So sick of having no energy. I'm new to the forum, just looking for support bc i feel so alone and feel like no one gets it

Auriel

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@Redbird88J , I do so hope you let us know how it works for you, (I have read some good things about it) I've not got any yet but I might ☘️ πŸ‘πŸ»πŸ€žπŸ»
 

Auriel

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we in Germany also say Q10 instead of CoQ10 like is usual in US & UK! 😜
[/QUOTE]

I like your cheeky emoji face jaycs 😁
 

Auriel

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Hi VHeart you will definatly get support on this forum as we understand the pain of fibro and the repercussions of chronic fatigue (I have both of them) cutting out certain foods and drinks helped a lot for me, (I've also added some vitamins too, I think they've made a difference) welcome again) πŸͺ🧁 xxx
 

Redbird88J

Member
Joined
Oct 20, 2022
Messages
21
Reason
DX CFS
Diagnosis
08/2021
Country
SE
@Redbird88J , I do so hope you let us know how it works for you, (I have read some good things about it) I've not got any yet but I might ☘️ πŸ‘πŸ»πŸ€žπŸ»
I have been using it for a month now. The lowest dosage 100 mg of Q10.

The first thing I noticed, is that I can control both my arms/hands again, at the same time.
I could not do this before as it seemed one side would not get enough energy or signal strength.

The second thing is; the recovery days I used to have after having done a trip to town or something similar.
Those days have become less, so from 5 days to 2 days max at this moment.

Soon I will start taking 100 mg of Q10, twice a day.
See what it does.

I saw immediate change the first day I took it.
But after that, it evened out to what it is now.
How I approach these kind of things, is taking a steady dose for at least a month.
So, I can get adjusted and then I start testing my limits.
Depending on that I increase the dose on any of the supplements that I am taking.
For instance, at this moment that would be Q10 and perhaps Acetyl L Carnitine.

I don't know if we can private message on this website.
If so, shoot me a message and I can help you :).

As you might notice, I am not here every day as I do not want to go down the rabbit hole and start overthinking things with the amount of information here. It is just a little much for me. But, the information on here did help.
 

sunkacola

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Dec 2, 2016
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DX FIBRO
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Wow, Redbird, it wounds as if you have made a significant difference with Q10. That's great.

You can definitely private message. simply hover your cursor over the person's handle next to their message, and you will see "start conversation" below their name. That takes you to private messaging.
 

JayCS

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Sep 5, 2020
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I don't know if we can private message on this website.
You can go to a specific person like sunkacola described, or click on the envelope left of the bell up right and choose a person there.
But you and that person need to have written a certain amount of post content before that will work....
 

Redbird88J

Member
Joined
Oct 20, 2022
Messages
21
Reason
DX CFS
Diagnosis
08/2021
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That is unfortunate that there is a requirement of posting content before having the abbility to communicate privately. Sorry @Auriel
 

sunkacola

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Just for the sake of information: There is a good reason for this requirement, @Redbird88J .

It is to protect the members from people who have come onto the forum and then written highly unpleasant private posts, even inundating member with them or with spam. This has happened, so we need to get an idea that someone is going to be good on the forum before allowing private messages.

People have also turned cruel or aggressive or belittled or called someone names in the regular forum, and they generally get kicked off quickly.
Any such thing should be reported. If anyone sent a bad private to anyone, that should also be reported to me by adding me to the conversation, or sending me a private message.
 

cookiebaker

Very helpful member
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Jul 26, 2022
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675
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DX FIBRO
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07/2022
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That is unfortunate that there is a requirement of posting content before having the abbility to communicate privately. Sorry @Auriel
Personally, I do not have a problem with it. I am/have been a member of many forums over many years and having that rule in place reduces a lot of the junk that can happen in a wide open forum with no restrictions. It allows everyone to focus on what the forum is actually about - in this case, helping one another to cope with a little understood illness.

Having helpful information out in the open forum is far more valuable to others, as well.
I completely understand about not coming here every day, but at the same time, taking things private only helps one person, rather than potentially many.
 

Auriel

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@Redbird88J it's ok hun, someone told me before that it takes a few messages before they could get a pm
πŸ•ŠπŸ’–πŸ•Š
 

JamieMarc

Active member
Joined
Nov 17, 2021
Messages
93
Reason
DX FIBRO
Diagnosis
10/2021
Country
US
State
FL
I'm so sick of having no energy, sleeping constantly and still no energy...
My heart goes out to you, just as it does for everyone here who suffers from fibro.
I have found, and it may seem counterintuitive, that activity is the best remedy for my own fatigue. So what I try to do every single morning is get outside, soak up some sunshine and go for a long walk or a bike ride. Once I return home, I feel so much better and much more energized.
 

fimi

Senior member
Joined
Apr 12, 2022
Messages
246
Reason
DX FIBRO
Diagnosis
06/2022
Country
UK
Here in the UK it's very cold and wet at the moment. But a walk still does help, and not just with movement and muscles, but with freeing my mind and stopping me overthinking things.
It just takes me longer to get out the house with putting all those Winter woolies on!!! πŸ€ͺ
 

cookiebaker

Very helpful member
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Jul 26, 2022
Messages
675
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DX FIBRO
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07/2022
Country
US
State
WI
been cold and snowy here in Wisconsin USA... makes me hurt more than usual...
but it could be worse, i suppose... we dont have nearly the snowfall that hit New York state this past weekend.. they are STILL trying to dig out of that.
 

Auriel

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Same cookiebaker cold gets to me too (though jay's complete opposite) πŸ€·πŸΌβ€β™€οΈ
 

fimi

Senior member
Joined
Apr 12, 2022
Messages
246
Reason
DX FIBRO
Diagnosis
06/2022
Country
UK
I would much rather be cold and wrap up warm than hot and unable to cool myself down - that just makes me irritable and cranky. Either way I can flare, so I try to stay somewhere between the two.
 
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