CrazyCatLady
Member
- Joined
- Jul 29, 2016
- Messages
- 20
- Reason
- DX FIBRO
- Diagnosis
- 07/2016
- Country
- CA
- State
- ON
The title seems a little silly but I didn't know what to write... haha
Hi!
I'm 28 years old and was just diagnosed with fibro by my rheumatologist on Monday.
The pain has been around for a long time but recently got much more noticeable a few months ago.
(As a possible point of reference as far as pain goes... getting a tattoo on my collarbone a year ago was about a 2 on a pain scale for me because chronic pain was constant and much worse. I almost took a nap during it! I've always had a high pain tolerance because I was always in pain and cursed with 2 to 8 migraines per day-- always unmedicated and straight edge.)
2 weeks ago, I had a new 10 to add to my personal pain scale.
I was sitting in bed and had the sensation that my kneecap had dislocated somehow and was being torn from my body, through my skin-- and the bottom half of my leg felt like it was in the pricess of being sawed off with a rusty hand saw. I cried in my bed for about an hour until the pain subsided and went back to the usual dull pain that I feel.
I had been seeing a neurologist (a terrible one, might I say.) for the past 7 months, for facial numbness that I have been experiencing for the last 2 years.
The left half of my face is completely numb to pain/hot/cold/friction/wet/dryness and my left eye is also numb and has lost part of it's field of vision. The left optic nerve is also swollen up to 4 times the size of the optic nerve in my right eye.
I've been passed around from specialist to specialist, done 8 rounds of MRI's with and without contrast and monthly bloodwork to try and figure out what is wrong with me.
10 minutes with this rheumatologist and having looked over the timeline and list of symptoms that I prepared for him-- as well as poking me all over; and he strongly believes that I have fibro.
I went for blood testing the next day to rule out anything else; as usual, nothing obvious popped up... so here I am.
I'm not completely convinced that fibro is my only diagnosis but I am glad to at least be able to put a name to this pain and begin trying to treat myself. At least I have an idea of where and how to start now.
I'm still doing my research.
Oh! I didn't even get into my mental health at all so I'll just describe it very briefly. Haha
I've been suffering from post traumatic stress disorder since I was about 6 and have seen many, many therapists and tried many therapies without much luck, yet.
I'm also agoraphobic and terrified of people and of leaving my room. The longest time I've gone without leaving my room, even for the use of the washroom was 7 months. The longest time I've gone without leaving the house was 4 years. I do try to get out regularly for grocery shopping errands or even just to ride with my mother while she gasses up the car or grabs a coffee.
Having recently moved from a small town where I was comfortable-- to a much more densely populated, more dangerous place has put a lot of stress on me and I'll admit that I haven't been getting out nearly as much as I was a year ago. I also don't get anywhere near as much exercise as I used to in-- have gained weight and lost all my muscle but I'm too scared and exhausted and fatigued to do much about it.
I'll just have to try to do better!!
Thanks for reading my long, boring story-- I'm glad I found this forum!
Cheers.
Hi!
I'm 28 years old and was just diagnosed with fibro by my rheumatologist on Monday.
The pain has been around for a long time but recently got much more noticeable a few months ago.
(As a possible point of reference as far as pain goes... getting a tattoo on my collarbone a year ago was about a 2 on a pain scale for me because chronic pain was constant and much worse. I almost took a nap during it! I've always had a high pain tolerance because I was always in pain and cursed with 2 to 8 migraines per day-- always unmedicated and straight edge.)
2 weeks ago, I had a new 10 to add to my personal pain scale.
I was sitting in bed and had the sensation that my kneecap had dislocated somehow and was being torn from my body, through my skin-- and the bottom half of my leg felt like it was in the pricess of being sawed off with a rusty hand saw. I cried in my bed for about an hour until the pain subsided and went back to the usual dull pain that I feel.
I had been seeing a neurologist (a terrible one, might I say.) for the past 7 months, for facial numbness that I have been experiencing for the last 2 years.
The left half of my face is completely numb to pain/hot/cold/friction/wet/dryness and my left eye is also numb and has lost part of it's field of vision. The left optic nerve is also swollen up to 4 times the size of the optic nerve in my right eye.
I've been passed around from specialist to specialist, done 8 rounds of MRI's with and without contrast and monthly bloodwork to try and figure out what is wrong with me.
10 minutes with this rheumatologist and having looked over the timeline and list of symptoms that I prepared for him-- as well as poking me all over; and he strongly believes that I have fibro.
I went for blood testing the next day to rule out anything else; as usual, nothing obvious popped up... so here I am.
I'm not completely convinced that fibro is my only diagnosis but I am glad to at least be able to put a name to this pain and begin trying to treat myself. At least I have an idea of where and how to start now.
I'm still doing my research.
Oh! I didn't even get into my mental health at all so I'll just describe it very briefly. Haha
I've been suffering from post traumatic stress disorder since I was about 6 and have seen many, many therapists and tried many therapies without much luck, yet.
I'm also agoraphobic and terrified of people and of leaving my room. The longest time I've gone without leaving my room, even for the use of the washroom was 7 months. The longest time I've gone without leaving the house was 4 years. I do try to get out regularly for grocery shopping errands or even just to ride with my mother while she gasses up the car or grabs a coffee.
Having recently moved from a small town where I was comfortable-- to a much more densely populated, more dangerous place has put a lot of stress on me and I'll admit that I haven't been getting out nearly as much as I was a year ago. I also don't get anywhere near as much exercise as I used to in-- have gained weight and lost all my muscle but I'm too scared and exhausted and fatigued to do much about it.
I'll just have to try to do better!!
Thanks for reading my long, boring story-- I'm glad I found this forum!
Cheers.