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PJsleepy

Member
Joined
Feb 27, 2015
Messages
22
Reason
DX FIBRO
Diagnosis
06/1997
Country
UK
State
Gloucestershire
Hi,
I'm 43 and from the UK...
I am married with five little dogs... I have many hobbies, sadly a cold winter has stopped me creating in my art room for some months now, I am guessing you all understand why! HA
I was diagnosed with FMS and ME in 1997 and had been ill for years befor that, mine has been progressive :|
I have been isolated in my own home for years, I am sick of seeing the same four walls, and having no one to chat to! Don't get me wrong my Hubby is my everything, but I miss other people...
I also suffer with anxiety and agoraphobia , so getting a life is not an easy thing to do...
My Mum past away nearly a year ago, and I am having trouble finding any meaning to anything, on really bad days, I wonder what the point is:roll:
Anyways, that's a bit about me...

((( WAKE UP!))) I have finished my intro:lol:
 

Forgetmenot

Legendary member
Joined
Oct 6, 2014
Messages
1,549
Reason
DX FIBRO
Diagnosis
70/2010
Country
UK
State
Hertfordshire
Hello pj, welcome to the site. I'm uk to. Loss I g someone close takes years to deal with so don't beat yourself up over that,
Many many ppl here are sick of being stuck inside. If it wasn't for my daughter and dogs Id not go out at all on a bad day.
Look forward to hearing about your art work , and if u need to vent we are always here x
 

cmetryme

Extremely helpful member
Joined
Nov 3, 2013
Messages
1,030
Reason
DX FIBRO
Diagnosis
03/2008
Country
US
State
TX
Welcome PJ! I can tell already your going to be a great addition to our family. First with the

Smiles you post it, shows you are a creative person. And the wake up shows your fun to be around. Your husband must be laughing and joking with you all the time. Am I right?
I also feel your going to be helping others here a lot. Why because much like you we all here need to chat and learn from each other.
You say:I am sick of seeing the same four walls. I too am the same way! Then I learned. I can suffer in pain anywhere. So I make myself go out. Bars ,poker,casino, long drives but never never to a relative. You wonder why you not creating art? You see the same four walls! Paint the dam walls.I did and it got alot of aggression out of me. For me, my 4 walls, was my fence in the backyard. Yes I was worried about the neighborhood and what they thought at first. Then in tiny letters I wrote kiss my azz. Lmao. Now I go out and think everyday how nice it was and how relaxing it was to do it. Took me for ever to do it. I had maybe 1-2 hours before the sun would be down. You see PJ I have lupus in my skin. So the sun burns me and it cause's big red welps. That itch like hell in fire.

You say: I am having trouble finding any meaning to anything, on really bad days, I wonder what the point is? That is a good question for all of us to answer. Your new friends will give you some good reasons. Sounds like a good new thread to start! I wait to give my answer when you post your new thread.

So glad you found us! Stay well my friend!
 

PJsleepy

Member
Joined
Feb 27, 2015
Messages
22
Reason
DX FIBRO
Diagnosis
06/1997
Country
UK
State
Gloucestershire
Hello pj, welcome to the site. I'm uk to. Loss I g someone close takes years to deal with so don't beat yourself up over that,
Many many ppl here are sick of being stuck inside. If it wasn't for my daughter and dogs Id not go out at all on a bad day.
Look forward to hearing about your art work , and if u need to vent we are always here x

[/Hi forgetmenot:-D, nice to see another from the UK, don't know about you but there is zero support in my area:cry:
I lost my Dad 11 years ago and I am still finding that hard, then my Mum past away, in March the day before my Dad did! I have lost them both quite young (them and me) I was Mums carer as she had MS, and that's why I feel so lost, I am now left trying to take care of myself...I have no children nor would I wish my life on them, I have no family left, it's just me and my Husband, and my little fur babies:-D
My Mum although paralysed from the neck down, would light up a room with her smile, and was so loving, caring and such a bright light to everyone she touched, I miss our special bond, and miss the kick up the arse she gave me when I got down.... However I am doing OK, I am still here, and fighting on, just need to work out why lol
The reason I am sick of being stuck inside is because I have agoraphobia and going out courses so much anxiety, I have to dose myself up on diazepam just to get to dentist or doctors, so going out for fun things is a major challenge , and may go out once every six weeks or so, then I pay for it for three days, but it's worth it I guess, since Mum died I have lived in my bedroom, to tired and in to much pain to move out my bed, but I am sure the spring/summer will give me the energy to get up and about again... The sun makes all the difference...
I glad you have a Daughter to help bring much need joy to your life, having children is a true gift, one I will never get to have, but we live just across from a play park , and just listening to there laughter as they play lifts the spirits... ((( hugs ))) to you both xxx
 

