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TiredInNC

New member
Joined
Oct 12, 2015
Messages
1
Reason
DX FIBRO
Diagnosis
03/2000
Country
US
State
North Carolina
Hi Everyone,
I am new here. I have been dealing with Fibro since the late 1990's. I was taking Elavil for sleep for years. I was sleeping well with it but still having pain. About a year and a half ago my Doc took me off of it so I could take Zoloft in the day. I also suffer from bad PMS and depression. I tried Ambien but found myself wide awake at 3am and a Zombie all day. Not good. Then he switched me to Restoril 15mg. It seemed to work well for me but had to up the dose to 30 mg after a few months. I am currently taking 30mgs of Restoril with 300 mg of Gabapentin, 10 mg of Flexeril along with melatonin and Valerian root. I sleep pretty well most nights BUT my pain and exhaustion has gotten soooo much worse in the past year and a half. I have also recently developed chronic pain in my ear (no infection) and pain in front of my ears and frequent tension headaches. My Dr says I have TMJ now too. JOY.

I have read numerous articles which suggest that the Restoril reduces time spent in deep sleep and am wondering if that is why I have gone downhill so badly. Or perhaps it is because I am getting older. I will be 44 this January. I have not really found a good DR in my area who is an expert on Fibro. No medication I have tried has helped me much at all. I do not have the luxury of relaxing all day. My days can be quite physical and I feel like I am living in hell.

I would love to hear what others are using to get a good night's sleep. What combos have worked for you?

PS. I cannot go back to the Elavil as I get really bad RLS from it now and I tried Trazadone. By itself it was horrible, up and down all night and when I tried it with the Gabapentin I woke up in the middle of the night with a tremendous headache.

TY
 

brahmatorry

Active member
Joined
Mar 4, 2015
Messages
75
Reason
DX FIBRO
Diagnosis
06/2012
Country
ind
State
sumatera selatan
I take amitriptylin for 4 year side effect include day time fatigue. For the pain i suggest devil claw . It help ease the pain.
 

DK_engineer

Very helpful member
Joined
Jun 20, 2015
Messages
579
Reason
DX FIBRO
Diagnosis
05/2015
Country
US
State
OR
I take trazodone and flexeril at night. It usually works pretty well for me and I don't feel sleepy during the day. Sounds like trazodone is not an option for you though.

I'm also careful about caffeine intake. No caffeine after noon.
 

KatInATardis

Member
Joined
Sep 27, 2015
Messages
28
Reason
DX FIBRO
Diagnosis
11/1994
Country
US
State
TX
I have had trouble finding a medicine that doesn't make it super hard for me to wake up - having a young child I want to be able to wake up quickly and easily if needed.

Amitriptylin worked really well for me for a little while - but then I started noticing that my OCD symptoms were returning fiercely. I struggled horrible with OCD in my late teens/early twenties and was very sick - mentally and physically due to it. I made the decision to live with my insomnia than have the OCD get out of control again.

I did cut out caffeine for a long time but have been having some caffeinated drinks again lately.
 
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