bad about not enjoying a nice day, after all you were inside lying on bed because your body needed that rest. All that fatigue is a clear way for your body to let you know it needs to get some rest. So cheer up! you are doing the right thing by staying in bed, you need rest. I'm sure you will get to go out and enjoy a beautiful day pretty soon :)
 

JKerner59

Active member
Joined
May 1, 2014
Messages
80
Reason
DX FIBRO
Diagnosis
00/0000
Country
US
State
FL
Thanks for all your comments...terbaer..I totally get the work situation...it is very scary to not be able to work to support yourself because the symptoms can not be managed to the degree thatyou can function in your job..I pray that the medical community will figure out the cause of this myalgia.
 

mariposa

Senior member
Joined
Apr 19, 2013
Messages
459
Diagnosis
00/0000
Country
US
State
PA
I pray that the medical community will figure out the cause of this myalgia.

That would certainly be a tremendous breakthrough, wouldn't it?! I am stunned that it's going so slowly, even for the first recognition stages. Yes, a lot of doctors do know more about it now, but that doesn't mean treatment is as good as it should be.

And then there are those stubborn old timers who think that if it wasn't in their books in med school in the 1890s :-D that it can't exist. Those people need to be educated or re-educated for sure!
 

links56

Distinguished member
Joined
Oct 29, 2013
Messages
177
Reason
DX FIBRO
Diagnosis
01/2013
Country
US
State
IL
Don't worry. I'm in bed today too. It's so nice out but I feel so terrible. I haven't been able to work for almost 6 months and Ive probably spent 3 of them in bed and 2 in my recliner. I started taking Ritalin a couple weeks ago and had been doing a lot until today. You're not alone though.
 

LivetoErr

Distinguished member
Joined
Jan 15, 2014
Messages
137
Reason
DX FIBRO
Diagnosis
06/2012
Country
CA
State
AB
When you're feeling better, go outside for me, ok? The sun makes me itchy. I try and avoid it as much as possible.

I don't work, either, even though my province's disability thinks I should be able to. They think all my problems would be solved if I got a good night sleep and suggested I take sleeping medications. The fact those make me unable to function the next day means nothing to them. *rollseyes*
 
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