Eff fibro
Active member
- Joined
- Oct 13, 2014
- Messages
- 38
- Reason
- Undiagnosed
- Diagnosis
- 10/2014
- Country
- US
- State
- MA
Hope someone can relate to never being able to understand their fibro because its always changing!
I've had vague symptoms for years, just never felt "good" and never had answers. Chronic nausea, vomiting, IBS, intermittent fatigue have been an issue since I was 18 (I'm now 31). This past April, my fingers started with a weird tingling/numbness, some days worse than others, but I wasn't concerned enough to get checked.
Then in July I started having shooting pains, a few shots down my leg, then my arm, then my foot, sometimes it feels like my chest is being electrically shocked... it REALLY freaked me out at first, I thought I had MS or something. The pains were so severe they caused my arm/leg to jerk violently with each shot of pain. Those pains happened every evening/night for a week, then I started having a few days without, now I only have those shots of pain once in a while (one or two shots every other day or so).
In August my back gave out and that still hasn't resolved, going to PT, stretching, exercising, heat/ice, muscle relaxers, at 31 years old it should be improving faster than it is, but as long as there's improvement I'm happy.
Last month I started getting more of the creepy crawly sensation, feeling like there are bugs crawling on me but I check and there never are. lol. I've started ignoring these sensations but there is the rare occasion that I reach to scratch that tickle and actually DO find a spider, YUCK!
Last week I started getting more vibration sensations and occasionally felt like I was being poked in the leg with a hot iron poker. These sensations made me laugh because they are just so absurd!
Now tonight I'm having unprovoked muscle/skin pain for the first time. My triceps, shoulders, and chest feel SOO bruised to touch, brushing against the pillow hurts. This feels more classic of fibro, based on what I've read. Awesome, just scratched my stomach and now that's feeling bruised as well. My outter thighs almost always feel tender to touch, but holy crap tonight its the whole top half of my body.
Will symptoms ever stop changing? When I asked the Rheum in sept if I should expect this to progress, she said expect the pains/sensations to *change* but not necessarily worsen. So far that seems true. The shooting pains are rare, but now this tender to touch thing... has me nervous it will be debilitating. Ok, I've ranted enough
I've had vague symptoms for years, just never felt "good" and never had answers. Chronic nausea, vomiting, IBS, intermittent fatigue have been an issue since I was 18 (I'm now 31). This past April, my fingers started with a weird tingling/numbness, some days worse than others, but I wasn't concerned enough to get checked.
Then in July I started having shooting pains, a few shots down my leg, then my arm, then my foot, sometimes it feels like my chest is being electrically shocked... it REALLY freaked me out at first, I thought I had MS or something. The pains were so severe they caused my arm/leg to jerk violently with each shot of pain. Those pains happened every evening/night for a week, then I started having a few days without, now I only have those shots of pain once in a while (one or two shots every other day or so).
In August my back gave out and that still hasn't resolved, going to PT, stretching, exercising, heat/ice, muscle relaxers, at 31 years old it should be improving faster than it is, but as long as there's improvement I'm happy.
Last month I started getting more of the creepy crawly sensation, feeling like there are bugs crawling on me but I check and there never are. lol. I've started ignoring these sensations but there is the rare occasion that I reach to scratch that tickle and actually DO find a spider, YUCK!
Last week I started getting more vibration sensations and occasionally felt like I was being poked in the leg with a hot iron poker. These sensations made me laugh because they are just so absurd!
Now tonight I'm having unprovoked muscle/skin pain for the first time. My triceps, shoulders, and chest feel SOO bruised to touch, brushing against the pillow hurts. This feels more classic of fibro, based on what I've read. Awesome, just scratched my stomach and now that's feeling bruised as well. My outter thighs almost always feel tender to touch, but holy crap tonight its the whole top half of my body.
Will symptoms ever stop changing? When I asked the Rheum in sept if I should expect this to progress, she said expect the pains/sensations to *change* but not necessarily worsen. So far that seems true. The shooting pains are rare, but now this tender to touch thing... has me nervous it will be debilitating. Ok, I've ranted enough