PJsleepy

Member
Joined
Feb 27, 2015
Messages
22
Reason
DX FIBRO
Diagnosis
06/1997
Country
UK
State
Gloucestershire
Welcome PJ! I can tell already your going to be a great addition to our family. First with the

Smiles you post it, shows you are a creative person. And the wake up shows your fun to be around. Your husband must be laughing and joking with you all the time. Am I right?
I also feel your going to be helping others here a lot. Why because much like you we all here need to chat and learn from each other.
You say:I am sick of seeing the same four walls. I too am the same way! Then I learned. I can suffer in pain anywhere. So I make myself go out. Bars ,poker,casino, long drives but never never to a relative. You wonder why you not creating art? You see the same four walls! Paint the dam walls.I did and it got alot of aggression out of me. For me, my 4 walls, was my fence in the backyard. Yes I was worried about the neighborhood and what they thought at first. Then in tiny letters I wrote kiss my azz. Lmao. Now I go out and think everyday how nice it was and how relaxing it was to do it. Took me for ever to do it. I had maybe 1-2 hours before the sun would be down. You see PJ I have lupus in my skin. So the sun burns me and it cause's big red welps. That itch like hell in fire.

You say: I am having trouble finding any meaning to anything, on really bad days, I wonder what the point is? That is a good question for all of us to answer. Your new friends will give you some good reasons. Sounds like a good new thread to start! I wait to give my answer when you post your new thread.

So glad you found us! Stay well my friend!

Hi cemtryme...
My Husband is just a good Man, he looks after me, supports me, and yes makes me laugh, but he is not what I call a joker, we are very similar and we both look after each other, even though his family are still alive and kicking they don't know the real him, we know everything about each other, and his family are very dismissive of my illness, and don't want him tied to someone like me! :confused:
I am very very very creative lol I have my art room, and get upto all sorts, the messier the better... Although I love to paint with oils, and had quit a promising carer befor I got to ill to paint:cry: Due to the high degree of pain I suffer in my neck shoulders and back, painting now is a challeng, but you know sometimes, you just have to do your thing lol I will share some of my work with you all at some point...

I have been stuck in my house for over ten years, I have painted the wall many times, I have wallpapered and tiled you name it I have improved it, but I am now to poorly to do it... Still it all still looks nice from when I did it the last time, but have no plans to do it again...
I know many have said on here that they have anxiety with the FMS/ ME, well I had panic disorder and acrophobia , it started after my Dad suddenly died, my anxiety is so high if I have to go out I don't enjoy myself... I don't even like people invading my space at home :(

However, I am making great strides to get better, I make myself go out to the dentist and doctors, and I like to have a trip out to our local shops now and then, but I am happier at home, I feel so vulnerable out and about, it's very hard to explain ...

I am fairly happy go lucky, and yes I do tend to have much to give to others, I hope I do help the group and bring in some new perspective... After all life is one big joke, and it's best to laugh your way through it:):):):):):)
 

cmetryme

Extremely helpful member
Joined
Nov 3, 2013
Messages
1,030
Reason
DX FIBRO
Diagnosis
03/2008
Country
US
State
TX
And now I see a very wise lady! Family will only bring you down. Your hubby is doing what God planned for him. Most don't even know why they are here on this earth. He's steps ahead of most. You keep trying to get out and get ideas for your art from those trips. I love to paint. I just make Xmas yard art. I sell them but I haven't done it in years. It brings me down when Xmas does come. I'm painting from Jan first to almost Xmas day! I have to make 5,000 pieces if I want to stay out selling each weekend in November. So you see why I have to do it all year long. It does keep my mind off the pain. It's just a lot of standing. Don't get me wrong the money is real good! Average cost of material is about $3 or less. I sell each piece for around $100. Now as you know my lupus makes it hard to sit out there and sell them. I can't think of other things to paint. I have no vision and imagination. You can tell me how you can imagine it,I just can't see it. My art can't be shipped due to its to heavy.

Find something you can enjoy and get your mind off the pain. Sometimes we just need time away from the house. I understand.
Please friend me. Thanks for reading.
 
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