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Old 04-22-2014, 07:33 PM #1
EHPrybylski EHPrybylski is offline
New Member (Say Hi)
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Join Date: 2014
Posts: 19
EHPrybylski is on a distinguished road
EHPrybylski EHPrybylski is offline
New Member (Say Hi)
Registered Member
Join Date: 2014
City: Manchester
State: NH
Country: US
Interest: I have Fibromyalgia, chronic pain, or chronic fatigue.
Posts: 19
EHPrybylski is on a distinguished road
Default New Member

Hello, it's nice to meet all of you. I'm sure my story will be familiar, as many of you are (or have) experienced similar problems. I've had "random pain" for many years, but in the last two it got bad enough that I couldn't work.

After tests upon tests coming up negative, after doctor after doctor acting like I was crazy, after friends and family stopped believing me someone suggested I might have fibromyalgia. Now, I knew several people who had it, but knew nothing about it. When a family friend heard me talking about it and said, "Well... it could be fibro," I was mystified. I'd heard it tossed around before, but not at me.

By that time I was neck deep in attempts to claim Disability because I have been unable to work due to severe pain and exhaustion for years. Heck, I can barely manage my house let alone go out eight hours a day and stand at a register. I have not yet received a diagnosis, officially, because they keep telling me the test is "inconclusive" since I'm not seeing them on the worst possible days. That's hard for me to do because I can't predict them!

At this point I'm tearing my hair out, and I'm very, very sick of my family and friends acting like I'm lazy or lying. What's worse than that though is the "sympathy" when I'm having a bad day. They tell me to "do what I need to do" but it's in such a tone that says they believe I'm lying. It's horrid.

So... there you have my story. Huzzah for me.
EHPrybylski is offline