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Seph

Member
Joined
Aug 20, 2014
Messages
17
Reason
DX FIBRO
Diagnosis
11/2013
Country
US
State
Ar
I was diagnosed with Fibro last year. Since then, every time I have a fibro flare, my neck and shoulders swell up like I've been stung by a bee! It drastically decreases my mobility in my arms. I usually can't lift them above shoulder height.

And my neck looks like I have a hunchback.

Does anyone else have this issue? Any suggestions other than ice/heat to deal with it?
 

Trellum

Legendary member
Joined
Jul 17, 2013
Messages
1,788
Reason
DX FIBRO
Diagnosis
04/2011
Country
NL
State
NL
Hi Seph, and woah! I have never heard of such a thing happening to anybody on this forum, not even myself! I hope you have already discussed this with your doctor, I'm not sure this is supposed to happen to at least a minority of people with fibro.
 

Seph

Member
Joined
Aug 20, 2014
Messages
17
Reason
DX FIBRO
Diagnosis
11/2013
Country
US
State
Ar
I've talked with my doctor. She has seen it first hand, and wasn't alarmed by it.
 

Trellum

Legendary member
Joined
Jul 17, 2013
Messages
1,788
Reason
DX FIBRO
Diagnosis
04/2011
Country
NL
State
NL
Seph, then I'd consider a second opinion. Just in case, you never know. I always do that when a doctor just say something like ''oh, it's fine, nothing to worry about'' and fails to tell me what could be causing it. Good luck!
 

lhaney

Active member
Joined
Aug 7, 2014
Messages
36
Reason
DX FIBRO
Diagnosis
06/2011
Country
US
State
il
I totally agree. I would seek another opinion. I also have never heard of this happening to anyone with fibro.
 

dariel2323

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Aug 29, 2014
Messages
23
Reason
Other
Diagnosis
00/0000
Country
Rep
State
Distrito Nacional
I had not heard these symptoms before, a little strange. I would recommend you seek other opinions with other doctors, you never know. I hope that you better. My regards
 

FibroFrog

Member
Joined
Aug 20, 2014
Messages
11
Reason
Undiagnosed
Diagnosis
07/2014
Country
CA
State
AB
I have been Diagnosed With Fibro and I get flare ups and swelling of my neck and shoulders. My neck and glands get so swollen and tender and my face even swells. I've seen 3 doctors and a specialst this week and they said its part of the Fibro and beginning states and symptoms of another autoimmune disease since my autoimmune marker was positive on a test.
 
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