Zingers and Muscle Twitches

NCItalian

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Jan 12, 2022
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I have recently been diagnosed with Fibromyalgia and I have questions if someone could help me to understand a symptom. I have little zings that are somewhat electric, randomly around my body. Sometimes they are on my back while other times they may be on my arms, legs or face. This happens periodically during the day. I am unsure if this is something that will continue to get worse over time or is this a normal symptom for most people. It is very scary as they hurt and I don't know if this is something I must expect daily. I am having accupunture and some other treatment plans currently however with everyone being so busy during this covid surge there is no one to ask what to expect. No one seems to know what type of symptom I am referring to when I speak with my neurologist or GP. Surely someone has had these zings before. I appreciate anyone who can help me understand what is happening or if this sounds like fibromyalgia or something else.
 

sunkacola

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Hello NCItalian,
I have experienced something similar to this, although for me it is always confined to my legs and goes along with a deep aching pain. there are so many different ways in which FM manifests in people's bodies that just about anything you experience is probably on someone else's list of symptoms. Now -- what is causing it, that is another thing altogether and I don't know if anyone knows that. No medical professional has been able to tell me what causes mine. Whether or not it will happen daily is another unknown.

welcome to the forum, and I hope you find good information and support here.
 

JayCS

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Hi @NCItalian - can you exclude them coming from treatments like meds or the acupuncture? (e.g.: When did the zings start?)
Very much sounds like nerves. If possible you might want to ask a 2nd neurologist, esp. as they're not "funny".
But I agree with sunkacola that you're probably not going to get far with docs on this.
As they are all over the place I doubt it's muscles pressing on nerves somewhere, but I'd still ask a good physiotherapist if I had the chance. Have you identified any triggers? Does periodically mean at certain times or randomly?
Small fibre (peripheral) neuropathy = SFN is something that can come with painful tingling, have you looked into that?
It can be co-morbid with FM or some think there is a certain overlap, like a subgroup.
Did your neurologist test for that or mention it?
 

JamieMarc

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Nov 17, 2021
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I have had the same type of issue in my right arm for almost 7 years now. Even now, after seeing so many specialists and having so many tests we still do not know the cause. But I'm not giving up.
I have found nothing to be effective at relieving the pain completely. I could go on and on but I will just say at this time the most effective treatment for me with this nerve pain is a compression sleeve, a heated wrist brace, relaxation techniques, and minimizing phone and computer usage as much as possible. My nerve pain extends from my shoulder all the way down to the tips of my fingers on my right arm. It is by far the most severe and painful symptom of my fibromyalgia.
Once I finish my move to St Petersburg, I will continue to consult with specialists to investigate the cause and treat it. On my own, and with the help of folks in this forum, I am experimenting with various organic supplements.
Hugs!
 

NCItalian

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Thank you so much for this information. It is a reminder each time it happens of how my life has changed. My sensations are in different places all over my body at random times. I am very thankful that I found this outlet so at least I can talk to others who experience these types of issues.
I hope your move goes well and you get the answers that you deserve.
Hugs
 

NCItalian

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Jan 12, 2022
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I just looked that up and read about it and yes that seems like a possibility. It is all so new and I am trying to get in with a second neurologist. The issue here is that our doctors are so overworked and they stopped taking patients. There is a great neurologist in Boone, NC that I call every week to see if she has opened up for new cases and patients. I am on plavyx and a beta blocker and I have read that both of those drugs can cause tingling sensations. My sensations hurt, but they do tingle. They begin to happen during the daytime much worse after taking my plavyx. I am going to see if they will change my type of blood thinner to something different tomorrow when I go to my cardiologist.

Thank you so much for your help and knowledge. I am thankful to have found this forum and any answers that you all can supply.
 

NCItalian

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Jan 12, 2022
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Thank you very much for the information. I am finding that this is a discovery process. I am appreciative that I found this forum to be able to communicate with others who experience these issues. There is not a lot of help with the medical profession but I do realize that they are terribly busy now with covid and health issues for so many people.
 
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