Eff fibro
Active member
- Joined
- Oct 13, 2014
- Messages
- 38
- Reason
- Undiagnosed
- Diagnosis
- 10/2014
- Country
- US
- State
- MA
July 2014 I started having sharp shooting pains so intense my limb would spasm. It would happen anywhere, totally unprovoked. My arm, then my foot, the in my chest, the my hand... it was baffling and very scary for me. After relatively normal blood tests, EMG, MRI of brain & c-spine I was diagnosed with fibro. Shortly after I started having bee sting sensations and twice had allodynia, weirdest feeling in the world! So I finally accepted the fibro diagnosis.
Then I threw out my back for the 3rd time (first 2 were many years ago and from overuse, this time I was just standing, not moving, and BOOM, felt like someone sliced my spine in half, I dropped to the ground and couldn't move for hours). My low back has been chronically achy since, that's 9 months now. I was doing PT for 6 months with minimal sporadic relief.
For a few months now I've been waking up about half the mornings a week around 4-5am with aching, numb hips. I'm fairly thin and sleep curled in a ball so I figured I was pinching off a nerve or blood supply so I started making a point not to flex so strongly at the back or hips. That relieved a bit of the back achiness but not the hip discomfort. I've been sleeping on a tempurpedic for years and it happens on my fiancé's pillowtop as well. Lately I'm waking up with my whole body hurting. My shoulders/upper arm now have the numb, aching feeling that my hips do and I ache all over. My muscles almost feel bruised to touch, like they would the day after a strenuous day at the gym (which I haven't done in years but know some exercise would be helpful).
I started gabapentin 4 months ago and that's relieved the sharp shooting pain and bee sting sensations, but this new pain isn't relieved by that, NSAIDS, muscle relaxers, heat, stretching... I just feel really run down.
Is this new-to-me symptoms of fibro? Do you find your symptoms change over time? I've read mixed opinions on that. I've heard back pain is very common but most threads I've read are due to herniated discs and other injuries seen on scans, my scans are fine. Thoughts? Thanks!
Then I threw out my back for the 3rd time (first 2 were many years ago and from overuse, this time I was just standing, not moving, and BOOM, felt like someone sliced my spine in half, I dropped to the ground and couldn't move for hours). My low back has been chronically achy since, that's 9 months now. I was doing PT for 6 months with minimal sporadic relief.
For a few months now I've been waking up about half the mornings a week around 4-5am with aching, numb hips. I'm fairly thin and sleep curled in a ball so I figured I was pinching off a nerve or blood supply so I started making a point not to flex so strongly at the back or hips. That relieved a bit of the back achiness but not the hip discomfort. I've been sleeping on a tempurpedic for years and it happens on my fiancé's pillowtop as well. Lately I'm waking up with my whole body hurting. My shoulders/upper arm now have the numb, aching feeling that my hips do and I ache all over. My muscles almost feel bruised to touch, like they would the day after a strenuous day at the gym (which I haven't done in years but know some exercise would be helpful).
I started gabapentin 4 months ago and that's relieved the sharp shooting pain and bee sting sensations, but this new pain isn't relieved by that, NSAIDS, muscle relaxers, heat, stretching... I just feel really run down.
Is this new-to-me symptoms of fibro? Do you find your symptoms change over time? I've read mixed opinions on that. I've heard back pain is very common but most threads I've read are due to herniated discs and other injuries seen on scans, my scans are fine. Thoughts? Thanks!