B
Reaction score
0

Profile posts Latest activity Postings About

  • ……(part 3)….This should be one of the best times of my life... and it's impossible to plan for the future when I don't know what I will be like in a year, or 2, or 10. Can I move to a house someday or will that do me in? Can I have a family? Can I live a semi-normal life again someday? Will I ever feel like I have my brain back? It's so much waiting.... and working on the mental strength it takes to manage it all. In the mean time I am researching dogs. That's a small dream that fibro can't take from me :) So do you have to spend a lot of time in bed? Do you work? Married/kids? Tell me about yourself, I'd love to hear :)
    -Sarah
    p.s. sorry, it wouldn’t let me post it as one big thing
    (part 2)……..2 years ago my chronic migraine started (i still have it every day) as well as the body pain, and this year the fatigue hit me and I started spending a lot of my time in bed. It's gotten worse and now I'm always in bed. somedays standing is hard. Somedays I can get to an appointment but I have to go right back to bed. We've tried so many things already. It's exhausting navigating this illness and trying to figure out what you should be doing. And so much of it feels random. I keep myself busy these days with hobbies I can do from bed. I send a lot of mail to nieces and friends, watch a lot of tv, research kids books, listen to books on tape.... distraction is really helpful for me. But I know I'm missing out. My friends live such active and exciting lives. They are SUPER supportive and watch tv in bed with me when they can, but they are busy and I still get lonely.
    Hi Brandy!
    I'm so glad you wrote me, it's so nice to find someone my own age. It's tough being so young and so disabled by fibro. I have so many questions for you now :) But I'll start with more on me. I'm 33 and married. My husband is incredibly supportive but it's tough on us both. I'm not able to work and I don't have any kids. We were in the process of adopting a toddler from Bulgaria a few years ago but we had to pull out before we were matched when it was clear I was getting worse and couldn't do it. In my old life I used to work as a special ed predicator, I liked to travel, cook, garden, exercise, be creative, and do so many things with friends. I think I may have had fibro since high school with lower energy and intermittent leg aches. But 6 years ago the chronic pain got bad, it started with my lower back.
  • Loading…
  • Loading…
  • Loading…
Back
Top