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Jherrera

New member
Joined
Nov 21, 2016
Messages
2
Reason
DX FIBRO
Diagnosis
11/2007
Country
US
State
SC
Hi everyone. I'm new here but not new to fibro. Diagnosed in 2007.

I've been seeing just s neurologist and a pain management doc for years and feel in a rut with treatment quality of life is manageable but definitely not great. I've been debating going back to a rheumatologist and also considering asking for a script for physical therapy or getting serious about working regularly with a massage therapist that does myofascial release/TRPs.

I'm curious what type of doc you find has improved your qualiy of life the most as well as truly listens & "gets it". My neurologist does but we don't try new things to make life any better.

Thoughts?

Thanks guys!
 

shinysparkles

New member
Joined
Nov 21, 2016
Messages
1
Reason
DX FIBRO
Diagnosis
04/2008
Country
us
State
ok
Rheumatologist most definitely. I was lucky and found a good one. But nothing will really get better. Its a viscous cycle of existence while you wait to di e.
 

Hsmommy

Active member
Joined
Apr 30, 2016
Messages
34
Reason
DX FIBRO
Diagnosis
04/2016
Country
CA
State
Alberta
My regular general practitioner. For those in other countries, that's your regular family doctor. We do have a fabulous pain clinic here. My GP implements their recommendations & we go from there.

Hsmommy
 

Eyesup

Senior member
Joined
Dec 11, 2015
Messages
376
Reason
DX FIBRO
Diagnosis
12/2015
Country
US
State
Florida
Try researching your area for doctors that are familiar with treating fibromyalgia. A reumotolgist I would think would be your best bet as fibro has been dumped in their laps by the medical association (at least here in the US) causing them to at least get trained on it. But still yet I would find one that really has exsperiances with treating it and believing in it.
I know of a women that uses nothing but supplements and a bi-weekly therapeutic message and says it does better then the meds she tried. We are all different so trying new ways to manage the disease is your best hope.
Sorry shinysparkles, I disagree that it doesn't get better. The right treatment can change your pain level and improve your quality of life. I know because I suffered for years without a diagnosis and last year I became completely deabilitated. A new doctor (reumotolgist) diagnosed me and started me on gabapentin. It did take time and mg adjustments and I have added all kinds of supplements but I am off a pile of pillows! I hope in time my body will start healing itself. Never give up hope for a cure.
 

DK_engineer

Very helpful member
Joined
Jun 20, 2015
Messages
579
Reason
DX FIBRO
Diagnosis
05/2015
Country
US
State
OR
I agree with Eyesup. I think it is actually more important to have a doctor that understands what fibro is and what it isn't. You not only want someone who takes fibro seriously, you want someone who won't chalk every odd symptom up to fibro, whether it makes sense or not. It is possible to have fibro + other conditions which need to be treated as well.
 

Forgetmenot

Extremely helpful member
Joined
Oct 6, 2014
Messages
1,408
Reason
DX FIBRO
Diagnosis
70/2010
Country
UK
State
Hertfordshire
My gp.he is the best support I have.
 

ElsaMarie

New member
Joined
Nov 17, 2016
Messages
5
Reason
DX FIBRO
Diagnosis
03/2002
Country
US
State
Indiana
I would have to say my pain doc has been the most help. Initially I started going to him for the three ruptured discs in my low back and then we began discussing the fibro.

He said in his opinion there is no "magic pill" for the fibro symptoms; he already had me on an opiate, a muscle relaxer, and Lyrica so there wasn't anything to add.

From time to time I get injections for pain either in my low back or my neck and shoulder area. The injection contains a bolus of a numbing agent, a steroid, and something else. I always feel quite a bit better as for my aches and pains after I get the injection and I know that is from the steroid.
 

DoobieBrother

Active member
Joined
Dec 5, 2016
Messages
58
Reason
DX FIBRO
Diagnosis
10/2008
Country
Can
State
PE - Prince Edward Island
Pain Specialist. Was lucky enough to get into see this guy, it was he who diagnosed my FM. My G.P. (old) was useless.
 

brandib819

Active member
Joined
Dec 7, 2016
Messages
55
Reason
DX FIBRO
Diagnosis
03/2008
Country
USA
State
FL
I started out with a rheumatologist but he wasn't as knowledgable as I would have hoped so my general practitioner referred me to a pain management specialist who was. I think I got lucky though. It may just depend.
 

DebbieYoung

New member
Joined
Dec 14, 2016
Messages
2
Reason
DX FIBRO
Diagnosis
00/0000
Country
Us
State
Md
My best doctor was an anesthesiologist in California named Dr. Druet. He diagnosed me and treated me. I moved to maryland, excited to have Johns Hopkins Dr, and it's a joke! Sent me to Kernan great doctor, but no longer in my network. Hopkins primary care doctor gave me a referral to a reumotolgist at Johns Hopkins and they are not accepting chronic pain patients. Sorry, about the rant, but anesthesiologist I think for me had worked.
 
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