Cheryl Ann
Senior member
- Joined
- Aug 20, 2015
- Messages
- 221
- Reason
- DX FIBRO
- Diagnosis
- 04/2013
- Country
- US
- State
- MI
I'm worried about getting a flu shot. Many of you have talked about having large swellings at the site of the injection.
I have some new (new to me) autoimmune disease that they haven't identified yet. It causes extreme swelling. My GP said he thinks it has to do with my synovial tissues; that they are becoming inflamed. The first thing he thought of was RA. He sent me to my rheumy.
She ordered x-rays of my hands and wrists and also repeated the RA blood test that I have had 3 years in a row now. I understand why though. You never know what will be next or "when the other shoe is going to drop". Anyway, those were negative!
I know she is testing for an arthritis caused by Ulcerative Colitis. I think she has requested testing for Multiple Connective Tissue Disorder too. I'm not sure if she requested testing for Lupus.
I had the top notch, the best doctor in SWMI (Southwest Michigan) but one of the hospitals in town bought his private practice over the Labor Day w/e. I don't know where he is and due to a non-competitive law, he is unable to set up his private practice within 25 miles of his previous practice. While that's a real stinker, Id drive 45 min to see that doctor.
Meanwhile, the hospital hired a young woman right out of college. She was brilliant, thorough and kind. Both my husband and I really liked her. Unfortunately, she was only filling in temporarily...until Nov but she's already gone. She went back to Georgia :-(
I'm waiting for a new rheumatologist to move in and figure out his schedule.
I hope he graduated top of his class and has a great bedside manner.
The temporary rheumy wants me to start on Humira after I undergo the tests to make sure I don't have TB, which I've done and have come back negatory.
The reason she wants me to go on it is bc the drugs I am taking (lots of 'em baby, prob just like most everyone on this forum) don't work so great when I have a flare. Besides debilitating pain, I also have that darn extreme inflammation, which can be more debilitating than the pain maybe. I don't know. Maybe its a combination of the two. Did I already tell you that? Boy! My memory!
Anyway, have you seen the commercials for Humira? Its a biologic which means it slows down your immune system since that is what is attacking you. However, it also means that you will be highly, yes highly, susceptible to most any illness, incl. TB and cancer.
Here's an excerpt taken from the internet: "Some people using Humira have developed a rare fast-growing type of lymphoma (cancer). This condition affects the liver, spleen, and bone marrow, and it can be fatal. Humira can also lower blood cells that help your body fight infections and help your blood to clot. Serious and sometimes fatal infections may occur during treatment with Humira."
Has anyone ever taken Humira or had this extreme inflammation?
I have some new (new to me) autoimmune disease that they haven't identified yet. It causes extreme swelling. My GP said he thinks it has to do with my synovial tissues; that they are becoming inflamed. The first thing he thought of was RA. He sent me to my rheumy.
She ordered x-rays of my hands and wrists and also repeated the RA blood test that I have had 3 years in a row now. I understand why though. You never know what will be next or "when the other shoe is going to drop". Anyway, those were negative!
I know she is testing for an arthritis caused by Ulcerative Colitis. I think she has requested testing for Multiple Connective Tissue Disorder too. I'm not sure if she requested testing for Lupus.
I had the top notch, the best doctor in SWMI (Southwest Michigan) but one of the hospitals in town bought his private practice over the Labor Day w/e. I don't know where he is and due to a non-competitive law, he is unable to set up his private practice within 25 miles of his previous practice. While that's a real stinker, Id drive 45 min to see that doctor.
Meanwhile, the hospital hired a young woman right out of college. She was brilliant, thorough and kind. Both my husband and I really liked her. Unfortunately, she was only filling in temporarily...until Nov but she's already gone. She went back to Georgia :-(
I'm waiting for a new rheumatologist to move in and figure out his schedule.
I hope he graduated top of his class and has a great bedside manner.
The temporary rheumy wants me to start on Humira after I undergo the tests to make sure I don't have TB, which I've done and have come back negatory.
The reason she wants me to go on it is bc the drugs I am taking (lots of 'em baby, prob just like most everyone on this forum) don't work so great when I have a flare. Besides debilitating pain, I also have that darn extreme inflammation, which can be more debilitating than the pain maybe. I don't know. Maybe its a combination of the two. Did I already tell you that? Boy! My memory!
Anyway, have you seen the commercials for Humira? Its a biologic which means it slows down your immune system since that is what is attacking you. However, it also means that you will be highly, yes highly, susceptible to most any illness, incl. TB and cancer.
Here's an excerpt taken from the internet: "Some people using Humira have developed a rare fast-growing type of lymphoma (cancer). This condition affects the liver, spleen, and bone marrow, and it can be fatal. Humira can also lower blood cells that help your body fight infections and help your blood to clot. Serious and sometimes fatal infections may occur during treatment with Humira."
Has anyone ever taken Humira or had this extreme inflammation?