Lou38
Senior member
- Joined
- Dec 29, 2016
- Messages
- 232
- Reason
- DX FIBRO
- Diagnosis
- 02/2017
- Country
- UK
- State
- Scotland
I had my rheumatologist appt today and saw a different doctor. I've waited months to see them, have been at my GP constantly and am attending regular meetings with my boss at work due to sickness absence. I pinned all my hopes on getting some answers today and the doctor was useless!
She said if I have another flare, to go to my GP to try different drugs. I told her I don't sleep, my mood is low & almost every day I have pain and that's not during a flare. Her answer was to maybe refer me to pain management in the future and to see me back in a year! I asked for a diagnosis and she said that I have hypermobility, chronic widespread pain (really?!) and when I asked about fibro she said it wasn't very well understood and that the only test for it is to rule out everything else first which I have done. My boss is hassling me for a diagnosis and I still don't really have one. I was so close to tears, feeling frustrated and let down but gladly managed to compose myself until I got out of there!
I feel that the doctor was not interested at all, I'd like to see how she would cope with pain almost every day in life! I'm not sure where to go from here, like I said to the rheumatologist, I've been pushed from pillar to post for years with no one knowing what to do with me. I've had physio, hydrotherapy, pain management, I'm on more meds than ever but nothing has helped!
Sorry for the rant, I just feel really let down by the health service today. Just because you can't see an obvious illness, doesn't mean it doesn't exist!
She said if I have another flare, to go to my GP to try different drugs. I told her I don't sleep, my mood is low & almost every day I have pain and that's not during a flare. Her answer was to maybe refer me to pain management in the future and to see me back in a year! I asked for a diagnosis and she said that I have hypermobility, chronic widespread pain (really?!) and when I asked about fibro she said it wasn't very well understood and that the only test for it is to rule out everything else first which I have done. My boss is hassling me for a diagnosis and I still don't really have one. I was so close to tears, feeling frustrated and let down but gladly managed to compose myself until I got out of there!
I feel that the doctor was not interested at all, I'd like to see how she would cope with pain almost every day in life! I'm not sure where to go from here, like I said to the rheumatologist, I've been pushed from pillar to post for years with no one knowing what to do with me. I've had physio, hydrotherapy, pain management, I'm on more meds than ever but nothing has helped!
Sorry for the rant, I just feel really let down by the health service today. Just because you can't see an obvious illness, doesn't mean it doesn't exist!