What made you think you had fibromyalgia?

[Mommanicole2]

I've had pain that has been getting worse for 3 years now. It is to the point where it is every day, and I have just about every symptom that goes along with it. I have an appointment tomorrow, and hoping to get some answers. I was just wondering what led to the diagnosis for you?

 

[1sweed]

I would say what lead to my diagnosis was years of searching for the reason behind my weakness in my muscles and the weird pain I was experiencing in my head and back, and legs. I saw many neurologists until I was sick to death of the lot of them. Most were rude and made fun of me. Finally I was sent to a rheumatologist, at Cleveland Clinic, who diagnosised me with fibro. However, other doctors disagreed and said it was nothing. Finally I saw another rheumatologist and he reconfirmed the fibro. So a long list of doctors lead me to my final diagnosis.

If you mean't what symptoms, it was pain and numbness, sight problems and odd feelings, weakness in my legs and hands, and arms. Being tired all the time and sometimes being to weak to move. I thought I had MS, but it was fibro in the end.

By the way welcome to the forum.

 

[twiztc]

I have had various pain most of my life. Legs and back always the worst but it came and went.
When it started with the coming and less of the went- ing I was getting more concerned.
Mum was ill with something mobility related and because I was estranged from my family at the time didn't know much about it. When we did get back together I found we shared a lot of symptoms. She got diagnosed with it. Some years later I got so bad and could hardly walk. I'd got a new doctor and he sent me to a specialist who then diagnosed me with the same damn thing. I was just hoping it was a problem that could be fixed like a trapped nerve in my back, I really didn't want to follow my mothers footsteps.

 

[CVSessions]

What made me think I had Fibro?

My Doctor back in 2003 touched several tender points on my body and when I almost started screaming he told me I had Fibromyalgia. My first response was to laugh and say "Isn't that a psychosomatic disease?" He explained it and I got some books from the library I work at and got a different view. I don't think I wanted to believe it though.

A few years later I was diagnosed with Type 2 Diabetes which can also cause nerve pain, but it is different pain from the Fibro.

 

[mariposa]

I've had pain that has been getting worse for 3 years now. It is to the point where it is every day, and I have just about every symptom that goes along with it. I have an appointment tomorrow, and hoping to get some answers. I was just wondering what led to the diagnosis for you?

How did this appointment go for you, Mommanicole? Were they able to give you the answers that you wanted, or find out what's going on with you? And if you've been diagnosed, how are your doctors planning to treat? Whoa, three questions in a row... sorry. I do hope you check back in with "the rest of the story" though!

 

[Ohyesuare]

I know my mom was in pain for many years until she was diagnosed with Fibromyalgia. She never could get steady work and always seemed to be in a bad mood from the pain I guess. It is hard to know more because she didn't really talk about it that much. When the doctor finally diagnosed her with it and she went on the medication she seemed to get a lot better.

 

[SulaBlue]

What did it for me was putting off getting a new bed. I knew my old one had a dip - heck, we'd bought these inflatable bladders to push the dip up. I knew it was making my back worse.

Then I got a new bed, and while my back was WAY better, that's when I realized I was hurting everywhere else. It was like taking away that one intense focus suddenly made it clear that it wasn't JUST my back. And that yes, my hands and feet really WERE that sore and stiff, and swollen feeling even if I hadn't been walking around or using my hands a whole lot the day before. And the fact that I've had to sleep with a pillow between my knees because it was excruciating for the inside of my knees to touch... and things just started to fall into place since my mom has had fibro for years.