Thanks for your replies Sweed @ Trfielder,
Sweed I wish I could say I am doing okay but have been really struggling. I haven't had health benefits for over a year so am only seeing my neurologist when I absolutely have to. I am going to see a regular GP next week as need a new script for blood pressure medicine I take. So will ask about this rash. I have no idea what it is but had it last time I needed a new script and the doctor gave me penicillian which cleared it up but then it came back. So perhaps it is fungal, I'll see what this doctor says next week.
As for my fibro, it is an ongoing struggle. I wake up each morning in such a fog, my lower back hurts, my legs hurt....finding it really difficult to get around. And then to top it off have been more depressed than usual with alot of anxiety. I probably need a change in medication and will talk to the doctor I am seeing next week as well.
When you are younger and don't have this sort of disease you think about retirement and all you will be able to do. Now that I have had to take an early retirement I wonder most days is this as good as it gets. And if so I really don't have a lot to look forward to. My greatest fear is that I am going to end up in a wheelchair which is a real possibility.
I had my Social Security disability hearing a little over 2 weeks ago and so I am really hoping I get approved. I took an early retirement in January from the postal service and asked it be changed to disability retirement as I found out if I get approved for the disability retirement then they will reinstate my health insurance which I desperately need.
Last time I saw my neurologist he said he thought my fibro was getting better. It isn't better so kind of pissed off at him for saying that. But think he only said that as I was trying to get him to help me with a worker's comp case and although he was very helpful 2 years ago and seemed like he would help in the future he did say he has since changed his mind and can not be of any help any longer.
I am going to be looking for a new doctor to treat my fibro, and it seems like many see a rheumatologist. Know I didn't spell that right. So have been told I would know about my disability retirement by the end of January and hopefully I will know soon about SSD. As soon as I am able I will find a new doctor and can only think my meds need to be tweaked or changed. I am currently taking Cymbalta 120 mg and 200mg of lyrica a day.