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Hi,

did you ever get diagnosed with anything? How did your mri turn out? I have similar symptoms (heaviness, muscle tightness). Thank you
B
Blueboat
I had severe low folate when I originally had symptoms, but that has since been corrected. Don't know if you've had these checked. It also started at a time where I had high anxiety, trying to run a young family, job promotion/chartership interviews, and always on the go. I wasn't stressed as such but probably never gave myself a break from it all. Something to also look into.
B
Blueboat
I've improved slightly, but only up to about 80%. Been on amitriptyline and various vitamins which I don't know if they have accounted for the improvement. My mother has fibro as well so I also don't know if it's similar, or some inherited nervous system issue. I wish you all the best in finding out what is wrong.
T
Tattat
Thank you. I wonder if the nervous system just crashes sometimes for us anxious folks and it just takes time (like months) for it to get better....
Hello! I am currently not diagnosed (neurological appointment is two months away and waiting is the worst!). I was just looking around this site and noticed that you have a similar symptom (head, face tightness). Mine is pretty bad (especially when I am trying to talk and my jaw gets so tight it’s hard to speak). I was wondering if that symptom went away for you or is it prettty constant? Thank you
T
Tattat
I am not yet diagnosed with anything. I have a two month wait to see a neurologist. I have some pain that I think is just muscle tension type of pain. I ve always had random shooting pains here and there but I just went about my life ignoring it. My main symptoms is muscles tightening up and tightness everywhere and the heavy feeling in left leg, right arm and sometimes head... weird combo 😂
T
Tattat
And I don’t sleep well, but I have two small kids that wake me up frequently. And my mind is racing with the thoughts of how tight my body is, how heavy it is, etc. I do get the numbness and needle feeling at night but I lay on my arm I think.
I
irvinj46
That sounds like me I have a five-year-old who refuses to sleep so we basically bounce off each other he doesn't sleep because I don't sleep but I don't sleep because he doesn't sleep. Well whenever you get diagnosed just know that there are people here to listen and help out and give words of wisdom through this.
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Taking each day as it comes I don’t know if I’m on right forum my doctor tell me it would help but know one said hi welcome to group especially when you suffer severe anxiety it takes alit just to write how your feeling stay safe
sjbrown
sjbrown
Hi Louisa - Welcome! Sometimes I have trouble navigating this forum and dont see things right away. Here is a good place to vent, share etc. I dont know about others but I take breaks from the computer because I need that too. :)
Louisa199
Louisa199
I do the same turn of when I’m not in pain I love family time .thanks for the advice x
Hello,

I am having issues with setting up my profile it says my Bio is spam like? Can I send you what I was trying to add? It’s not anything spam like or inappropriate I don’t know what the issue is.... can I send it to you for review and you add it to my bio for me?
Louisa199
Louisa199
Mine is saying same my doctor tell me to come on good forum but my other message said spam hope you get it sorted x
Have any of you used a SAD lamp? I know it's for depression/chronic fatigue but as most of us have a dual diagnosis I thought it was worth a try. 2 weeks and nothing really to report except that I like it. Does anyone have any experience? know of anyone with any experience? Well wishes for all of you out there.
I am wondering how many are on some type of pain killer ? I was prescribed Tridural. the doctor told me it wasn't a narcotic, and I use a low dose. the Tridural seems to work a little at least it takes the edge off the pain.
is anyone using cannabis for the symptoms ? the first use of cannabis legally was for FM.
Louisa199
Louisa199
I got put on Pregabalin they feel much better than the Gabapentin they made me ill zoned out didn’t like the feeling
E
EdTechMommy
I have been on Cymbalta and Gabapentin for about 4 years. They used to control my flairs, daily fibro pain, and Rheumatoid Arthritis pain fairly well, until RA and Osteoarthritis became worse. Now I'm in so much pain that it has become unbearable! I'm getting ready to have Radiofrequency ablation (or RFA). It's a procedure used to temporarily burn the nerves pressing against the spine to reduce pain.
E
EdTechMommy
It's supposed to last from 6 - 18 months; the nerves eventually grow back. I am so ready for relief! Has anyone had anything like this done? Regular pain injections did nothing for me.
Hey there! I'm new here too...how are you today?
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JulesAlba
JulesAlba
Hi, I’m coming off a flare up. Movement is hard but really does help. I’m glad to be here. Thanks for the welcome!
W
wencor
Hi! I'm just coming up a flare up too. It's what prompted me to seek out this forum. I'm getting desperate to find something that helps when the pain gets bad.
Hi - I've just been diagnosed with Fibro today - although have had it for over 10 years - looking back at all the data. I'm good with managing the pains but really struggling with my brain. Cant concentrate, think, and have virtually no short term memory - even for the fun things. I was fainting and have been off work the last 1.5 weeks. I'm keen to try to get back to work but I do a senior business role and my performance is really impacted by my inability to get my brain to work.

Does anyone have any tips, or guides they have used on the road to getting this under control and back to work functioning great?
Rheumatologist recommended hypnotherapy - said I will be great and see massive difference after that. Its booked for this coming Wednesday but I'm a bit unsure … Has anyone else used this approach and did it work ? (what did they do - if you don't mind me asking)

Any advice, experience shared would be so appreciated.

:)
J
joy
will be very interested in how mthismworks. It frustrates me and my family. Not the same mom or grandma
P
Prchrsgirl
I'm not me anymore either :(
Louisa199
Louisa199
I’m the same I want to cook the meals I enjoyed cooking playing with my grandsons but I am glad I now know what’s happening to my body
Hi ChinaCat. I read your post about dry needling. I have severe muscle knots and I've been considering dry needling. Did you continue with more dry needling sessions? How did they work for you? Any after-effects? Thanks in advance for any insight you can offer me.

NJLady
Hey I was just curious if you found out what was going on after your neuro appointment. You described everything I’m experiencing exactly, I’m 29 male and also haven’t had any positive tests results.
Hey there! I am brand new too! Hope uour pain is tolerable today. My only pain scale is tolerable or intolerable.
Looking for help and support please. I am 30 years of age and i have been told by my doctor that i have fibromyalgia. The most debilitating thing is my back ache as well as all over muscle pain, weakness and tiredness. Daily i am in alot of pain. I have tired excerise but it just take me 10 steos back. The main reason i am looking for support is that for a reason my mother was dig with fibromyalgia, RHA and now osteoporosis and thinks i am actually not as bad as i make out i am!? I am so upset over this, i thought that above anyone that my mother would understand. I feel so alone, all my friends have lifes, familys, partners and i am watching there's play out whilst mines feels as if i cant do alot as i end up bedded with pain. Some days i feel like ending everything i feel so alone and dont know where to turn? Just because i dont have an arthritis or a proper diagnosis doesnt mean to say i am not in as much pain as i say i am? Any advise would be helpful.
W
wencor
Just know that we believe you. We know how you feel and that it is real. Hopefully we can all help each other find something that helps. :)
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