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Mummiof5

New member
Joined
Jun 6, 2015
Messages
1
Reason
DX FIBRO
Diagnosis
06/2015
Country
Uk
State
Selkirkshire
a year after a very traumatic birth l have been diagnosed with fybromyalgia, l am very new to all this and Was just wondering what you all take for pain? Just now l am on 30mg dihydrocodeine x2 three times a day with little relief........help! I am a mummy to five small kids so NEED to be able to get up and move about. Seriously struggling just now and it's getting me down big time :(
 
I have been dealing with fibro pain for a while now. I keep coming back to my doctor saying the medicine has not helped my pain. I am on cymbalta, lyrica, mobic, and flexeril. I can only take flexeril at night because it makes me tired, but it does help with some of my pains. Have you been refered to a pain clinic yet? My doctor has yet to do that, but it is because I am only 20 and they do not want me on pain killers. Even though many other people struggling with fibro say their pain meds are what gets them through the day. If you are out of your 20's and have not been refered to a pain clinic yet maybe you should just ask your doctor.
Good Luck! I know what you are going through!
 
Hi mummiof5 from Australia!

I started with SR morphine ten years ago 15mg x twice a day with diazepam (valium) for relax and sleep. This increased to 40mg twice a day after a few years... After ten years of suffering from hyperalgesia from the morph (amplifying the pain) i switched to 10mg methadone tabs 1 x day to which i nearly overdosed. i tried 16mg hydromorphone 1 x daily for 6 months and then buprenorphine 20mg patch 1 x week for 6 months, all which made me screwed up in the head and not myself. It was like living under a dirty blanket.

I am currently on 100mg SR tramadol twice a day, 5mg Endone (oxycodone) for breakthrough pain, valium for sleep and relax, prescription NSAIDS so I can walk, and Baclofen tabs 10mg (an MS drug) for tight muscle spasms. I have to see a Pain Specialist up to four times a year to suggest what meds I can take for the government to release a script to my doc who I see every 28 days.

Fibro will affect your mind as does the medications. Chronic Pain has robbed me of my life from 29 to my current age of 40. I have had to stop asking why me and get on with it.

Being on heavy narcotics blurred my life and my relationships with my last jobs, my friends and my family. I feel like I just exist in this world of pain BUT I have my mind back now.

Stress is a great aggravator of Fibro. I know its very hard to deal with energy levels and other people's expectations Vs your own but I have had to concentrate on clean eating and be mindful that i don't put too much energy into tasks just to get them done, as I end up burning out. You can do the dishes by half and sit down for 5. Go back to it. Break up tasks. I never thought it was possible being such a success and results driven person.

Try ginseng extract for energy (vials). You will find it as Panax extractum in chinese supermarkets. I rely on it for energy and some brands also have B1, B2, B6 and B12. Drink lots of water and remember that small doses of pain releif often is better than larger doses of nasties which RUIN your body, your bones, your mind, and your digestion to name a few. There is a ceiling level to every drug and above that there is just addiction plus chasing that elusive pain relief again.

I feel for you, you busy mum.

Cheers from Australia!

Drew
 
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