Hey everyone, I'm new to this forum but have spent hours reading through your posts! Sorry this will probably be long!
I'm just posting this for basically support/advice as I feel like I'm past the point of giving up.
I've always suffered from severe brain fog, (sometimes cant speak, concentrate and take nothing in) and have chronic fatigue but never able to sleep at night. I just saw this as normal and just thought I was a pretty 'useless' person haha.
I first went to the doctors 7 years ago with sharp stabbing in my chest and I'd get a stabbing pain in it with the slightest touch and when breathing, they told me it was off an injury (but I suffered no injury) I put up with the pain but then I went back about 2 and a half years ago when it got unbearable. They gave me a blood test and I got a call saying I tested high for a blood clot on my lungs, I spent over 8 hours being tested and examined and they told me I didn't have one after all, then sent me on my way without any answers on why I was suffering the pain I was in.
Since then to this day, I have had countless amount of blood tests, about 20 last year alone. Doctors would refuse to see me as my Vitamin D was low so they were saying that the reason I'm in pain is because of that. They prescribed me high strength vitamin D tablets and I spoke to a pharmacist and he said that he doesn't know why the doctors even prescribed me with these as my vitamin D wasn't that low and nothing to worry about. I finally spoke on the phone to a doctor just before Christmas and he said he would refer me to a specialist but wanted ANOTHER blood test first and then he'd examine me then refer me to a fatigue specialist.
I finally saw light at the end of the tunnel, fast forward to my appointment (Monday just gone) he was the rudest man ever, snapping at me because I wasn't 'relaxing' enough when he was examining my movement, ignoring all my symptoms I was telling him, at one point he basically called me a liar because I was talking about how I'm exhausted nearly all the time yet can't sleep, I said when I do eventually get a 'decent' night sleep I feel worse for it and like I haven't slept at all. He said 'well which is it because if you can't sleep then how could you possibly sleep for the recommended hours' he then prescribed me (can't remember name as I haven't picked them up yet sorry - also have the worst memory haha) tablets to help me sleep, they'll apparently make me super drowsy where you can't drive and you can't get pregnant on them, he did ask me if I had children or was trying, I told him I'm getting married in 6 months and we will probably try after then (I'll be 29 after I'm married so I don't exactly have years left to try and start a family) and he said 'well on these you can't try'.
I got out of my appointment and cried my eyes out driving home, still NO answers what's wrong with me. I feel every time they'll focus on just one symptom, like I said I get a lot of heartburn when listing off all my symptoms, straight away tablets, chest pain? Here have some sertraline for your anxiety (which absolutely destroyed me I had to come off)
I never even heard of Fibro before until my Dad said he was diagnosed, and we are so similar and I have all the exact symptoms as him, the doctors know he has it too as I've said but they don't seem to care.
I've given up a few times as I feel I'm wasting my time but the start of this year I've felt worse than ever, on the 2nd I could barely walk, had to keep taking breaks just walking around my house, my depression hit an all time high and I honestly didn't want to live anymore, all because I felt so ill. I couldn't do anything just feeling in pain and empty. I keep getting new symptoms as of recently too, sometimes I'm walking and the first time it happened I thought I stepped on glass as the pins and needles in my feet were so sharp and painful. I've had a pain/twitch in my eye followed by blurriness for probably 7 weeks now!
I just don't know what to do anymore they are making me feel it's all in my head and I'm starting to believe it. I've been told by people to change doctors as they are pretty useless as a practice. But I feel that will send me backwards and the thought of more blood tests honestly destroys me, my veins are no more at this point haha.
If you've read this far thank you so much, feel like I have no one to talk to and who understands apart from my Dad (it took him 25 years to even get diagnosed) but it's hard to get answers with what's wrong when your doctors won't take you seriously. I don't want to self diagnose myself but at this point might have to, I don't know if I should push through to get diagnosed or leave it as all the stress from doctors make me worse.
I'm just posting this for basically support/advice as I feel like I'm past the point of giving up.
I've always suffered from severe brain fog, (sometimes cant speak, concentrate and take nothing in) and have chronic fatigue but never able to sleep at night. I just saw this as normal and just thought I was a pretty 'useless' person haha.
I first went to the doctors 7 years ago with sharp stabbing in my chest and I'd get a stabbing pain in it with the slightest touch and when breathing, they told me it was off an injury (but I suffered no injury) I put up with the pain but then I went back about 2 and a half years ago when it got unbearable. They gave me a blood test and I got a call saying I tested high for a blood clot on my lungs, I spent over 8 hours being tested and examined and they told me I didn't have one after all, then sent me on my way without any answers on why I was suffering the pain I was in.
Since then to this day, I have had countless amount of blood tests, about 20 last year alone. Doctors would refuse to see me as my Vitamin D was low so they were saying that the reason I'm in pain is because of that. They prescribed me high strength vitamin D tablets and I spoke to a pharmacist and he said that he doesn't know why the doctors even prescribed me with these as my vitamin D wasn't that low and nothing to worry about. I finally spoke on the phone to a doctor just before Christmas and he said he would refer me to a specialist but wanted ANOTHER blood test first and then he'd examine me then refer me to a fatigue specialist.
I finally saw light at the end of the tunnel, fast forward to my appointment (Monday just gone) he was the rudest man ever, snapping at me because I wasn't 'relaxing' enough when he was examining my movement, ignoring all my symptoms I was telling him, at one point he basically called me a liar because I was talking about how I'm exhausted nearly all the time yet can't sleep, I said when I do eventually get a 'decent' night sleep I feel worse for it and like I haven't slept at all. He said 'well which is it because if you can't sleep then how could you possibly sleep for the recommended hours' he then prescribed me (can't remember name as I haven't picked them up yet sorry - also have the worst memory haha) tablets to help me sleep, they'll apparently make me super drowsy where you can't drive and you can't get pregnant on them, he did ask me if I had children or was trying, I told him I'm getting married in 6 months and we will probably try after then (I'll be 29 after I'm married so I don't exactly have years left to try and start a family) and he said 'well on these you can't try'.
I got out of my appointment and cried my eyes out driving home, still NO answers what's wrong with me. I feel every time they'll focus on just one symptom, like I said I get a lot of heartburn when listing off all my symptoms, straight away tablets, chest pain? Here have some sertraline for your anxiety (which absolutely destroyed me I had to come off)
I never even heard of Fibro before until my Dad said he was diagnosed, and we are so similar and I have all the exact symptoms as him, the doctors know he has it too as I've said but they don't seem to care.
I've given up a few times as I feel I'm wasting my time but the start of this year I've felt worse than ever, on the 2nd I could barely walk, had to keep taking breaks just walking around my house, my depression hit an all time high and I honestly didn't want to live anymore, all because I felt so ill. I couldn't do anything just feeling in pain and empty. I keep getting new symptoms as of recently too, sometimes I'm walking and the first time it happened I thought I stepped on glass as the pins and needles in my feet were so sharp and painful. I've had a pain/twitch in my eye followed by blurriness for probably 7 weeks now!
I just don't know what to do anymore they are making me feel it's all in my head and I'm starting to believe it. I've been told by people to change doctors as they are pretty useless as a practice. But I feel that will send me backwards and the thought of more blood tests honestly destroys me, my veins are no more at this point haha.
If you've read this far thank you so much, feel like I have no one to talk to and who understands apart from my Dad (it took him 25 years to even get diagnosed) but it's hard to get answers with what's wrong when your doctors won't take you seriously. I don't want to self diagnose myself but at this point might have to, I don't know if I should push through to get diagnosed or leave it as all the stress from doctors make me worse.