Like how long does it take for a digonses? I'm in the UK. It's already affected my mental health massively is there books I can read? Is there blogs?
I sorta feel like that's it my life its been stamped and doomed if you get me. Its all very new I knew about it but never thought I would be the one to get it.
I feel really alone. I only know one person with it and she was the one that pushed me to get checked but I don't want to annoy her with questions.
I got the fibro-diagnosis after "only" the first 3 months. 1 rheum Nov19 said it wasn't that, sent me to neurologists (and they to a psychiatrist and 2 sleep lab psychiatrists) and an endocrinologist, all tests negative. So 2nd rheum, Feb20: fibro. (Mind you, like you I knew about it and my GPs and I had been thinking it might be that for quite a few years, just it hadn't flared fully yet. That speeds things up...!)
However I wasn't satisfied - many of my symptoms looked like other things. The tests for these take longer depending on your insurance/finances: With the NHS its often slow, esp. cos of CoV, it's also hard to change docs; private is faster, you can change docs and get 2nd & 3rd opinions quicker if you're not satisfied or they arent working fast enough for your taste...). It's also a question of how much time and energy you can invest: I did 45 docs & 15 physios in 1 year, that's not possible for most, but I'm semi-privately insured, was on sick leave anyway and have a lot of inner energy. Then it also depends where you, the docs and your employer want to draw the line on testing for other things - I had absolutely everything looked at, even old stuff, because I wanted to get each thing sorted out, I had a spinal tap done, a centre for rare diseases thought they'd found autoimmune stuff, my employer expected me to go to a clinic etc. And everything helped a little bit in the long run altho most things (mainly the treatments, not the tests) harmed me considerably in the short run...
I know what it's like to not want to annoy someone with questions. I had 1 colleague with it I could ask a few things, but she didn't have much energy. Forum-reading & writing helped much more. Reading 1 or 2 recent books helps get the basics, there also quite a few good overview vids on youtube (e.g. Rachel Lynch (Ireland), Dr. Andrew Gross, zdogg).
Might be helpful to get counseling/CBT to cope better....