I never really heard much about fybro prior to being diagnosed. I had pain for years, but recently it's got unbearable in my legs , it doesn't seem like there us any medication that can help either. I've had blood tests fir various things and nothing shows up. It's ruining my life. Are all these symptoms normal fir fibro suffers?
Symptons
- Thread starter lewemma
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Hi @lewemma and welcome to the forum.
Not knowing exactly what your symptoms are it's hard to say if they are "normal" for fibromyalgia, but many of us have leg pain, myself included. And because fibro has so many symptoms that are so varied from one person to another, it's hard to pinpoint anything as being "normal" apart from widespread bilateral pain and the other symptoms that are the most common.
Pain medication is often not helpful, but it's worthwhile experimenting with different ones to see if anything helps. And there are also a lot of other things that you can do which might help as well. There's a post on that pinned to the top of the General Discussion section. Maybe if you read that you will find some ideas to try. I hope this forum proves to be useful to you. We are here to help.
Not knowing exactly what your symptoms are it's hard to say if they are "normal" for fibromyalgia, but many of us have leg pain, myself included. And because fibro has so many symptoms that are so varied from one person to another, it's hard to pinpoint anything as being "normal" apart from widespread bilateral pain and the other symptoms that are the most common.
Pain medication is often not helpful, but it's worthwhile experimenting with different ones to see if anything helps. And there are also a lot of other things that you can do which might help as well. There's a post on that pinned to the top of the General Discussion section. Maybe if you read that you will find some ideas to try. I hope this forum proves to be useful to you. We are here to help.
JamieMarc
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@lewemma unfortunately, there is no normal with fibromyalgia. Every case is unique. You will hear that a lot in these forums.
That's also why it is difficult to conclusively diagnose. The fact that there is no normal pattern. One of my greatest hopes is that someday soon someone will discover and develop a definitive test for fibromyalgia.
There are many many diseases that can cause leg pain. It may be your fibro flaring up or progressing or it might be something else. I wish I could offer you some information that might help you but, without more information specific to your pain, I am at a loss.
Don't give up. Continue bringing it up with your doctors at every visit. Even if they have already told you they don't know what it is. In the meantime, I would recommend daily stretches of your legs, making sure you get enough magnesium and iron. I don't recommend iron supplements, but I do recommend looking at your diet to make sure you are getting enough. If I think of anything else I'll let you know.
Hugs.
That's also why it is difficult to conclusively diagnose. The fact that there is no normal pattern. One of my greatest hopes is that someday soon someone will discover and develop a definitive test for fibromyalgia.
There are many many diseases that can cause leg pain. It may be your fibro flaring up or progressing or it might be something else. I wish I could offer you some information that might help you but, without more information specific to your pain, I am at a loss.
Don't give up. Continue bringing it up with your doctors at every visit. Even if they have already told you they don't know what it is. In the meantime, I would recommend daily stretches of your legs, making sure you get enough magnesium and iron. I don't recommend iron supplements, but I do recommend looking at your diet to make sure you are getting enough. If I think of anything else I'll let you know.
Hugs.
Grace3
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Hi Lewemma although there are no normal with fibromyalgia, there are many similar symptoms as you will find as you read the posts my legs and feet are one of the first symptoms i got. I have noticed with myself there are many more parts of my body that are affected my arms and my shoulders are often very painful< the stiffness in my knees and legs is very painful, when i wake up first thing in the morning i have to lie very still and think which way i am going to move my legs to get up out of my bed as they are so stiff and its so very painful. So i just move one leg very slowly inch by inch until iv got it straight then the other leg the same way, and when i do get up out of my bed my whole body is very stiff. It takes a while to move more freely and im able to straighten up my top half of my body. At this moment in time im not suffering with my legs and knees. Its a real relief. Many things i suffer with fibro i get relief from for a while. None of the things, the aches and pains seem to be permanent but always seem to come back.i did not know what was wrong with me. It started with me falling out of bed during the night and not being able to get up again, my daughter was with me at that time so she was for ever picking me up,i could not get up and walk so my doctor was called and said i should go to hospital as i could not walk. Or stand up without falling, it was found that i had pneumia, they could not find out what was the problem. It was a long journey starting to walk again. I was so scared as iv never heard of anyone having what i had. I was given different medications which done nothing and to cut a long story short i am now on Tramodol, i keep it down to 3 a day if i need them but i feel that, for me the less pain killers i take the better i feel. As i said at the moment im feeling the best i have felt for a long time. Mostly pain free at the moment. Another very important thing i have had to do is make sure i only keep company with people who dont drain me. I cant stand the emotional pain of getting upset as i feel it makes the fibro worse. I hope that you find posts with which you find identification from. You dont have to have exactly the same thing as others have. So dont think about the differences. Wishing you well. Warm regards, Grace x
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Grace3
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I will do my best. I actually found it very hard to write that long post. Im now 74 and no one has complained to me except yourself about my long post. I was trying to give Lewemma as much as possible, maybe i got carried away.
