What is this? Pain in my face

Hopefullyyours

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I do get these other symptoms you talked about but for me it was mostly plantar fasciitis and I think this occurred before my fibro diagnosis or around the same time, honestly I don't remember. But a ton of people who don't have fibro get plantar fasciitis and so I don't think I considered it a fibro issue at the time. As far as weakness and pins and needles and swelling goes I have found that zero shoes are best for me and I also do foot exercises even now, mostly spreading my toes and crunching them up, if that makes sense. But the pins and needles also happen in my hands and I don't think they are a muscle issue, more likely a nerve issue for me. I used to get a lot of pain standing in my feet and on different surfaces it is different levels of pain but that has kind of been helped by doing these other things. For me my pain tends to happen standing still but isn't so bad when I walk so I try to keep moving instead of standing still.
Ohh wowww thx 4 tellin me. I will try zero shoes. Rn i use adidas supercloud foam slides. Soo soft n only cushion that sorta helps!! When ur feet hurt tho after standin or walkin, do they turn pink n swell n toes twitch?? Is urs just ball of feet to b4 heel? Mine isnt heel like ppl say. Mine do 5 min on my moms floor in cushioned shoes or in publix or walking round the block. Hense not doin that now.
 

Hopefullyyours

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Pss all i did was cut a potato today and my arm is noticeably weaker!! Right after. Idont get it cuz up till last 2 mos. I only had minor wkns sometimes nonee so if they say my muscles are weak, they werent doin this all year or two! I was doing all sortsa things w no problem!! Smh how in world could doing something i havent done in a long time, gettin up off floor, make my legs feel this week for 2mos and then my arms? Today feels like there are water baloons under back of my legs when i got up n walked. U ever feel that? I am queen of positivity but just feel not in control. I made sweetpotato chips but almost wished I didn't so i wouldnt have to see how it tires my right arm! Xoxo
 

JayCS

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As zero shoes I have roots ('of Canada') in the winter, hardly being manufactured any more tho,
in the summer & for sports what we call 'Chucks' here, 'basketball boots'; I see some on ebay labelled <canvas baseball basketball boots>.
and barefoot shoes in between. Cos my skin everywhere can only take natural materials they have to be made from cotton (Chucks) or leather.
Someone suggested the lowest adidas for sports, samba, not zero, tried them, but only needed 20 mins. to sense it wasn't low enough.
 

Affinity

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DX FIBRO
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I said zero shoes and they are called that sometimes but what I really mean is minimal shoes or barefoot shoes. Basically flat shoes with no cushion! It seems counter intuitive because at first the cushioning shoes seem more comfortable but I have learned for myself over time that the more minimal shoes help my feel get stronger and feel better.
 

WithMyLaserPun

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Sep 16, 2020
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04/2009
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DE
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LP
Hi there I hope I can help!

I have what feels very much like muscle weakness too sometimes and used to get it a lot more than I do now. I got tested for it, but they couldn't find any evidence of actual muscle weakness.

Muscle weakness is defined as either "true" or "perceived. The type is based on the cause. "True" muscle weakness describes a condition where the force exerted by the muscles is less than would be expected, for example muscular dystrophy, which is a disease that causes progressive loss of muscle mass. On the other hand, perceived muscle weakness, otherwise called non-neuromuscular weakness, describes a condition where a person feels more effort than normal is required to exert a given amount of force but actual muscle strength is normal. So, when I went to the hospital years ago, freaking out that I had lost muscle strength in my left arm and left leg, but got tested and the results were that when I pushed back when the Doctor was pushing on my leg and arm (to test the strength) was that both were exactly the same, yet I still felt like I had muscle weakness, I was told that I had the latter, perceived muscle weakness.

Do not panic. This is not damaging to you, it is not a sign that you have muscle degradation, it is not a "problem" but a very common and normal symptom for people with FIbromyalgia and CFS.

