squaregirl
Member
- Joined
- May 19, 2021
- Messages
- 15
- Reason
- DX FIBRO
- Diagnosis
- 04/2021
- Country
- US
I'm newly diagnosed with Fibromyalgia in April by a Rheumatologist after falling ill with a flu-like illness that was not the flu. Shortly thereafter, I developed weird neurological symptoms that have no known origin related to disease after MRI, EEG, EMG (all normal) and extensive blood panel (low vitamin D, detected ANA, anti-ds DNA detected but not high enough to suggest disease activity Rheumatologist does not suspect Lupus at this time). I was nervous that the following symptoms were related to MS but the neurologist who ordered my MRI is a specialist in MS and told me this problem is functional, the symptoms are the following:
electric shock sensation in head that affects vision (and sometimes hearing) causes a brief episode of blackness like a long blink and then vision comes back (I'm always conscious when it happens and can occur with nystagmus). I get phantom smells like a cigarette burning, only at night time for some reason. Lastly, I get sparks of white, blue, and red in my field of vision on and off through the day like an ocular migraine, but I've never been formally diagnosed for migraine. Has anyone had similar experiences and if so what treatment, if any helped resolve these problems? I am currently on amitriptyline and some of these symptoms have lessened slightly, but not 100%. Any advice is helpful. Thank you!
electric shock sensation in head that affects vision (and sometimes hearing) causes a brief episode of blackness like a long blink and then vision comes back (I'm always conscious when it happens and can occur with nystagmus). I get phantom smells like a cigarette burning, only at night time for some reason. Lastly, I get sparks of white, blue, and red in my field of vision on and off through the day like an ocular migraine, but I've never been formally diagnosed for migraine. Has anyone had similar experiences and if so what treatment, if any helped resolve these problems? I am currently on amitriptyline and some of these symptoms have lessened slightly, but not 100%. Any advice is helpful. Thank you!