treshayc
New member
- Joined
- Jul 2, 2015
- Messages
- 5
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- NC
- State
- NC
I don't really know where to post this. I guess I'm just venting about my worries so I'm putting it in here.
I've been in pain and dealing with fibro symptoms for almost 3 years now (I know many of you have suffered much longer). My psychiatrist (who also does primary care) has diagnosed me with Fibro using the tender points touch. That was at the beginning of all of this. But I doubted her at the time and sought out a new PCP.
I need to get in with a specialist, but have no idea what kind of specialist to see.
And honestly - I'm SOO afraid they'll say it's not Fibro. I'm not as worried that they'll say it's something more serious - I'm actually more afraid that they'll say it's nothing. All in my head...psychosomatic.
I've dealt with pain my entire life. Mental, physical and sexual abuse as a child, no one knew about it and still the pain I carry from that is invisible to the world. I've always felt very misunderstood because I had such deep mental pain from what I've been through but no one knows and I'm dealing with it alone.
Now I'm dealing with this pain, fatigue - some days I literally can't stay awake,"buzzing" feeling throughout my body. I try to explain what it's like and all I can think of is restless leg syndrome throughout my entire body. I also have mild jerking issues. I'll be sitting watching tv and trying to relax and that's when I get the twitches. I'm embarrassed about it so I always just act like I was moving my arm or leg.
I would love it if these symptoms all disappeared and I could go on living a "normal" life but they aren't going anywhere, they are getting worst.
Now my biggest concern is that I'll finally find a specialist and they'll say there is nothing wrong with me. I need to know what this is. I need it to have a name, I'm sick of not being able to participate in things and no one understanding why. When I say I'm too tired people think that means I need to get out and do more.
My mom says I need to stay positive and not focus on the pain. I'm going on vacation next week and worried I won't be able to keep up. I think it's a legitimate concern but my mom said if I think that way I will bring it on myself.
That makes me so mad. I wasn't thinking about being in all this pain when it started.
So, what if it's not Fibro? What if they say it's all in my head? I know it's not, my psychiatrist and psychologist feel that it's Fibro and before I ever brought it up my psychiatrist was diagnosing me with it so I know I'm not just making it up.
I just want to know what it is so I can tell people when they ask why I can't do certain things anymore.
I've been in pain and dealing with fibro symptoms for almost 3 years now (I know many of you have suffered much longer). My psychiatrist (who also does primary care) has diagnosed me with Fibro using the tender points touch. That was at the beginning of all of this. But I doubted her at the time and sought out a new PCP.
I need to get in with a specialist, but have no idea what kind of specialist to see.
And honestly - I'm SOO afraid they'll say it's not Fibro. I'm not as worried that they'll say it's something more serious - I'm actually more afraid that they'll say it's nothing. All in my head...psychosomatic.
I've dealt with pain my entire life. Mental, physical and sexual abuse as a child, no one knew about it and still the pain I carry from that is invisible to the world. I've always felt very misunderstood because I had such deep mental pain from what I've been through but no one knows and I'm dealing with it alone.
Now I'm dealing with this pain, fatigue - some days I literally can't stay awake,"buzzing" feeling throughout my body. I try to explain what it's like and all I can think of is restless leg syndrome throughout my entire body. I also have mild jerking issues. I'll be sitting watching tv and trying to relax and that's when I get the twitches. I'm embarrassed about it so I always just act like I was moving my arm or leg.
I would love it if these symptoms all disappeared and I could go on living a "normal" life but they aren't going anywhere, they are getting worst.
Now my biggest concern is that I'll finally find a specialist and they'll say there is nothing wrong with me. I need to know what this is. I need it to have a name, I'm sick of not being able to participate in things and no one understanding why. When I say I'm too tired people think that means I need to get out and do more.
My mom says I need to stay positive and not focus on the pain. I'm going on vacation next week and worried I won't be able to keep up. I think it's a legitimate concern but my mom said if I think that way I will bring it on myself.
That makes me so mad. I wasn't thinking about being in all this pain when it started.
So, what if it's not Fibro? What if they say it's all in my head? I know it's not, my psychiatrist and psychologist feel that it's Fibro and before I ever brought it up my psychiatrist was diagnosing me with it so I know I'm not just making it up.
I just want to know what it is so I can tell people when they ask why I can't do certain things anymore.