Personally, when I get this perceived muscle weakness, I just try not to do anything where I need to rely on my physical reactions (so I don't cycle) where I might need to push down with my arm or leg (or wherever the weakness is) just to be safe and make sure I don't hurt myself.

I totally understand how distressing this is, but as so often is the case it's just one of those annoying, but harmless, symptoms of Fibro. Definitely do get checked by a PT, but if they cannot detect any "true" weakness, and you do not have any other conditions that may cause this, then you can rest assured that this is just Fibro being a pain in the butt as usual. :)

I hope that helps! *gentle hugs* Lalu
 

JayCS

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DX FIBRO
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OTOH I like this differentiation, at least as a starting point, to make clear that it is not the real strength, not at first.
And I am also very careful when it comes on. I *do cycle all the time, cos I can rely on my muscles whilst I'm on the bike, just have to step down and not overestimate my strength and speed. But before I get on and esp. off the bike, I often wait for almost a minute until I feel that the strength is there in my legs. If I forget, I fall over, or almost. So I just want to stress: 'perceived muscle weakness' does *not mean it's just in our imagination. I am also sure that it is not a sensory issue. And would back that with the observation that I usually have to start panting like heck for a few minutes if I ignore the weakness even for only 1 or 2 minutes. It feels more like a problem of momentary energy and/or oxygen transfer to the muscles than one of "perception". Too many docs out there trying to tell us it's *all in the head...
Also of course if you start backing down from exercise and sports because of pain, too little energy and perhaps depression, then in the long run the muscles can suffer. In my case that's only been half a year, I was still pretty active right until the fibro knocked me down completely and I've still kept doing things as soon as it was possible in between. So there hasn't been that much to catch up on. I'm lucky/blessed with a lot of energy which helped me get a lot of help (but also a lot of very dud treatment) very quickly as well. But your mileage may vary. And getting into self-discipline or someone to help with this isn't a piece of cake, I'm sure, even if it's the only way out.
 

Hopefullyyours

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Messages
36
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Undiagnosed
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06/2020
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Hi there I hope I can help!

I have what feels very much like muscle weakness too sometimes and used to get it a lot more than I do now. I got tested for it, but they couldn't find any evidence of actual muscle weakness.

Muscle weakness is defined as either "true" or "perceived. The type is based on the cause. "True" muscle weakness describes a condition where the force exerted by the muscles is less than would be expected, for example muscular dystrophy, which is a disease that causes progressive loss of muscle mass. On the other hand, perceived muscle weakness, otherwise called non-neuromuscular weakness, describes a condition where a person feels more effort than normal is required to exert a given amount of force but actual muscle strength is normal. So, when I went to the hospital years ago, freaking out that I had lost muscle strength in my left arm and left leg, but got tested and the results were that when I pushed back when the Doctor was pushing on my leg and arm (to test the strength) was that both were exactly the same, yet I still felt like I had muscle weakness, I was told that I had the latter, perceived muscle weakness.

Do not panic. This is not damaging to you, it is not a sign that you have muscle degradation, it is not a "problem" but a very common and normal symptom for people with FIbromyalgia and CFS.

Personally, when I get this perceived muscle weakness, I just try not to do anything where I need to rely on my physical reactions (so I don't cycle) where I might need to push down with my arm or leg (or wherever the weakness is) just to be safe and make sure I don't hurt myself.

I totally understand how distressing this is, but as so often is the case it's just one of those annoying, but harmless, symptoms of Fibro. Definitely do get checked by a PT, but if they cannot detect any "true" weakness, and you do not have any other conditions that may cause this, then you can rest assured that this is just Fibro being a pain in the butt as usual. :)

I hope that helps! *gentle hugs* Lalu
Well I appreciate you so much! When my imternist pressed down etc she said i have weakness and goto p.t. but yes the p.t. place says they will do a neuroexam!! Prob more than neurologist lol. I went out today in 94 degrees which never woulda bothered me, and pooooof it wiped me out. Backs of my legs gettin out the car feel like big heavy water balloon sensation!!! Do u get that?? And for 2mo this isn't goin away. How long is a cycle supp.to last??
 

