Dr. Mary J. Crawford, RN

Hi,

I have had Fibromyalgia for about 25 years. Was 1st diagnosed at Mayo Clinic. The pain, weakness, sleeplessness, emotional changes are only getting worse. Now I can barely walk as I have no fat or muscle on the bottom of my feet. I also have gotten some crazy rash but similar to cystic acne on my Scalp & moving down my face. I have 2 degenerative discs in spine. And my kidney Dr says I For more than five years I have been continuing my treatment for systemic lupus. Now I am taking the tablets MMF (mycophenolate mofetil), HCQS (hydroxychloroquine) 400mg per day, octocalcium 2 tablets at night, Ecosprin and losartan 25 mg.cannot assimilate calcium & Vit D properly; I keep getting kidney Stones. My Neurologist insisted that I had Seizures, which I told him that I did not have. He put me in the Hospital at Rush, insisting on tests. It was 24 hours long, strobe lights & such; trying to cause me to go into a seizure, which I never did. After the tests, he found it strange that I had an epileptic Brain, but no seizures. I said, maybe all Fibro Patients have an Epileptic Brain? He was not satisfied & basically said he could not help me. I have been to Rheumatologists, regular MD's, Holistic MD's, Naturopaths, Chiropractors & even see a psychiatrist to help me with sleep meds.I am always in pain & it has ruined my career, Family life (Husband & kids). My Mom & Sister act as if I am not  ill; if they cannot see it, I.e. No limbs, crutches, wheelchairs, etc. then to them I am not ill. Since Oct 2014, I have been having more severe issues. I now am home bound most of the time. I stopped taking narcotics for pain 20 years ago. Now, I do not know what to do. I cannot see my Grandchildren or Children as I can no longer tolerate changes in air pressure, unless my Dr give me 4 Percocet. 2 for each way as flight has one stop. The pain is unbearable without the meds for any trip. I do not take narcotics except for occasions like that. My last 2 MD's just dropped me, saying I had too many issues. I also have sleep apnea & fall quite regularly at home because of weakness. I heard a new neuro transmitter re-uptake drug was out that takes bone & muscle pain away. Selma or something similar. Please, I need help & am also having problems with short term memory, Disc damage, severe pressure point pain & can barely walk. I have Osteopenia, but main problem with walking is my feet. I had a nerve block done & it did nothing for pain. My thyroid is low & parathyroid is high. After 25 years, I am at my wits end! Is there anything you can do to help me & do you take Medicare with BCBS of IL Supplement for Insurance? I am 61, my husband is 71 & can run circles around me! My husband's Boss is a Pharmacist & said their is a new drug out that can help me, takes away bone & muscle pain...called Salma or something similar. I have it written down somewhere. I also have sever metal toxicity, 5 metals all found in teeth, was tested 3 times by 3 different Dr's. As I cannot afford a Holistic Dentist, I have done nothing to correct the situation. They tell me that I cannot detox unless I get the metal taken out properly first. I also now have Irritable Bowel Syndrome; I have been checked out & they can find no other cause for bowel problems. I have had enough. If we ever can afford to retire, I will just be home bound with no friends. I started losing my friends after making plans & then waking up only to have to cancel because of the pain levels. Eventually I lost all my friends, because of that, or they retired,moved & or have passed on. I am very lonely & my Husband is a quiet man. My cell # is 708-298-2003. Is there anyway you can help me? I have taken many supplements including Malic Acid. I am not getting better, but worse. I have had acupuncture, IFC (like tens), back stretch machine because of disc damage & pain, massage & chiropractic adjustments, vitamins & supplements....nothing seems to help.

Thank you,

Deborah Davidson

(My message says you have reached Holding Out Hope, a non for Profit that I Founded & was Senior Pastor to help Widows, Orphans & the Needy. I have someone else covering my Position for the last 5 years, but that is the correct #).