Severe finger pain - any tips? (Pun intended)

MysteryCat99

New member
Joined
Mar 3, 2020
Messages
1
Reason
DX FIBRO
Diagnosis
01/2018
Country
UK
Hi all, I have been diagnosed with fibro since 2018. Over the last year and a half I have had bad joint pain in my top and middle finger joints on my thumbs index and middle fingers. When these joints hurt they can also swell up and turn quite red on the joint. It can get worse and better but generally my left index finger always hurts. I have been told I don't have any arthritis and have had xrays and blood tests and saw a rheumatologist who said it was fibro and nothing can be done and he doesn't want to put me on any long term pain medication because I am too young. It's pretty debilitating and when it's at it's worst I just want to cry. It affects me at work too as I work in a busy tea room. Does anyone have any similar experiences or any ideas on how to deal with the pain? I have tried direct heat, massage, and painkillers and nothing has worked for the hand pain. I am also diagnosed with hEDS and struggle mostly with muscle and joint pain and Allodynia. Thanks, Lou x
 

Mariemiguel2

New member
Joined
Mar 19, 2020
Messages
5
Reason
Practioner
Diagnosis
01/2020
Country
US
State
NY
I may not understand exactly how you feel, but I hope you recover and get well soon.
 

sunkacola

Senior member
Joined
Dec 2, 2016
Messages
461
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
I have experienced this but not as badly as you; my joints do not swell up that much. I do get "trigger finger" a lot, though. About the only thing that has ever helped is an Arnica lotion rubbed into my hands. It doesn't take all the pain or swelling away and doesn't always work at all, but sometimes it eases the pain. I combine it with heat from a heating pad.
 

Butterflies55

New member
Joined
Mar 6, 2020
Messages
5
Reason
DX FIBRO
Diagnosis
09/2015
Country
US
State
MA
Hi I have been diagnosed with Fibro since 2015. When the rheumatologist gave me the diagnosis I was in complete denial. It took about
3 years for it to hit me like a ton of bricks, more symptoms and more pain.I have just got X-rays done and I have really bad pain in fingers
my third finger has like a bump on at very top of my finger it looks deformed. my hands hurt a lot. The X-rays said it was Psoriatic arthritis or possible erosive osteoarthritis. So which one is it? they still have not told me. I also have allodynia.

Hi all, I have been diagnosed with fibro since 2018. Over the last year and a half I have had bad joint pain in my top and middle finger joints on my thumbs index and middle fingers. When these joints hurt they can also swell up and turn quite red on the joint. It can get worse and better but generally my left index finger always hurts. I have been told I don't have any arthritis and have had xrays and blood tests and saw a rheumatologist who said it was fibro and nothing can be done and he doesn't want to put me on any long term pain medication because I am too young. It's pretty debilitating and when it's at it's worst I just want to cry. It affects me at work too as I work in a busy tea room. Does anyone have any similar experiences or any ideas on how to deal with the pain? I have tried direct heat, massage, and painkillers and nothing has worked for the hand pain. I am also diagnosed with hEDS and struggle mostly with muscle and joint pain and Allodynia. Thanks, Lou x
 

minilandrover

Member
Joined
Mar 3, 2014
Messages
19
Reason
DX FIBRO
Diagnosis
05/2009
Country
fr
State
maine et loire
Hi, it doesnt sound like the typical fibro hand pain, fingers locking up, half the hand goin numb, but more like arthritis but your rhumatologue says its not! Im surprised they didn't propose cortizone injections.
I had many for my fibro, and a knee problem. The knee injection didn't hurt but the ones i had in the wrist, hand, and nerves were very painful but did relieve the pain in the fingers for a while... It's worth trying at least once. As you say the joints are swollen. If they are hard its more likley arthritus related, if they are soft and puffy its not...
Avoid leaning on your elbows, as this can cause nerves to get squashed, and affect the fingers, tingling and numbness.
Ive got better with my hands over the last 5 years, but if i do anything strenuous with them, i will suffer the next day.
Ive also weaned myself off of painkillers because the side effects were causung other problems... I still suffer witg pain, a lot at times but only take a strong painkiller if i really have to. Its a mental thing, just learning to accept it, and not let pain be your center of attention..... Do things that are not strenuous but give you satisfaction, you need to have something in your daily program that makes you feel good and satisfied. It can be making flapjacks, a game of cards, doing some drawings, learning a new tune, anything, as long as it gives you a feel good feeling... Thus will improuve your mental state and that is the first step in getting over fibro, or dealing with it...
Good luck

Be safe and isolate from the corvid virus.
 
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