JayCS

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Messages
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DX FIBRO
Diagnosis
02/2020
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GE
Seems to me that wrong 'perception' does also not explain why whole body cryotherapy helps the fibro-ache, -stiffness and -weakness a lot?
When my imternist pressed down etc she said i have weakness and goto p.t.
but yes the p.t. place says they will do a neuroexam!! Prob more than neurologist lol.
And for 2mo this isn't goin away. How long is a cycle supp.to last??
An orthopedist pressed my arms up and down and I think he believed me that it's not strength. I'll see him in the pain clinic next week...
PTs doing *more of a neuroexam than a neurologist?! When a neurologist jabbed an electrode in my quadriceps and cried at me to tense it up even harder that was something a PT would never be allowed to do... OTOH it may be something more 'in between' - curious: keep us posted!
How long can a 'cycle' or 'flare' last? - lol - mine has lasted about a year all in all up to now. But cryotherapy is helping me get it down even to feeling really fit sometimes, at least temporarily.
 

Hopefullyyours

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Undiagnosed
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06/2020
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Seems to me that wrong 'perception' does also not explain why whole body cryotherapy helps the fibro-ache, -stiffness and -weakness a lot?

An orthopedist pressed my arms up and down and I think he believed me that it's not strength. I'll see him in the pain clinic next week...
PTs doing *more of a neuroexam than a neurologist?! When a neurologist jabbed an electrode in my quadriceps and cried at me to tense it up even harder that was something a PT would never be allowed to do... OTOH it may be something more 'in between' - curious: keep us posted!
How long can a 'cycle' or 'flare' last? - lol - mine has lasted about a year all in all up to now. But cryotherapy is helping me get it down even to feeling really fit sometimes, at least temporarily.
Yes i had the emg they said was fine last month! How did ur symptoms start out?
 

JayCS

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DX FIBRO
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Yes i had the emg they said was fine last month! How did ur symptoms start out?
Thanks for asking, interesting thinking about that. Originally, at least 4 years ago, I think more, I felt an ache everywhere quite often. Especially on holidays when outside a lot and there was a lot of wind - hurt so much it sometimes made me cry. We checked and supplemented D3 and B12. But it remained. So we vaguely thought of fibro.
(I still take D3, but having had 5mg B12 injected brought it up to 2700, normal is 700, so docs said - doesn't matter, but not necessary.)
Also at least about the last 6 years or so my wife kept plugging going to a rheum. cos I always walked as stiff as a very old man with rheum. after getting up, especially at night. Always just thought it's my back and age, cos it went away after 3-10 minutes.
We never really connected the ache and the stiffness, thought it was 2 things.
But last year she warned me of the approach of autumn/winter and I felt it was getting out of control, could only drag myself thru a workday, plus got a tough flu in the autumn. The first rheum. in autumn sent me to check gut and MRI (which then showed a probably 'harmless' neoplasm in my spinal canal) and concluded it's not ankylosing spondylitis, the bloodwork showed it's not inflammatory, and it's not fibro (not very good reasoning tho), sent me to check neuro (emg...) & hormones, which both didn't find anything. As pretty much my whole body was revolting with pains everywhere I stopped working, tried unsuccessfully to get help from orthopedists, made it even worse, and went to almost every specialist, cos everything in me has something, plus applied at a centre for rare/unknown illnesses. That was my way down. On the way up I've got all my pains and tiredness pretty much under control again with osteopathy and acupressure and dentist, but the stiffness is still very much there, and the ache, quick exhaustibility, sleeping problems and cold-sensitivity will make trying to start work end of next month very hard or praps impossible, even tho whole body cryotherapy keeps them down now as long as I'm not doing too much.

