- Sep 18, 2022
Recently diagnosed. Looking for a specialist. Does anybody know of a doctor who specializes in fibro in Toronto to Ottawa or norther NY state?
Very understandable!I am looking for a doctor who is willing to do all the testing vs. my GP who only did one blood test and an x-ray to rule out arthritis. and than gave me this diagnosis.
Definitely right.to my knowledge, there is no medical "specialty" specifically for fibro - it most often falls under the umbrella of rheumatology.
I don't have to put myself in your shoes because I, like many of us, have been there! Many times. Try getting a list of doctors (of any kind) from an insurance company, and see how real or up to date that is!but put yourself in my shoes.. you go to the list for your state/region/country, and your city.. Oh boy.. 10 docs listed as specializing in fibro care.. so you start researching the individual names only to find out this or that doctor is no longer at that clinic/in that area, and has not been for quite some time.
The one remaining name from that list that is still there is iffy.. he used to get good comments/ratings from patients, but not so much anymore, which leads me to believe that he is getting ready to retire.. (he has been a doc since 1983, rheumatology specialty since 1988)
And we wont even go into the question of whether they are taking new patients or not... that is a whole different ball of wax.
While I completely empathize and you don't need to feel bad about asking these things, there's nothing further that can be done about it, as least as far as I know. The list may have been up to date when it was put up, but it has not been possible to keep it updated. I do not refer people to that list myself. If you do refer someone to it, it might be best to inform people that the list may not be accurate so they don't get frustrated.Perhaps I am just being too whiny about it and need to let it go.. Sorry I have taken up so much space about it.
The thing about pain clinics is that they are most often going to prescribe pain mediaction because that is essentially their function.
If they can help in other ways, great.
But take great care with the medication if offered. Many are addictive, others have unpleasant or even serious side effects. You seem to be a person who pays attention to your body, so maybe I don't need to say this, but I am saying it anyway because it's so important.
Before you take any pain medication I recommend that you try non-medication routes first to see how far that will take you.
I am not familiar with this forum software, although it may be a skin on something I am familiar. HOwever, I do not know if this is directed at me.
I imagined that a pain clinic is the place to go when experiencing pain, no?
I do not understand non-medication routes. Within the context of the pain clinic, it seems these are ways they address fibro.
Pain clinics can be useful in the right situation, but may not be all that helpful for fibro type pain, which is different than say pain from a surgery or other injury. I regularly go to our pain management clinic for help with my arthritic neck and low back. They are also the resource for my low dose N(altrexone) that I am currently trying for the fibro pain. But I will not accept narcotics from them (not that they have tried to prescribe them to me) - just not something i want.
I guess we are not saying "dont try it", but more a "try with caution" - pain clinics also commonly prescribe pain medications - some of which are addictive narcotics, which in truth are generally not all that helpful for fibro pain. Granted, the medical community in general is moving away from narcotic pain meds these days, but there are still those that wont give a second thought to prescribing them. Narcotics are definitely something to stay away from if at all possible.
Non-medication routes are forms of managing your fibro without prescription medications. Things like diet, OTC supplements (preferably with a doctor's supervision), mild to moderate exercise/stretching (if you can) and mindfulness are all forms of non-medication therapies.
Mindfulness can be in the form of yoga, tai chi, meditation, etc.. being aware of your limitations, and forgiving yourself for not accomplishing every little thing on your list is also a form of mindfulness. So you didn't clean the entire house in one day, big deal.. it is not the end of the world.
sometimes even cleaning just one corner, or doing the sink full of dishes is about all one can manage, depending on how they feel that day.
I spent most of this past week doing as little as I possibly could get away with, preparing myself and saving my energy for making Thanksgiving dinner for my partner and myself yesterday. And today, I hurt and am tired, but proud of myself for putting on a pretty good spread, considering it was just the two of us, LOL. It will probably take me several days to finish the tidying up but I am ok with that. It was worth it, to me.
Thank you, AhZoAh, I see. THank you for that. I think Canadian pain clinics are a bit different than American ones. I do not think they get [political ranting removed]. The pain clinic is the one pushing the duloxetine, which from my 'resurch' (aka "the googles") is a common starting point.
I used to do yoga, and pilates, and exercise regularly. Now I can not walk without at least a cane, but have a walker for the tougher days.
Congrats on Turkey Day dinner! I know making a meal takes it out of us. I cook about twice a week, usually recipes that make for great leftovers or freeze well. If I do a full on French meal, then I need a few days to recuperate. My other half does not mind eating beef bourguignon for a few days, as long as I make fondant potatoes (his current fave).
Congrats for making it through Turkey Day! Rest well & proud.
Our thanksgiving was last month. I think I made carnitas (Mexican pork dish).
Thank you, AhZo
and yeah, it can take a lot out of one to do a lot of cooking. I tend to occasionally take shortcuts when I can do so in a reasonably healthy way.. Birds Eye steamer bags of rice & veggies are a huge time saver for me. no chemicals in them, just the natural ingredients.
I have never had fondant potatoes but they sound amazing! Sadly, however, at the moment, i am trying things without white potatoes for a while... even yesterday, I had roasted and mashed sweet potato instead of regular mashed potatoes but i did make some for the partner. LOL
and yeah, duloxetine is a pretty common starting point with meds.. gabapentin is another.. I have been thru a bunch of the "common" ones with not so stellar results - mostly just side effects and no pain relief. as a last resort am trying one more not so common one.. (the forum software flags the common initials so I try not to use them)
I also use a cane if I have to go more than say 30-40 feet with nothing to grab on to.. the low back just kills me without a bit of support. My partner brought home a walker so I have one if I should need it, but so far I have not.