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Brenda K

Member
Joined
Oct 28, 2017
Messages
29
Reason
DX FIBRO
Diagnosis
00/0000
Country
CA
State
Manitoba
My FM doctor is quite opposite and does not believe the medications being prescribed help but rather cause more issues. She does realize that from time to time you may need those muscle relaxants or Lorazepam to help with the bad anxiety attacks, but not for continual use.
I used to be on Morphine for years for my back until I developed a sensitivity to it and had to stop. Turned out it was all opioids that bothered me and it was suggested several years ago when this happened that I would have to go on Fentanyl to control the pain, being that it is a synthetic drug it shouldn't bother me, Well in Canada people are dying like crazy because of this drug... so I said no thanks.. that will be my absolute last resort. I was also on Lyrica max dose, Cyclobenaprine, Lorazepam, Zopiclone, Cymbalta Amitriptyline and others that I cannot remember. I felt like they were all just making me sicker so I made the decision one day to go off all of them. Cymbalta is absolutely hell to detox from! I quit my Morphine cold turkey and the withdrawals weren't even close to the Cymbalta.... nasty nasty stuff.
So now it is almost a year and a half later and I only occasionally use Clyclobenzaprine, Lorazepam and Zopiclone.
What am I doing for meds now? I went on Medical Marijuana. I use the Cannabis oil, usually a blend of THC and CBD. Quitting the other meds allowed me to drop almost 40 pounds. Amitriptyline is awful for weight gain. Now is this a miracle drug? Probably not lol, but it really does help me most days with mood and it dulls the pain enough to be able to actually get some stuff done. Although right now I am in a really bad flare and find the sensory issues are really out of control. I think what I really like is the lack of side effects like I would get on the prescribed drugs. It's not for everyone and I know not everyone even has access to it. My FM dr wants to get me off of this as well, but for now it is helping me manage and the nice thing about it is, if I feel good, I don't have to take it and won't suffer any withdrawals or side effects from not taking it. For me this was the right choice. Time will tell. I hope someday I can be completely free of all of it. I suppose that's the goal for all of us. My dr truly believes it is possible though.
 

vickythecat

Senior member
Joined
Jan 5, 2017
Messages
364
Reason
DX FIBRO
Diagnosis
01/2013
Country
EU
State
Earth
VickyTheCat, that sounds just like the kind of experience that I have all the time.

What the heck is up with that?
Are there no competent people any more in the medical field?

May I have permission to scream, please?
Aaaarrggghh!
Thank you.
Yessss....I could use a good scream too

arrghhhhhhhhh!!!!

I've wanted to hold the shoulders and shake health care specialists (doctors, administrators, pharmacists etc.) many times; like wake up, wake up, think for a second, do some basic math, have some empathy? Imagine being in a patient for once???

I am glad my GP finally listened (after 3 years!). One less problem in life, hallelujah! Time to tackle the other 999 problems!!! Thank you fibro so very much....:x
 

sunkacola

Senior member
Joined
Dec 2, 2016
Messages
340
Reason
DX FIBRO
Diagnosis
00/0000
Country
Uni
State
Somewhere
Yep, andreap, that is profoundly stupid. And typical!

Here's the latest on my scene: I go to the pharmacy after 8 days with no pain relief, (and I am completely exhausted by going through that as you can imagine), leave the prescription, wait 45 minutes and go to get it and the pharmacy tells me they cannot fill it!!

Turns out there was another error in the scrip that I did not catch, and so they would not fill it. It read "60 pills,2 times a day, with 10 extra for extreme pain, maximum 2 a day". So, obviously it should have said "max 3 a day", and because it did not they said it did not make sense and they would not fill it. Said they would put in a call to the DR.

Understand, this was a Saturday. And the message would go to a corporate office 100 miles away, would not get relayed until Monday (if then), and a response would not come from my Dr.'s office for three to four days, the usual turnaround time.
I was just about ready to scream.

I explained all of this and begged the pharmacist to do something, and they managed a work-around that lets me have just barely enough to get by until my next appointment if I don't have any extra flares or pain, which of course I am having as a result of all the tension that my body has held for over a week being in so much pain.

I am not a druggie.
I don't even know why anyone would take this medication to get high, it sure doesn't make me high.
It didn't even used to be a "controlled substance"....they made it one only two years ago.

It feels from my experience and that of everyone else on this forum as though the patient is a victim of the system, no matter where you live.
 
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