SBee
Very helpful member
- Joined
- Feb 13, 2024
- Messages
- 512
- Reason
- DX FIBRO
- Diagnosis
- 12/2023
- Country
- UK
There probably isnt an answer to this, but in the past few weeks I am almost starting to think I cant possibly be in the constant state of pain, and also of my feelings of the depth of pain.
When I speak with any medical professional I tell them the truth - I am in constant pain, 24hrs no let up, even if the severity can alter.
I have osteoarthritis in hips, knees and hands also inflammatory arthritis mostly in hands and wrists. The fibromyalgia nerve pain in mostly in upper body and arms, but like many I seem to feel pain in a very heightened way. Recently I saw a hand occupational therapists who gave me exercises to try to regain strength and movements in my hands - but not to use it on a 'bad pain day'. Thats left me flummoxed - for me, like many fibro sufferers every single day is a bad pain day.
Along with someone close to me who saw me finding it hard to move, and said 'well i get pain, you just have to get on with it' that and professionals seeming not to understand the concept of constant pain, these things has made me feel I'm just not strong enough to 'push the pain away '.
Like all of us, I DO 'get on with it '. After a night of pain, I always get up every single day, get on with the day and the daily tasks etc albeit with my health conditions limitations, and all this with all over pain and fatigue.
In short I guess this is a mini rant towards a world that doesnt seem receptive to the fact that every day is a struggle, and yet we all do the best we can despite being made to feel at times that because our brains and pain receptors get screwed up it seems ok to doubt that our pain is bloody real, that it simply cannot be as bad as the pain we actually do feel.
When I speak with any medical professional I tell them the truth - I am in constant pain, 24hrs no let up, even if the severity can alter.
I have osteoarthritis in hips, knees and hands also inflammatory arthritis mostly in hands and wrists. The fibromyalgia nerve pain in mostly in upper body and arms, but like many I seem to feel pain in a very heightened way. Recently I saw a hand occupational therapists who gave me exercises to try to regain strength and movements in my hands - but not to use it on a 'bad pain day'. Thats left me flummoxed - for me, like many fibro sufferers every single day is a bad pain day.
Along with someone close to me who saw me finding it hard to move, and said 'well i get pain, you just have to get on with it' that and professionals seeming not to understand the concept of constant pain, these things has made me feel I'm just not strong enough to 'push the pain away '.
Like all of us, I DO 'get on with it '. After a night of pain, I always get up every single day, get on with the day and the daily tasks etc albeit with my health conditions limitations, and all this with all over pain and fatigue.
In short I guess this is a mini rant towards a world that doesnt seem receptive to the fact that every day is a struggle, and yet we all do the best we can despite being made to feel at times that because our brains and pain receptors get screwed up it seems ok to doubt that our pain is bloody real, that it simply cannot be as bad as the pain we actually do feel.