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Forum: General Discussions About Fibromyalgia 10-15-2017, 07:17 PM
Replies: 92
Views: 9,406
Posted By Marvis
Re: Exercise intolerance , how real is it?

Diamond and Tipnatee have you heard of the movie Unrest? It's a documentary about a woman, Jennfer Brea, struggling with ME. She filmed the entire thing from her bed, interviewing other sufferers...
Forum: General Discussions About Fibromyalgia 10-13-2017, 12:42 PM
Replies: 13
Views: 1,169
Posted By Marvis
Re: Rebuilding muscle and strength

I had a similar thing with my neck and shoulders - I had almost no mobility and any attempt to stretch would leave me in pain. I finally found a really good physiotherapist who carefully massaged the...
Forum: General Discussions About Fibromyalgia 10-07-2017, 12:32 PM
Replies: 92
Views: 9,406
Posted By Marvis
Re: Exercise intolerance , how real is it?

Not sure what mine was, because I don't know how long I've had fibro. I had mono, strep and high stress in university, but i can see signs of fibro earlier than that, so I'm not sure. I also lived...
Forum: General Discussions About Fibromyalgia 10-06-2017, 05:40 PM
Replies: 92
Views: 9,406
Posted By Marvis
Re: Exercise intolerance , how real is it?

i think his testing showed that exercising, which should cause an increase in oxygen in your blood, in fibro and me patients actually decreased - which is why the exercise would be so fatiguing.
Forum: General Discussions About Fibromyalgia 10-06-2017, 04:22 PM
Replies: 92
Views: 9,406
Posted By Marvis
Re: Exercise intolerance , how real is it?

Wow Pegleg!!! " I always thought I had low lung capacity' are almost exatly the words I've been using lately. I was never able to run either. I just couldn't breathe. One summer as a teen, I tried to...
Forum: General Discussions About Fibromyalgia 10-04-2017, 07:54 AM
Replies: 27
Views: 2,600
Posted By Marvis
Re: Noise Noise and more noise! ahhhhhh!

I get that 'chip bag crumpling' sound in my left ear if I lie on my right side sometimes. I figure it's fluid in my ear. I often have moisture leaking out of my ears in the night (yum! add that to...
Forum: General Discussions About Fibromyalgia 10-03-2017, 07:13 AM
Replies: 9
Views: 1,064
Posted By Marvis
Re: Confused Husband needs help to understand

That must be tough. All I can say is that there are a lot of conflicted feelings when you are dealing with a fibro diagnosis. From moment to moment you either believe you are sick and are in full...
Forum: General Discussions About Fibromyalgia 10-02-2017, 07:51 AM
Replies: 19
Views: 2,908
Posted By Marvis
Re: Let's list all the things that do help

Pacing, pacing, pacing. I've cut so many things out of my life.

Gentle massage and self massage (trigger point)

non-medicinal muscle rubs - sombra, biofreeze, tiger balm

heat for muscles;...
Forum: General Discussions About Fibromyalgia 09-29-2017, 03:15 PM
Replies: 13
Views: 1,234
Posted By Marvis
Re: Saw 2nd Rheumatologist...and even more confused & frustrated

It is always good to question and not blame everything on fibro. That being said, this is a wierd, wierd disease. I had wicked hip and glute pain for weeks this fall - 4 or 5 muscle knots in my...
Forum: Moan, Complain and Vent 09-28-2017, 10:03 AM
Replies: 27
Views: 3,518
Posted By Marvis
Re: it's too much, just too much....

Hugs to you. That is so much to handle. You are being so brave and so strong to handle it all. Wish I could pop over and give you a hand. Know that your online friends are thinking of you.
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