Or was it you that found the post to long. Im not sure if your speaking for others. Or yourself. I was quite upset when i read your post. Strangely enough it was in my spam folder and i often go into it to check for any messages that have found there way in there .i did say that I cant stand emotional upset. Well you soon made sure i got upset. I actually think that you were very rude about my post. If its long and not in paragraphs thats because i dont know how to do that. There was nothing wrong with my post. I have read it and its first class for me
Or was it you that found the post to long. Im not sure if your speaking for others. Or yourself. I was quite upset when i read your post. Strangely enough it was in my spam folder and i often go into it to check for any messages that have found there way in there .i did say that I cant stand emotional upset. Well you soon made sure i got upset. I actually think that you were very rude about my post. If its long and not in paragraphs thats because i dont know how to do that. There was nothing wrong with my post. I have read it and its first class for me
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JamieMarc
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@Grace3
There is a very good reason why @sunkacola kindly requested that you break up your post into paragraphs. Don't feel like you are being singled out. Many, including myself, have been asked to do this.
When you first posted the post, I had difficulty reading it and jumped to the end without reading the bulk of your message. Paragraphs are grammar and meant to make reading and comprehension easier than run on sentences.
Just as you say you had difficulty writing your message, others have difficulty reading it. Just as you deserve considerate behavior so do we all.
My message here is broken up into paragraphs. Simply insert a space between groups of sentences to create paragraphs. The 'new paragraph' button on your phone keyboard should look like an arrow pointing down and left. If you are using a PC, simply hit the enter key to start a new paragraph.
Any future posts you make are much more likely to be read and more responses received, so this benefits you too.
A final thought: nobody can offend you without your consent. Your 'emotional upset' isn't @sunkacola fault. Consider, too, how the stress you allow affects your health, particularly fibromyalgia. Behavioral modification might be food for thought for your own health and happiness.
There is a very good reason why @sunkacola kindly requested that you break up your post into paragraphs. Don't feel like you are being singled out. Many, including myself, have been asked to do this.
When you first posted the post, I had difficulty reading it and jumped to the end without reading the bulk of your message. Paragraphs are grammar and meant to make reading and comprehension easier than run on sentences.
Just as you say you had difficulty writing your message, others have difficulty reading it. Just as you deserve considerate behavior so do we all.
My message here is broken up into paragraphs. Simply insert a space between groups of sentences to create paragraphs. The 'new paragraph' button on your phone keyboard should look like an arrow pointing down and left. If you are using a PC, simply hit the enter key to start a new paragraph.
Any future posts you make are much more likely to be read and more responses received, so this benefits you too.
A final thought: nobody can offend you without your consent. Your 'emotional upset' isn't @sunkacola fault. Consider, too, how the stress you allow affects your health, particularly fibromyalgia. Behavioral modification might be food for thought for your own health and happiness.
JamieMarc
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@Grace3 Also, @sunkacola is a forum moderator. Without her dedication, invaluable forums like ours may not exist or be overrun by chaos. I have immense gratitude and respect for her.
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@Grace3 ......the length of your post is no problem at all!!
People here are welcome to write posts that are as long as they want them to be, at any time, and we welcome hearing from you. Please feel free to write as much as you want!
If you re-read my post above you will see that all I am asking is that you break up the post into paragraphs.
It is hard for some of us....including myself.... to read huge blocks of text if they are not broken up into paragraphs, that is all.
And, of course, if you don't want to break up your writing into separate paragraphs, that is entirely your choice! It was only a request.
I am just afraid that fewer people here will be able to read your posts if you don't use paragraph breaks. For instance, I was not able to read the whole thing for that reason, and other people on this forum have mentioned that they have trouble with large blocks of text as well.
In order to break into paragraphs all you have to do it hit the "enter" key every now and then....maybe after every fifth sentence or so, but whenever you want. And, like I say, you don't have to.......it was just a polite and mild request that has been made to many other people on this forum before. No one has ever taken offense to it before.
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Thank you very much, Jamie.
I have to admit, I was completely shocked when I read the post from @Grace3 . My post made no mention at all of the length of the post....I love it when people write long posts!
