Hi all I am new here, was diagnosed officially November 2022 by rheumatologist at hospital kept going back and for to doctors as didn’t know what was going on multiple doctors told me they thought I had fibromyalgia but nothing could really be done until I have a formal diagnosis which I could only get from hospital so I waited probably about 2/3 years for so was very patient. I was told doors would then open for me but I don’t feel they have i have medication and a diagnosis that’s all no help on how to manage day to day.
I felt a mixture of emotions after having the diagnosis I was relieved as I finally knew what was happening and going on but also devastated as I was I think hoping that it wasn’t fibromyalgia and it was just something that was going to pass kidding myself a bit I guess really. I would say I am struggling to accept my diagnosis I also suffer with my mental health and have a ot to help with this one thing that I’ve always done to help with my mental health is clean clean clean and keep busy and obviously there are times now where this is not possible and I’m really struggling with that I like things clean tidy and in their place I always like to be doing something even if it’s just around the house I am a bit of a perfectionist and can be quite hard on myself really, I’m struggling to keep this level of cleanliness up and it is effecting me mentally too as I feel angry and frustrated with myself that i can’t do as much as I could previously. i have been looking up and seen pacing techniques and spoons. I dont find there is much help online as such so I came across this site a few weeks back and today plucked up the courage to make an account in the hope that someone may be able to relate, and offer some advice and tips.
sorry about the long post. Thanks for reading
I felt a mixture of emotions after having the diagnosis I was relieved as I finally knew what was happening and going on but also devastated as I was I think hoping that it wasn’t fibromyalgia and it was just something that was going to pass kidding myself a bit I guess really. I would say I am struggling to accept my diagnosis I also suffer with my mental health and have a ot to help with this one thing that I’ve always done to help with my mental health is clean clean clean and keep busy and obviously there are times now where this is not possible and I’m really struggling with that I like things clean tidy and in their place I always like to be doing something even if it’s just around the house I am a bit of a perfectionist and can be quite hard on myself really, I’m struggling to keep this level of cleanliness up and it is effecting me mentally too as I feel angry and frustrated with myself that i can’t do as much as I could previously. i have been looking up and seen pacing techniques and spoons. I dont find there is much help online as such so I came across this site a few weeks back and today plucked up the courage to make an account in the hope that someone may be able to relate, and offer some advice and tips.
sorry about the long post. Thanks for reading