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LiLi

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Joined
Dec 22, 2015
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00/0000
Country
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Still no diagnosis my GP thinks it is FM. Does anyone get a red hot face, hot thighs, general hot sweaty feeling. And or swollen ankles. 3 months ago I had a general sick feeling, very uncomfortable all over with swollen ankles and hands with a really heavy feeling on my chest and back making it hard to breathe. My legs and arms felt like they weighed 500lbs each. High blood pressure (previously normal BP) back pain, leg pain, headache, jaw pain. I went to the ER because I was feeling so ill. They gave me a prescription for a diuretic and refered me to the internal medicine clinic. I have done lots of tests since then which all come back mostly normal. Chest xray, ultrasound of abdomine, echocardio, blood tests weekly, urinalysis. They only things that came back were enlarged heart, enlarged liver, gall stone, high white blood cell count (some days its normal) and high lymphocytes. The internist team have no explaintion for anything execpet that I am over weight, and the pain may be coming from my desk at work. I feel like I am being dismissed by them. Luckliy I have a fantastic GP that I have had forever and wants to get to the bottom of all this. I am a 30 year old female. Anyone else with a similar story or any thoughts on my story?
 

diamond

Legendary member
Joined
Sep 18, 2015
Messages
1,548
Reason
DX FIBRO
Diagnosis
01/2008
Country
UK
State
anywhere
All the enlarged organs really does need some serious investigating and high lymphocyes. I dont think red hot face hot thighs etc swollen ankles is a fibro symptom although maybe some people get these I haven't heard of them.

Arms and legs feeling soooo heavy, all the pain everywhere and feeling so ill are definitely fibro symptoms. You are very young and i feel for you.

Keep going with the investigations and try and see a rheumatologist for the fibro symptoms. Take Care and wishing you better days ahead.
 

LiLi

New member
Joined
Dec 22, 2015
Messages
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Thanks for the encouragement Willow! I will keep pushing on
 

LiLi

New member
Joined
Dec 22, 2015
Messages
6
Reason
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State
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Hi Jermaine. Yes I am willing to discuss! Merry Christmas to you too
 

moe1959

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Joined
Sep 13, 2014
Messages
708
Reason
Undiagnosed
Diagnosis
09/2014
Country
US
State
wa.
Enlarged heart? Why? Swelling in your feet can be sign of heart problems. Are you seeing a pulmonary Dr.? Don't dismiss this. How is your bp?
 

AlaDeb

Member
Joined
Jan 1, 2016
Messages
21
Reason
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Diagnosis
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Country
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Al
I am surprised you were not referred to a cardiologist. you need to see one and take all your test results.
 

Trellum

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Jul 17, 2013
Messages
1,788
Reason
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Diagnosis
04/2011
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Some of the symptoms mentioned could also be caused by an endocrine issue, you should have been referrer to both and endocrinologist and a cardiologist. I can't believe they didn't with all those symptoms. Jesus, I hope you are alright!
 

moe1959

Very helpful member
Joined
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Messages
708
Reason
Undiagnosed
Diagnosis
09/2014
Country
US
State
wa.
Wow after reading the first 3 sentance I had to check if it was my post. Lol.
Check any medications your on and side effects. I was once on a pain med that made me sweat profusely. My At the time dr blamed it on menopause......nope, soon as I got off, no more of that mess.
Although, I may have lupus now and the Sun is a no no.Great right?
 
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