Vision issues

[Deb530]

Have had FM for years. Diagnosed with Fuchs. My vision is troubling. Does anyone have this comorbidities condition?

 

[fimi]

Hi Deb and welcome!

I'm so glad you've joined us here on the forum

I don't have Fuchs dystrophy myself, only a cortical cataract which can cause blurring, but I can imagine the worry and frustration your condition must be causing you on top of managing the fibro.. Can I ask which stage you are at with it? And have they spoken to you regards treatment?

Nice to have you here with us Deb

 

[Deb530]

Thank you for answering. I’ve never been really told a stage. It’s only in the last 5 months my vision has been getting worse. It’s just frustrating. When I’m tired it is the worst

 

[fimi]

When I’m tired it is the worst

I can understand that - it seems a lot of symptoms can feel worse when we are tired or fatigued.

Have you tried glasses with special lenses such as photochromatic? They do help me a lot by putting less stress on my eyes from the light, and I know they are also recommended for your condition. I believe the wraparound ones are best for Fuchs.

I know eye condions can be worrying, and having fibro which can also give us ocular symptoms doesn't help us much.
But you are in a good place for support with the fibro and your eye condition.

Keep strong Deb

 

[Deb530]

Thank you so very much. I’ve had FM for 35 years. I do well with exercise and stretching. I take Cymbalta. It’s bad if I get too tired or overdo it
This eye thing is new and a little frightening. The reason I wondered about FM because it’s worse when I’m tired. I did get special prism glasses that help. Knowing you are not alone or crazy helps

 

[fimi]

You're welcome Deb

You're not alone or crazy at all - I totally get how things can become worrysome - I do it myself sometimes. I've had fibro for 29yrs - although it took them years to diagnose - and like you, I also began to worry about my eyesight. But, again like yourself, I do what I can to ease the strain on my eyes, keep in contact with my optometrist and keep up the allover fibro self care. So it sounds like we're both doing all we can.

Glad you've got the prism lenses to help. I know they are quite good for eye muscle weakness and and can help correcting vision.

I've always been terribly short sighted - even as a child, and suffered ptosis in one eye. I looked terrible on school photos and can remember not wanting to wear my glasses at school because I was too embarrassed!! That will teach me!

Anytime you want to chat or feel alone, I'll be here, and there are lots of other supportive members on here that will help you too.

 

[Cutiegirl]

Hi!

I am brand new here but I saw that you posted about having Fuchs corneal dystrophy. So your corneas are slowly dying. I was diagnosed with Fuchs 14 years ago and in the middle of the pandemic I received 2 corneal transplants (thank you to the donors!) and cataracts were 'fixed' in both eyes. Fuchs is inherited. My mother did not have fibromyalgia but she did have Fuchs. My fuchs got to the point that I couldn't drive at night, my font size on my laptop was up to a 16, and I had the typical drainage in the mornings (lots of blurriness). I was wearing very thick eye-glasses but still couldn't see well. Fortunately, I have an amazing eye specialist in Kingston, Ontario and not only do I have 20/20 vision (and only thin reading glasses) now but I can now see things at a distance, read books again, and easily do puzzles. I still need to do daily eye drops (prednisolone) so my body doesn't reject the transplants. Transplants are only good for about 10 years....but so worth it.

 

[Alta]

Maybe six years ago my husband was diagnosed with Fuch's and cataracts in both eyes. He saw a cornea specialist and had a cornea transplant and cataracts removed in each eye. He is doing good now.

 

[Cutiegirl]

Yes, the transplant is a real miracle!