Tiara
New member
- Joined
- Dec 25, 2020
- Messages
- 3
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- US
- State
- AR
I am twice widowed. Both lucky and unlucky in love. My first husband's death 13 years ago was very traumatic and bloody. Some symptoms of PTSD from it. And stress problems with fatigue insomnia. cortisol swings. depression and anxiety. I was lucky to find love again. Much of this resolved with my second husband and happiness. We both exercised, had a healthy diet, walking the many hilly trails here for an hour 3-6 days a week. Both seldom sick. Then I got Lyme, not dx'd for months as wasn't supposed to be in this area. Then aretinal detachment, was healing and back on trails when my husband started getting sick. He was dixd with a bone marrow disorder not expected to become leukemia. Then he got Rocky Mtn Spotted Fever--I HATE ticks! That depleted his body and confused his dx of leukemia as similar symptoms. Not believed to be ttriggered by the RMSF. He died in my arms 4 years ago.
Grief was bad enough but I had fallen and dislocated an elbow, had some disc decompression therapy and was both anxious and depressed. I started to pick up about 2 years after but the loss of 2 good friends through life taking us in different directions, the last dog of the bloodline I had bred with my first husband and I was crashing.
I've had symptoms of waking with a stiff neck and body. aching but not sharp pains usually, still tired, brain fog and fatigue since Lyme. Symptoms of this and other things come and go. I was showing signs of low cortisol about 18 months ago and short term low dose prednisone helped. Still occasional use.
I've researched online about FM/CFS/ME as well as issues I've had lifelong but either low grade or varied with stress, happiness and such. POTS/OE, I have symptoms of EDS hypermobility, some symptoms of mast cell issues. I'm at the low end for most of these spectrum issues but cumulatively they are a pain in the backside.
I was improving then then covid and all the social/political turmoil roared in. A friend and I are roommates for duration or perhaps longer as compatible, good emotional support and checking each other but we are both down, missing people and worried about so many things. We're both retired, as safe as possible from the virus, understand each other's physical and mental health issues
I don't know how much is grief and stress and would aave resolved more if not for covid etc. I was improving.
BUt I feel flat. no motivation to do the hobbies I formerly was very busy with. It doesn't feel like 'normal' depression if that makes sense. It doesn't feel quite like any combo I've had before.
For the muscle aches and stiffness, low doses of gabapentin help as does a low dose of clonazepam. Both work on GABA receptors. Mood and energy a bit better with these but larger doses of either make me groggy.
While I feel miserable--feeling empty can be a pain of its own. most of my symptoms are on the low end of the spectrums but add up to little quality of life. Several antidepressants have not helped or made me feel worse.
Overall I'm seldom sick, health stats with doc are good and better than most my age. Some days I feel quite good but if I push too hard may crash later. Diet is good, could be better but lacking motivation and appetite for veggies. do take vitamins and green food powders to compensate.
I don't often have the sensitive spots that seem to be considered needed for a dx but many other symptoms. I feel like a pale shadow of my former energetic self.
While my PCP generally listens to me, I'm not sure she'd believe me for testing as I'm fairly low on the spectrum. And if I am dxd, is there much prescription meds can do that I'm not doing? I can check for diet, OTC supplements, and do want to get back to exercising more again, walking about half an hour 3 days a week and sometimes on my roomies treadmill when I have the energy
Does this sound like FM? I forgot i'm also taking low dose naltrexone, 3 mgs at night, it helps some with aches but is subtle
Grief was bad enough but I had fallen and dislocated an elbow, had some disc decompression therapy and was both anxious and depressed. I started to pick up about 2 years after but the loss of 2 good friends through life taking us in different directions, the last dog of the bloodline I had bred with my first husband and I was crashing.
I've had symptoms of waking with a stiff neck and body. aching but not sharp pains usually, still tired, brain fog and fatigue since Lyme. Symptoms of this and other things come and go. I was showing signs of low cortisol about 18 months ago and short term low dose prednisone helped. Still occasional use.
I've researched online about FM/CFS/ME as well as issues I've had lifelong but either low grade or varied with stress, happiness and such. POTS/OE, I have symptoms of EDS hypermobility, some symptoms of mast cell issues. I'm at the low end for most of these spectrum issues but cumulatively they are a pain in the backside.
I was improving then then covid and all the social/political turmoil roared in. A friend and I are roommates for duration or perhaps longer as compatible, good emotional support and checking each other but we are both down, missing people and worried about so many things. We're both retired, as safe as possible from the virus, understand each other's physical and mental health issues
I don't know how much is grief and stress and would aave resolved more if not for covid etc. I was improving.
BUt I feel flat. no motivation to do the hobbies I formerly was very busy with. It doesn't feel like 'normal' depression if that makes sense. It doesn't feel quite like any combo I've had before.
For the muscle aches and stiffness, low doses of gabapentin help as does a low dose of clonazepam. Both work on GABA receptors. Mood and energy a bit better with these but larger doses of either make me groggy.
While I feel miserable--feeling empty can be a pain of its own. most of my symptoms are on the low end of the spectrums but add up to little quality of life. Several antidepressants have not helped or made me feel worse.
Overall I'm seldom sick, health stats with doc are good and better than most my age. Some days I feel quite good but if I push too hard may crash later. Diet is good, could be better but lacking motivation and appetite for veggies. do take vitamins and green food powders to compensate.
I don't often have the sensitive spots that seem to be considered needed for a dx but many other symptoms. I feel like a pale shadow of my former energetic self.
While my PCP generally listens to me, I'm not sure she'd believe me for testing as I'm fairly low on the spectrum. And if I am dxd, is there much prescription meds can do that I'm not doing? I can check for diet, OTC supplements, and do want to get back to exercising more again, walking about half an hour 3 days a week and sometimes on my roomies treadmill when I have the energy
Does this sound like FM? I forgot i'm also taking low dose naltrexone, 3 mgs at night, it helps some with aches but is subtle