Relieved...

[Dom333]

Hi everyone! I'm so glad there is a site/community/support group for this crappy collage of maladies they call fibro. I'm sure i'll be posting a lot because i'm newly diagnosed and know little about this dirty rotten disorder (??is it a disorder)"

Anyway this is a preemptive thanks for listening to my future sob stories. I look forward to getting to know some of you and hearing your stories.

Dom.

 

[diamond]

Welcome....i would type more but have bad hands but wanted to say Hi....lots of people will respond we are a nice bunch x

 

[maydaze43]

Hi Dom, i like how you put that "collage of malodies" they call fibro... How are you feeling about your diagnosis?
I am new here also. x

 

[Dom333]

Welcome....i would type more but have bad hands but wanted to say Hi....lots of people will respond we are a nice bunch x

No worries i understand my friend; i can barely use a pen anymore without taking breaks every 20 seconds. Thanks for the warm welcome. I look forward to hearing your story and the stories of others. I will see you on the threads!

 

[Dom333]

Ok cool so we are both newbies! Thanks i try to use the colorful language as much as possible in attempt to sound smart .
Jokes aside i feel relieved and awful at the same time. I've been going to countless doctors/specialists for 14 years with nothing but proverbial shrugs from these biased MD's. I say that because I am a 28 year old male, 6' 2" and somewhat built so these doctors just wrote me off as either a head case or a drug seeker. No one believed the level of pain and fatigue i lived with for 15 years because i only have 6 bulging discs and all of my blood work was clean. So finally the 7th neurologist i've seen finally gave me nerve tests and deduced that i need to see a rheumatologist because he believed i had fibro (first time i heard about it because i guess it's rare for a young male to have a bad case of fibro). The rheumatologist spent an hour and half with me and couldnt believe it took this long to be diagnosed because she said i had classic fibro. Was so relieving to finally have an answer! To finally know i'm not crazy or have munchausen syndrome. I almost cried i was so happy to finally have this 15 year goose chase come to an end.

On the other side i am not excited to be told the best case scenario with multiple approaches that my symptoms could subside by 40 percent. Not the brightest prognosis lol.

So i babbled long enough and won't go into my symptoms in this lengtht post. What is your story? What symptoms do you have and what levels??

 

[diamond]

Hi Dom i have done lots of posts in the last 5 months but today i am just going to reiterate my welcome and tell you about a young guy called Jordan who is only 19. You can find his posts one of which was struggling at 19.

Well he was on here trying to find someone young and male to share experiences and get/give support. He has not been here for a while as is often the case people join at times of desperation and then either find their own path to cope or maybe are in such despair that its only a temporary support being here.

He started a blog called fibromystery ..and is on twitter as fibroman 19 maybe you could find it.

I a not sure if i am allowed to post that. Its not a link so i hope so.

I hope he comes back so you two young guys can become buddies.

Speak more another time apologies but my hands are not so good. Take Care

 

[Dom333]

Hi Dom i have done lots of posts in the last 5 months but today i am just going to reiterate my welcome and tell you about a young guy called Jordan who is only 19. You can find his posts one of which was struggling at 19.

Well he was on here trying to find someone young and male to share experiences and get/give support. He has not been here for a while as is often the case people join at times of desperation and then either find their own path to cope or maybe are in such despair that its only a temporary support being here.

He started a blog called fibromystery ..and is on twitter as fibroman 19 maybe you could find it.

I a not sure if i am allowed to post that. Its not a link so i hope so.

I hope he comes back so you two young guys can become buddies.

Speak more another time apologies but my hands are not so good. Take Care

Hey, Willow. I will take a look, and I don't see anything wrong with posting that. Thanks for the help!

 

[remnant]

Hallo Don 33, welcome to the platform. Your optimism and fighting spirit are to be admired. Nonetheless I digress that you will have future sob stories. You will only get better with time. Maintain your positive mental attitude to the end. A negative attitude is the bane of FM patients as it aggravates the condition. You can lose battles but not the war.

 

[Eyesup]

Welcom Dom333, I too was relieved to finally have a diagnosis, a word other then "hypocondric". We welcome the sib stories along with the victories and new knollege.
My heart breaks for all the young people that symptoms got so bad so early. My son will be 19 next month, he has gone from not wanting to talk to a doctor to asking almost daily "what relieves this".
Please keep posting, it's nice to have a man (men) around the house! Your perspectives will be enlightening not to mention I know there are other GUYS that would like more men's input.
Welcome again