Seeing the thread-title and looking at your original post I think I haven't answered that yet properly:
After 6mo, my arms felt week holding them up doing my yoga!! ...
I yawned real exxagerated like and felt pain in my face. Like the cheekbones, chin etc. I did yawn again wondering why i felt that and felt it again. Now 5days later, still feel pain in my face even touching it. Plz reply if u have any words 4me! ...
I am lil scared feelin all these things.Xo, me.
I have to limit yoga and any holding up my arm(s) to under 30 secs. to be able to keep under their weakness, exhaustion and pain limits. Even Qi Gong sideways movements in the rheum. clinic was a big problem, I had to break off, altho the fibro women and a fibro man didn't have to. And again it's not real weakness, cos I can do machine weight training with a lot of weight in the same amount of time, without more problems, it's less, because the arms then come down/back longer and movement is better than holding. The exhaustion comes from the length of the position not the strength applied. (Same as the stiffness.)
Pain in my face and everywhere I got in the clinic when I did their progressive muscle relaxation in my face and everywhere. Not every time, but (I think) when my muscle system had been slightly over-exerted. So I did autogenic training instead, that did the trick.
Pain in my jaws for a few years now, I thought trigeminus and/or fibro, but checked all the same: 2 root imflammations - treatment - gone....
I wasn't scared of these feelings, I accepted them (had pain all my life anyway), analysed, asked people and got/resolved at least the pains inside of half a year. If I'd've been scared of them, I wdn't've looked at them properly and'd still have them... :)
 

Hopefullyyours

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Wowww thx 4 sharing!! My first syptom was the holdin up arms for yoga and after 15sec it was hurtin n weak. Its soooo interesting bout the slight exertion of muscle u spoke of. I havent done any exercise since one yr and now outa the blue with tryin to get up and down off floor one day and 4min on exercise bike, my limbs starting in calves, then thighs, then arms are soooo heavy n weak just putting on pants! Walkin the stairs makes it worse. Mri is Thursday and first PT this week but ty so much 4 sharing w me. Ps2 months now and no relief even w rest
 

Hopefullyyours

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And i walked outside today just 20 feet under the sun and poof, so heavy my shoulders neck area soooo weird.. cryo sounds amazing cuz heat is worse 4 me and i live in Fl
 

sunkacola

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And i walked outside today just 20 feet under the sun and poof, so heavy my shoulders neck area soooo weird.. cryo sounds amazing cuz heat is worse 4 me and i live in Fl
Good for you for taking a walk!

Here's something that might help. Rather than paying a lot of attention to how tired or heavy you feel after taking a walk or doing some kind of exercise, instead pay attention to the fact that you are getting some exercise. Focus on the positive aspect of that, in other words, rather than going on about the negative part of it. Really, if you do it will help.

An example might be to tell yourself you did a great job, have a glass of some kind of fruit juice you love, and then sit down and write in to the forum that you took a walk today and are proud of yourself, and that you plan to see if you can go 10 feet farther by the end of the week. We will chime in and say Good For You, you can do it! That is healthier than focusing on the fact that it made you feel heavy or tired.
 

JayCS

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Messages
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DX FIBRO
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GE
And i walked outside today just 20 feet under the sun ... cryo sounds amazing cuz heat is worse 4 me
plan to see if you can go 10 feet farther by the end of the week.
And how about waiting till the sun's gone down or probly better before it goes up, and taking a 30''-1' ice cold shower (without warm) before?
 

Hopefullyyours

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Messages
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Good for you for taking a walk!

Here's something that might help. Rather than paying a lot of attention to how tired or heavy you feel after taking a walk or doing some kind of exercise, instead pay attention to the fact that you are getting some exercise. Focus on the positive aspect of that, in other words, rather than going on about the negative part of it. Really, if you do it will help.

An example might be to tell yourself you did a great job, have a glass of some kind of fruit juice you love, and then sit down and write in to the forum that you took a walk today and are proud of yourself, and that you plan to see if you can go 10 feet farther by the end of the week. We will chime in and say Good For You, you can do it! That is healthier than focusing on the fact that it made you feel heavy or tired.
Very true! I was very happy I did it but telling you the effects of the heat and sun to see if u share them. It is very peculiar.
 
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