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nfwilliams

New member
Joined
Mar 22, 2016
Messages
1
Reason
DX FIBRO
Diagnosis
03/2015
Country
US
State
TX
Hello. I'm a 34 year old female. I have PCOS and have had depression since before I can remember. I went through some very stressful stuff last year and it sent me into a tailspin physically. After the dust settled I had a hard time walking, talking, sleeping, staying awake and crazy pain. My doctor told me after 6 months of this that I had fibro. It's been a year this month and I see a specialist however I'm still in denial.
I do have body pain. I do have insomnia. I do have joint pain. My skin sometimes feels like it's on fire. I'm depressed at times. I have the hardest time staying awake, focusing and concentrating. I'm irritable at times.
I used to be a gym rat, at the gym every day pushing the boundaries. I used to sky dive, run 5k's, doing complex math in my head. What the heck!?! It's just recovery from lots of stress right?
Some days I feel like I'm back to my old self, other days, forget it; I'm not even recognizable to my spouse and kids.
It sounds like fibro but really is it? I just want my life back, minus the stress.
 

diamond

Legendary member
Joined
Sep 18, 2015
Messages
1,548
Reason
DX FIBRO
Diagnosis
01/2008
Country
UK
State
anywhere
Welcome nfwilliams. It does sound like fibro and mine came on through lots of stressful events one after another. I was in denial like you for about a year as i had also had a fall and kept blaming the pain on that.... but as it spread and kept changing after any activity and happened more and more at night when i was trying to sleep.....eventually i could't kid myself any more.

If i could give you one piece of advise it would be to reduce any stress as far as humanly possible. Take care of yourself...nurture yourself.....put your health first.

On your better days take the greatest pleasure in what you can do and enjoy. Use it to revive your mind and that will help your body.

I truly believe my fibro wouldn't have continued to spiral if other negative inputs had been reduced. Get your family to read on here or find good info on the net that describes how your fibro affects you. Let them help more so you don't over do things.

If you can take care of yourself long term you have a good chance of many more better days. Give in on the bad ones and rest or do something that is personally as relaxing as possible.

I'm afraid acceptance takes a while maybe a year or two and giving up being a gym bunny sky diving etc and finding a new you is very hard but necessary as pushing your body beyond its new limits may mean declining over all health.

The aim is a more gentle life style all round both emotionally and physically. I know this sounds horrible right now so cry when you need to and stay here for more support.
 

Eyesup

Senior member
Joined
Dec 11, 2015
Messages
376
Reason
DX FIBRO
Diagnosis
12/2015
Country
US
State
FL
I just want my life back. Oh this makes me smile. I can't even tell you how many times I've said that. Cryed that.
Is it really fibro? They don't really know what fibro is, just the symptoms, the triggers and things that seem to help. So for now, yes it's fibro. Fibro could be caused by something different for everyone, some do seem to recover in time.
Denial...I refuse to believe that I will never get better, that a cure can't be found. Find the cause then find a cure. My mother died of breast cance in 1973, she was young, it was BRCA1...untreatable in 1973, last year my little sister beat stage 3!!!
Your not really in denial, we all have days when we put it out of our brain. This is the new normal and it's not easy, but denial and refusal to accept are two different things You have every right to not let it consume your every waking hour.
Perhaps it's not the diagnosis your in deniel of as much as it is the prognoses that's too hard too swallow. It to me, doesn't even make sense so how can I believe it. Plus...picture your kid trying to eat yesterday's broccoli. I just don't want to!
 

keelytm

New member
Joined
Dec 30, 2014
Messages
2
Reason
DX FIBRO
Diagnosis
05/2014
Country
US
State
MI
I'm new here also and feel very much as you describe. I've been through stressful situations much harder than the time that brought me this diagnosis. Heck, I made it through near death! What was so special about this time or have I actually had this much longer than I thought? Today I don't want to believe it's Fibro: I want a neat and clean treatment plan to get my abilities back. I go from feeling the weak, pathetic ignorant looking for answers to not being able to connect my thoughts to wonder what I even want to know. I feel stagnant. But like the person above said: this is just what is going on in my brain today. Anyway, hello!
 
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