And I know several of us on this forum have commented that they have trouble reading blocks of text that are solid rather than in paragraphs.
I feel bad that my asking for that upset someone, but I am also very surprised because I have made that request several times to people on this forum over the years, and other members have also made that same request, and no one has ever been offended by it previously in all these years. Hard to say how one would avoid something like this, I guess.
But just stating for the record...it is never, ever my intention to hurt anyone's feelings or cause anyone to be offended.
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So sorry you feel "bullied". That was no one's intention.
You ask who is "we"...well, @SBee , @JamieMarc , and I are among the folks who have a hard time reading blocks of text, but there are others.
According to your record, Grace3, you have made 30 posts.
I hope that you will continue to post and understand that no one here intends to hurt anyone else's feelings.
SBee
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Yes indeed @Grace3 I definitely find it near impossible to read a solid block of text, my eyes or mind cannot process such an ( for myself ) overwhelming amount of words in a solid block.
I find it amazingly hard to write a short post, so definitely have no problems with the length of a post at all. Any of us on this forum should write as much or as little as they so wish. I am sorry this has inadvertently hurt you. I believe, from experience, that when we are physically ill it can affect us mentally, or emotionally, and you must feel like you have been kicked while you are already down. No one will want to make you feel that way.
I really hope this will not put you off posting, or to feel unsupported.
@sunkacola in the role as moderator, does in fact have to 'speak' for everyone at times, or check posts are suitable for many reasons, whether that be for their content or,as here, suggest about the way they are presented.
Myself, sunkacola and @JamieMarc are just some who find it so hard to read a block of words and by carefully explaining how a post may be formed for easier reading, it can lead to more people being able to reply and offer you advice or support.
I wish you well
I find it amazingly hard to write a short post, so definitely have no problems with the length of a post at all. Any of us on this forum should write as much or as little as they so wish. I am sorry this has inadvertently hurt you. I believe, from experience, that when we are physically ill it can affect us mentally, or emotionally, and you must feel like you have been kicked while you are already down. No one will want to make you feel that way.
I really hope this will not put you off posting, or to feel unsupported.
@sunkacola in the role as moderator, does in fact have to 'speak' for everyone at times, or check posts are suitable for many reasons, whether that be for their content or,as here, suggest about the way they are presented.
Myself, sunkacola and @JamieMarc are just some who find it so hard to read a block of words and by carefully explaining how a post may be formed for easier reading, it can lead to more people being able to reply and offer you advice or support.
I wish you well
JamieMarc
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@sunkacola
Thank YOU!
Being a moderator is not an easy job. It takes dedication, lots of time and the ability to enforce discipline in an assertive manner.
In your request to the op, I found it to be kind yet assertive. In no way was it aggressive. Speaking from experience, being a moderator is a tough job. You were very diplomatic and you should not feel bad about anything. You were doing your job. And a job I might add that you do voluntarily. Without moderators like you, I have seen what forms can become.
So I just want to thank you again from the bottom of my heart for your dedication, devotion and hard work that you do to make these forums a place where we can all feel safe, respected, free to be ourselves, learn from one another and share our experiences. This forum, above all of my medications or treatments, is probably the most important part of my coping with fibromyalgia.
You the best!
Thank YOU!
Being a moderator is not an easy job. It takes dedication, lots of time and the ability to enforce discipline in an assertive manner.
In your request to the op, I found it to be kind yet assertive. In no way was it aggressive. Speaking from experience, being a moderator is a tough job. You were very diplomatic and you should not feel bad about anything. You were doing your job. And a job I might add that you do voluntarily. Without moderators like you, I have seen what forms can become.
So I just want to thank you again from the bottom of my heart for your dedication, devotion and hard work that you do to make these forums a place where we can all feel safe, respected, free to be ourselves, learn from one another and share our experiences. This forum, above all of my medications or treatments, is probably the most important part of my coping with fibromyalgia.
You the best!
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Thank you so much.
This forum also means a very great deal to me. Just knowing that we are not alone, and that we can connect with others through this medium, is often very helpful to people. I know it sure is to me. And I care about the forum and about the people here.
Thank you for being here, @JamieMarc .....and everyone else who contributes to this forum. Your presence here is very much appreciated.
This forum also means a very great deal to me. Just knowing that we are not alone, and that we can connect with others through this medium, is often very helpful to people. I know it sure is to me. And I care about the forum and about the people here.
Thank you for being here, @JamieMarc .....and everyone else who contributes to this forum. Your presence here is very much appreciated.
